Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for August 2017

Cormeen32

Just like to thank everyone who has replied to my questions all have helped me also I don't feel so alone l look after my 84 year old mother she doesn't...

Just like to thank everyone who has replied to my questions all have helped me a...

cormeen32

•7 years ago

2 Replies

Daft B12 behaviour

Hi, I'm sure most of us have done daft things at some point when B12 deficient. Just wondered what daft things the rest of you had done. I put the kettle in...

Hi, I'm sure most of us have done daft things at some point when B12 deficient....

Sleepybunny

•7 years ago

13 Replies

Cormeen32

Can anyone help me with this problem l never seem to be really hungry and any time I do feel hungry I find it very difficult to find anything that I fancy I am...

Can anyone help me with this problem l never seem to be really hungry and any ti...

cormeen32

•7 years ago

14 Replies

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When prescribed folic acid runs out

When my prescribed folic acid runs out am I best to stop altogether or is it better to get some cheap ones from supermarket to keep it topped up ?

When my prescribed folic acid runs out am I best to stop altogether or is it bet...

Av42

•7 years ago

12 Replies

B12/pernicious anemia

Is there any connection between b12 D and Behchets

lupin23

•7 years ago

6 Replies

Endocrinolgist

Hello again. Anyone else been to see an endo re: PA ? I had a referral from my GP and on arriving at the endocrinologists he was baffled as to why i was...

Hello again. Anyone else been to see an endo re: PA ? I had a referral from ...

kristianjones

•7 years ago

6 Replies

Help on what supplements i need very confused!!!

Hello all, please all i want to start taking supplements for iron, i have been advised to contact you from thyroid uk lovely people who have helped me with my...

Hello all, please all i want to start taking supplements for iron, i have been a...

Rmichelle

•7 years ago

6 Replies

New here

Hi just wondering if GP should be addressing any of these? Thank you TSH 33.8 (0.2 - 4.2) FREE T4 10.3 (12 - 22) TPO ANTIBODY 608.5 (<34) TG ANTIBODY 269.3...

Hi just wondering if GP should be addressing any of these? Thank you TSH 33.8 (...

Delsina

•7 years ago

2 Replies

New to the forum advice please

Hi I have been advised by the thyroid UK forum to come here, I have high antibodies (Hashimotos) and I have posted symptoms and results below. Supplementing...

Hi I have been advised by the thyroid UK forum to come here, I have high antibod...

LizzieJ8

•7 years ago

8 Replies

New to the group- advice please?

Hi all I have been recommended by a fellow member in the thyroid group to find out some more information about pernicious Anaemia and to ask you kindly for...

Hi all I have been recommended by a fellow member in the thyroid group to find ...

Tiff35

•7 years ago

3 Replies

Needle disposal

Hi. Where do you take your sharps box to dispose of it safely in the U.K.? I'm in the south east. Thanks.

Hi. Where do you take your sharps box to dispose of it safely in the U.K.? I'm i...

Nrxx1234

•7 years ago

7 Replies

B12 injections

Hi, my doctor has agreed to give me b12 injections. I have to write a letter detailing my private blood test (result was 193 (range 140-724) which according to...

Hi, my doctor has agreed to give me b12 injections. I have to write a letter det...

Shezaad

•7 years ago

4 Replies

Diagnosis problems

Hello, I am a twin whose twin was treated for PA. My twin recovered successfully after months of injections. Doctors dismissed this important family medical...

Hello, I am a twin whose twin was treated for PA. My twin recovered successfully...

Hopefulandpositive

•7 years ago

5 Replies

Be Aware / Beware: Prolific Spammer Across Multiple HU Communities: Communicating via Private Message: Do Not Reply-Report to Administrator

Hi All. There appears to be significant spamming activity across multiple HU communities at the moment. The spammer communicates via private message and will...

Hi All. There appears to be significant spamming activity across multiple HU com...

Foggyme

Administrator•7 years ago

7 Replies

Lymphedema

I have lymphedema in my right leg after cancer surgery, what I am wondering about is my leg is numb from my knee down. Could this be caused by my PA or is it...

I have lymphedema in my right leg after cancer surgery, what I am wondering abou...

lupin23

•7 years ago

4 Replies

B12 and Anaesthesia

I was diagnosed with a B12 deficiency approx. 15 months ago, had loading doses and have been on 3 monthly injections since then, I find these only seem to...

I was diagnosed with a B12 deficiency approx. 15 months ago, had loading doses a...

scadman

•7 years ago

6 Replies

Another Very Interesting Article on B12 being essential for optimal health

http://www.unifiedfamilymedicine.com/2012/07/20/748/ "Conclusion After reading about the many critical functions carried out by vitamin B12 in our body – from...

http://www.unifiedfamilymedicine.com/2012/07/20/748/ "Conclusion After reading ...

Polaris

•7 years ago

4 Replies

High Dose Vitamin B6 and B12 Supplements Appear to Cause Lung Cancer in Male Smokers

In an issue of the Journal of Clinical Oncology, published this week, researchers reported that taking vitamin B6 and B12 supplements in high doses (like those...

