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Pernicious Anaemia Society

32,244 members • 23,423 posts

All posts for August 2017

Heart arrhythmia

Hi all My bloods are all 'normal' as I said in my previous post. But I have been having really bad arrhythmia since Saturday. Mostly missing beats, every 4-10...

Hi all My bloods are all 'normal' as I said in my previous post. But I have been...

Dee215

•7 years ago

2 Replies

Connection between low but in normal range B12 and MCH?

My vitamin B12 is 209 where the optimum range is 197 - 771 my MCH is 32.1 and the range is 27 - 32. Is there a link between my B12 and my MCH. Also is it...

My vitamin B12 is 209 where the optimum range is 197 - 771 my MCH is 32.1 and th...

KarlNorge

•7 years ago

6 Replies

Feel dreadful

Hi can anyone help with these results please I'm feeling dreadful for months gp says everything fine take 100 mg of thyroxine also on ferrous fumerate daily...

Hi can anyone help with these results please I'm feeling dreadful for months gp ...

Bellmitzi

•7 years ago

7 Replies

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Understanding Blood Test Results

Hi everyone, I'm new here and would welcome some advice on my daughters blood test results. She's 25, has a normal diet - meat, veg and fruit but has ongoing...

Hi everyone, I'm new here and would welcome some advice on my daughters blood te...

Albie17

•7 years ago

10 Replies

Don't want anti-depressants (Amitryptilene), pain-killers (Amitryptilene) or counselling: just want a diagnosis

Went to GP yesterday, after 3 months. Haematology has now signed me off, all things being "normal" except raised MMA levels, so being sent for SIBO breath test...

Went to GP yesterday, after 3 months. Haematology has now signed me off, all thi...

Cherylclaire

Forum Support•7 years ago

43 Replies

Interesting snippet from The Telegraph

Thyroid peeps might like this as well http://www.telegraph.co.uk/health-fitness/doctors-diary/doctors-diary-blood-tests-can-mislead-treatment-vitamin-b12/

Thyroid peeps might like this as well http://www.telegraph.co.uk/health-fitness...

fbirder

•7 years ago

2 Replies

B12 mismatch

Just 4 weeks ago i got my blood results back from medichecks for a full thyroid check and my B12 was 240, now less than a month later i have just had results...

Just 4 weeks ago i got my blood results back from medichecks for a full thyroid ...

budgie10_0

•7 years ago

4 Replies

What next? Feeling far worse lately even with self injecting

Hi, I'm appealing to the many wise people here for help - despite SI I'm feeling worse and need impetus to see a doctor in a new country (Belgium). I was...

Hi, I'm appealing to the many wise people here for help - despite SI I'm feeling...

Mashie44

•7 years ago

16 Replies

Do i have anaemia with this result??

Haemoglobin concentration level was 128g/L , the range is [115.0- 148.0] Is this level good im not currently on any iron medication but have started eating...

Haemoglobin concentration level was 128g/L , the range is [115.0- 148.0] Is thi...

ThyroidObsessed

•7 years ago

2 Replies

Necessary To Fast For Blood Tests?

I'm having bloods done later this week - B12, folate, ferritin, IF AB. Just wondering whether I should fast - it's early morning so no big deal if I need to....

I'm having bloods done later this week - B12, folate, ferritin, IF AB. Just won...

drlabman

•7 years ago

4 Replies

American attitude to B12 deficiency

Does anyone know how this issue is handled in the US. Do patients fare better in a private medical system in a highly litigious society?

Does anyone know how this issue is handled in the US. Do patients fare better i...

Dewbuc

•7 years ago

27 Replies

Can I name my local hospital?

I've been thinking on this for some time. Would it be acceptable for me to name the NHS hospital where the gastroenterologist works who told a former female GP...

I've been thinking on this for some time. Would it be acceptable for me to name ...

GGourmet

•7 years ago

27 Replies

Re-Establishment Leicestershire PAS Support Group. Meeting 31 August, 10am-2pm, Ulverscroft, Leices. With Presentation by Martyn Hooper.

Hi All. Just spotted this on the PAS website: https://pernicious-anaemia-society.org/support-group/leicester-support-group-meeting/ The Shuttleworth Clark...

Hi All. Just spotted this on the PAS website: https://pernicious-anaemia-society...

Foggyme

Administrator•7 years ago

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Hopping mad!

Needed somewhere to blow off steam. I do not believe my profession! I've just been to my GP who bviously doesn't believe I am B12 deficient but is just...

Needed somewhere to blow off steam. I do not believe my profession! I've jus...

Dewbuc

•7 years ago

114 Replies

Will recent B12 shots Affect Iron Panel results?

Hi all, I want to check my iron levels to see if I should supplement iron (I'm pretty sure I do as Hb is low). My question is, will my having had recent b12...

Hi all, I want to check my iron levels to see if I should supplement iron (I'm p...

0SK780

•7 years ago

2 Replies

Neurological Features

I was diagnosed with Horner's Syndrome last March and spent two weeks in hospital having various tests done and all came back normal. Symptoms are eye lid lag...

I was diagnosed with Horner's Syndrome last March and spent two weeks in hospita...

mcdonnellsiobhana

•7 years ago

3 Replies

To laugh or cry 😕

Sooo, Unsure if PA or something else. I have really bad cramp in feet and legs. Proper spasms that are difficult to release. Anyone experience this? Pic...

