I am hoping someone may be able to offer me some advice.
I have suffered from low b12 since 16 (that's when it was first noticed anyway). Through my teens and early 20s I was put on various courses of b12 injections when symptoms got bad (fatigue, coldness, pins and needles etc).
I returned to my doctor two years ago (then 26) suffering with very bad thingling (particularly in my fingers and toes) and chronic fatigue. At that stage I was working in a stressful job and the doctor put it down to stress. Fast forward to this year after years of feeling very unwell with too many symptoms to count (fatigue, swollen tongue, thingling, numbness, balance being off, position sense altered etc) I ended up in hospital with optic neuritis. Not one doctor asked about my medical history with b12 despite me continuing to tell them, it was just dismissed and I was basically told I 90% had ms. I had a brain MRI while I was being treated in hospital and it should areas of demylenation. After being discharged I went to my gp again he completely dismissed anything b12 related and basically told me I'd have to see a neurologist but he reckoned it was more than likely ms. I again asked to be tested for pernicious anemia and he took bloods but when results came back he told he I didn't have anemia?! I then began self injecting b12 weekly and started to feel heaps betters. In the meantime I requested copies of my blood results and low and behold when I requested these it turns out I also have a folate deficiency (which I was never told) so I am now on folic acid too as well as b12 and I can't explain how much better I feel already and it's only been three weeks since this combination started.
My question I suppose is am I being naive thinking that all my issues are b12/folate related? Could years of neglect cause demyelination and my symptoms? Also is it possible I have pernicious anemia?
I am really struggling to get any medical support and I am just fobbed off when I suggest I have pernicious anemia. No one is listening. I am based in Ireland by the way.
Any help would be greatly appreciated.
On a side note my b12 level was 60 at certain points throughout my life and when between when it was tested in hospital and a week later in my gps the level had dropped by 200, in a week! Can't be normal right?