I was found to have parietal antibodies about two years ago, and therefore diagnosed with autoimmune pernicious anemia, even though my B12 was in the low normal range and MMA was fine. The B12 had gone down 50 points in a year.
I'd had increasing neuropathy for a few years by then. I also had some twitching and pulling in my ribcage on the right side. This eventually led to having my gallbladder removed. I did not realize then that the stones that were discovered were very small and made of bilirubin, and suspect now there was no need for that surgery but it's gone now. The nature of the stones led my naturopath to do more testing. The abdominal pulling, I realize now, is probably muscle pulling due to neuropathy.
I took loading doses and since then the bad brain fog has gone away and I have much more energy and don't look yellow any more, and the neuropathy in my feet changed but did not go away. However, the pins and needles and muscle cramps have spread to my entire abdomen and ribcage area. It is almost unbearable at times.
I am in the U.S. and purchase my own methylcobalamin, can give myself shots as often as I please. However, my neurologist said my B12 was too high (over 1200) and I should inject much less often because too much B12 "can cause problems." I don't plan to continue with this neurologist for various reasons and am loathe to start the grueling process of getting in with a different one.
I don't want to cause more problems for myself by injecting too much, but wonder if I should start injecting more frequently to see if I can stop this symptom. The current neurologist said my neuropathy was due to bulging discs and dismissed the pernicious anemia as an issue in the trunk. She said there was no way to test for neuropathy in the abdomen and that I should stay active and take turmeric. Something seems amiss there.
I know this is neuropathy from the way it feels and because the muscles behave the same way in my trunk as they do in my legs. I am willing to start more injections but also scared to create more problems. Now I inject once a month.
Any suggestions from anyone with a similar issue? Thank you.