In an issue of the Journal of Clinical Oncology, published this week, researcher...

Clutter

•7 years ago

22 Replies

Totally predictable visit to GP. Why am I surprised?

Hi, I finally went back to the GP after finishing loading doses nearly 5 weeks ago and not feeling any better. I've read all the stories in here about GPs not...

Hi, I finally went back to the GP after finishing loading doses nearly 5 weeks a...

Curlygal

•7 years ago

19 Replies

Injections

Hi everyone new here, my new doctor has just picked up 6 months ago my b12 was 138.... retested this week as problems with my nerves especially shaking in...

Hi everyone new here, my new doctor has just picked up 6 months ago my b12 was ...

Glitterbug83

•7 years ago

5 Replies

How quickly does b12 change?

I am new to here. Advice will be welcomed. I recently had private blood tests done, primarily for existing hypothyroidism. I was really very unwell until about...

I am new to here. Advice will be welcomed. I recently had private blood tests do...

lindmau

•7 years ago

9 Replies

NHS Complaints - what can I expect?

Hi everyone! I have recently made a complaint against an NHS service for neglect. An error made by a nurse in that service and following admin errors have set...

Hi everyone! I have recently made a complaint against an NHS service for neglect...

drob107

•7 years ago

6 Replies

Extra injection?

Hello, I've been self-injecting every other day for a couple of months after utterly failing to get my GP to agree to treat me according to NICE guidelines....

Hello, I've been self-injecting every other day for a couple of months after utt...

Jennylind

•7 years ago

1 Reply

B12 injections and anti seizure drugs (epileptic) drugs.

I just heard B 12 injections contraindicate with AEDs I do a lot of research but didn't know this one ! There's a risk of becoming Anaemic so get your iron...

I just heard B 12 injections contraindicate with AEDs I do a lot of research bu...

CCSP-27

•7 years ago

4 Replies

FYI: MHRA Press Release: Batches of NovoPen Echo & NovoPen 5 recalled due to risk of fault

People with diabetes who use NovoPen® Echo® and NovoPen® 5 should check to see if their devices are included in the company-led recall by Novo Nordisk. The...

People with diabetes who use NovoPen® Echo® and NovoPen® 5 should check to see i...

Foggyme

Administrator•7 years ago

Be the first to reply

Side effects from B12 injections (rotexmedica hydroxocobalamin)

Hey everyone! I injected Hydroxocobalamin, (brand: Rotexmedica) a couple of times. The day of the injections i feel no side effects, however the day after and...

Hey everyone! I injected Hydroxocobalamin, (brand: Rotexmedica) a couple of time...

hummus

•7 years ago

19 Replies

B12 and crp

Can anyone advise me please. I have just learnt this week of my blood results. B12 is 115 Crp is 76. I'm feeling generally quite awful and have done for 3...

Can anyone advise me please. I have just learnt this week of my blood results. ...

Spin5

•7 years ago

22 Replies

GP refusing to listen regarding NICE guidelines for pernicious anaemia

Hi there can someone please give me advice.2 years ago I was suffering symptoms which made me feel as though I was going mad. Fatigue,electric shocks all over...

Hi there can someone please give me advice.2 years ago I was suffering symptoms ...

margareta12321

•7 years ago

76 Replies

Haemoglobin estimation

My recent blood test (FBC) showed hb. as 113 - lab. level 115-165 dr. said borderline anaemic not low enough to need to supplement, just eat as much iron...

My recent blood test (FBC) showed hb. as 113 - lab. level 115-165 dr. said bor...

foxglove

•7 years ago

2 Replies

Confused and humiliated

I just went back to the doctors as it's been 3 weeks since my loading dose ended and I still have symptoms Brain fog Overwhelming tiredness Hair loss...

I just went back to the doctors as it's been 3 weeks since my loading dose ended...

Nicoleflower81

•7 years ago

13 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2017

Cormeen32

Daft B12 behaviour

Cormeen32

When prescribed folic acid runs out

B12/pernicious anemia

Endocrinolgist

Help on what supplements i need very confused!!!

New here

New to the forum advice please

New to the group- advice please?

Needle disposal

B12 injections

Diagnosis problems

Be Aware / Beware: Prolific Spammer Across Multiple HU Communities: Communicating via Private Message: Do Not Reply-Report to Administrator

Lymphedema

B12 and Anaesthesia

Another Very Interesting Article on B12 being essential for optimal health

High Dose Vitamin B6 and B12 Supplements Appear to Cause Lung Cancer in Male Smokers

Totally predictable visit to GP. Why am I surprised?

Injections

How quickly does b12 change?

NHS Complaints - what can I expect?

Extra injection?

B12 injections and anti seizure drugs (epileptic) drugs.

FYI: MHRA Press Release: Batches of NovoPen Echo & NovoPen 5 recalled due to risk of fault

Side effects from B12 injections (rotexmedica hydroxocobalamin)

B12 and crp

GP refusing to listen regarding NICE guidelines for pernicious anaemia

Haemoglobin estimation

Confused and humiliated

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive