Hi, I'm appealing to the many wise people here for help - despite SI I'm feeling worse and need impetus to see a doctor in a new country (Belgium).
I was diagnosed as b12d last Sept. The initial loading course made dramatic improvements. I've been self-injecting since Jan and found once a week good - 10 days and I start to feel weak and woolly. If I have to do something strenuous or stressful have a jab in advance. I take 1000mg folate daily (folic acid doesn't seem to work).
Over the last 2 weeksI just seem to be getting weaker. I have tingling back in my feet and now for almost the first time in my hands and lower arms. I struggled to get through the day yesterday, just feeling as if I could hardly stand. I intended to cycle home from work but had to opt for the bus.
I half feel I'm being lazy and should pull myself out of this. I moved to a new country on 1st July for work so don't have a doctor yet and am dreading trying to explain B12D and SI... Stress of moving could contribute, but I've lived in 10 countries in the last 20 years and it is part of my career pattern. I have had two bad colds since I moved and had really bad flu for 5 weeks last autumn...
Just got up to make breakfast and feel so weak and weary and tearful, think I have to see a doctor but don't know what to say or ask for. Last GP visit 4 months ago I asked to see a haematologist and the locum said "whatever for"... this has put me off. Same locum said my low white cell count only matters if you have trouble recovering from illness (did I mention I had 5 weeks of flu when I couldn't leave my bed...?)
Just writing this has set me off crying so I suppose I am in quite a bad way. Can anyone suggest a reason I've just gone downhill? Think I'll do a jab (2 days since last). I'm loth to increase the frequency...so many people here manage with less. Other than stress (which is pretty normal) -- what else should I consider / ask them to test for?