Sooo, Unsure if PA or something else. I have really bad cramp in feet and legs. ...

Nonameavailable

•7 years ago

13 Replies

B12/folate

I am here on behalf of my daughter, she is 32 and has pernicious anaemia and Hashimotos. She had her first B12 injection 2 months ago and hasn't been asked...

I am here on behalf of my daughter, she is 32 and has pernicious anaemia and Has...

Keisha117

•7 years ago

6 Replies

B12 deficiency

Hi my b12 levels were so low at 237 even with taking b12 tablets.. Drs keep telling me my levels are normal. I have memory loss, pins and needles in arms and...

Hi my b12 levels were so low at 237 even with taking b12 tablets.. Drs keep tell...

Lyndsay80

•7 years ago

28 Replies

Do B12 injections sometimes just not work at all?

Had my once-a-month B12 injection last Thursday. And yet, since then, every single day, I've had the following symptoms: BACK PAIN ABDOMINAL PAIN HIP...

Had my once-a-month B12 injection last Thursday. And yet, since then, every ...

Cherylclaire

Forum Support•7 years ago

4 Replies

Am I just a fat, lazy hypochondriac???

Afternoon Would any of you mind giving me your opinions please? For over a year and especially over the last few months I've had what I thought could be...

Afternoon Would any of you mind giving me your opinions please? For over a y...

OpheliaBumps

•7 years ago

2 Replies

B12 needles and storage question

Hi I was wondering if someone could give me some advice on B12 injections. I’ve been buying Hydroxocobalamin which comes in 2Mg ampoules and been injecting it...

Hi I was wondering if someone could give me some advice on B12 injections. I’ve...

richymcp

•7 years ago

5 Replies

B12 with neuropathy symptoms

Hi I have been under a new GP in my practise who did blood test & my B12 level was 224. I have had 3 sets of loading B12 injections so 18 in total and have an...

Hi I have been under a new GP in my practise who did blood test & my B12 level w...

Goldcreast

•7 years ago

2 Replies

B12 and C677T gene mutation

Hi, I have the above gene mutation which is suppose to mean I need more B12 but tried to take it in pill form and felt awful, found out I have very low stomach...

Hi, I have the above gene mutation which is suppose to mean I need more B12 but ...

pixychik

•7 years ago

15 Replies

B12 - Question

My Uncle ,91, had started having delusions but after a series of 6 injections B12 he returned to normal. The last injection was 3 weeks ago and he has started...

My Uncle ,91, had started having delusions but after a series of 6 injections B1...

jlsl

•7 years ago

8 Replies

magnesium...and neuropathy

I read somewhere that magnesium helps with the pain of neuropathy. I thought I would give it a try - because although more frequent b12 injections have helped...

I read somewhere that magnesium helps with the pain of neuropathy. I thought I ...

jillc39

•7 years ago

9 Replies

Oral versus intramuscular B12 replacement.

The link to the article below gives an analysis of some of the research carried out on this subject. Only a relatively small number actually had Pernicious...

The link to the article below gives an analysis of some of the research carried ...

Dewbuc

•7 years ago

5 Replies

Any further improvement

I have been taking tablets now for 11 weeks and I am improving but so so slowly am thinking about asking for injections, my question is when it says doses...

I have been taking tablets now for 11 weeks and I am improving but so so slowly ...

calbous

•7 years ago

12 Replies

Could Pregabalin be masking neurological symptoms?

Hi, I have been taking Pregabalin (Lyrica) for the past year for anxiety. It works pretty well for me and has also stopped my migraines. It occurred to me...

Hi, I have been taking Pregabalin (Lyrica) for the past year for anxiety. It wo...

Curlygal

•7 years ago

4 Replies

Red tshirt.

My best analogy of b12 deficiency is. Put a red tshirt in the machine. Load it with whites, some cotton some synthetic. Do the wash as usual, the cotton...

My best analogy of b12 deficiency is. Put a red tshirt in the machine. Load it w...

miglet54

•7 years ago

2 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2017

Heart arrhythmia

Connection between low but in normal range B12 and MCH?

Feel dreadful

Understanding Blood Test Results

Don't want anti-depressants (Amitryptilene), pain-killers (Amitryptilene) or counselling: just want a diagnosis

Interesting snippet from The Telegraph

B12 mismatch

What next? Feeling far worse lately even with self injecting

Do i have anaemia with this result??

Necessary To Fast For Blood Tests?

American attitude to B12 deficiency

Can I name my local hospital?

Re-Establishment Leicestershire PAS Support Group. Meeting 31 August, 10am-2pm, Ulverscroft, Leices. With Presentation by Martyn Hooper.

Hopping mad!

Will recent B12 shots Affect Iron Panel results?

Neurological Features

To laugh or cry 😕

B12/folate

B12 deficiency

Do B12 injections sometimes just not work at all?

Am I just a fat, lazy hypochondriac???

B12 needles and storage question

B12 with neuropathy symptoms

B12 and C677T gene mutation

B12 - Question

magnesium...and neuropathy

Oral versus intramuscular B12 replacement.

Any further improvement

Could Pregabalin be masking neurological symptoms?

Red tshirt.

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