Loading dose update and partial success - Pernicious Anaemi...

Pernicious Anaemia Society

31,937 members23,078 posts

Loading dose update and partial success

GavinUK profile image
2 Replies

Following my previous posts about finally getting a low B12 test and starting on loading doses, I've had a partial success in continuing them past the standard '6 in 2 weeks'.

Just thought it might give others encouragement that it is possible to achieve if you are persistent and consistent in stating your case.

In my case, it involved the circuitous route of talking to the nurse on my first injection, getting a negative response from the neurologist, having an email conversation with the person who wrote the guidelines used by the neurologist, sending the nurse a letter and finally this morning talking to a doctor I'd never seen before (my regular GP is away).

Not sure if it was the big pile of guidelines I had with me, along with hand picked quotes, or that the doctor wanted to get rid of me, but she agreed to another 5 alternate day doses, by which time my usual doctor will be back and I can reassess with her. (This is in line with the 'reassess after 3 weeks' in the BSH guidelines anyway, so is as much as I could reasonably expect I think).

I found that the nurse was probably the most interested in my issues - perhaps because she is the one who does most of the injections and sees the sharp end as it were (pun intended :P). It was her that suggested I go back to the neurologist since my GP was away, and her that booked me in to see a doctor at short notice.

It also helped I think that I wrote letters and showed that I was taking an interest in my treatment, but without being aggressive or argumentative. They will be on record for future too, which will hopefully make things easier going forward.

After my 5th jab this morning I am just starting to notice the numbness in my little fingers diminishing, so hopefully that's a sign that things are starting to correct themselves - time will tell how long that will continue, but I consider it progress.

Gavin

Written by
GavinUK profile image
GavinUK
To view profiles and participate in discussions please or .
Read more about...
2 Replies
clivealive profile image
clivealiveForum Support

"Needle-less" to say GavinUK I congratulate you on your persistence (and your pun)

Foggyme profile image
FoggymeAdministrator

Hi GavinUK. Oh very well done...you little B12 schemer 😀😀😀😀.

And well done to your nurse for taking an interest and helping to ease your passage through what can be a tortuous route to treatment. For some. For far too many.

Hope your GP takes a similar stance when he/she returns...but sounds like you've done a very good job in putting together the right information and arguments.

And it's good news to hear that you're already experiencing some nerve recovery. Keeping everything crossed for more of that.

Marvellous to read good news...uplifting for all...so thank you for that 😀😀😀

You may also like...

No loading doses allowed

for my first b12 injection but says the nurse told her I don't qualify for loading doses because...

Treatment beyond the loading dose of b12

I've had the loading dose of 6 injections and noticed improvement along with great tiredness on the...

B12 loading doses query

of my loading doses next week & the week after. Had an injection this week. The nurse who does b12...

b12 without loading dose?

immediate b12 injections commence, however when I went to start the loading dose, I was told by a...

B12 loading doses stopped

loading doses & my bloods only rising to 395, my neurologist suggested I had another 6 loading...