To laugh or cry πŸ˜•: Sooo, Unsure if PA... - Pernicious Anaemi...

Pernicious Anaemia Society

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To laugh or cry πŸ˜•

Nonameavailable profile image
β€’13 Replies

Sooo,

Unsure if PA or something else. I have really bad cramp in feet and legs. Proper spasms that are difficult to release.

Anyone experience this?

Pic attached ... couldn't "undo" cramp. So cheered myself up by taking photo.

So ... to all fellow sufferers

Live long and prosper x

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Nonameavailable
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13 Replies
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ajw1205 profile image
ajw1205

:D I can't add anything other than to say you did make me chuckle!

clivealive profile image
clivealiveForum Support

Almost Churchillian - or is that a rabbit?

No! That's chinchillian so perhaps you've got "mixupmytoesis" :)

Hope you manage to "unclench" soon Nonameavailable

0SK780 profile image
0SK780

Yes! I had similar a year ago before I knew about PA, my toes would pull down toward my sole, it was excruciating and did eventually subside but looked as your picture only my toe was pulled down not apart and could not be released, I used to fight to pull it upward, awful, sympathies ! >_<

Greatbanks profile image
Greatbanks in reply to 0SK780

Yes the cramps were awful and painful before the B12 injections ,they have become less frequent !

Sleepybunny profile image
Sleepybunny

Hi,

At one point I was getting muscle spasms all over my body, mostly in my feet though.

Getting B12 and also taking magnesium seemed to solve the problem.

Nonameavailable profile image
Nonameavailable in reply to Sleepybunny

Thought I would take some magnesium. B12 every 4 weeks. But I do get all muscles everywhere joining in the party.πŸ˜•

Sleepybunny profile image
Sleepybunny

Have your iron levels and potassium levels been checked recently?

I'm not medically trained.

Olissima profile image
Olissima

Nice pedicure:)

Low K and Mag can cause cramps. What are your numbers (with reference ranges)? Also, are you taking B12 as methylcobalamin? There is a sublingual form with good absorption if you don't want to do inj.

KimberinUS profile image
KimberinUS

Definitely had same problem!!! Potassium and magnesium neded. That cramping hurts.

potter5 profile image
potter5

Hi, I also have this.my toes either lock or curl up the front of my foot and ankle also twists up. The cramping is Excruciating. I did some research and have just ordered magnesium supplements. Also, I think it is important to have potassium rich foods and leafy green vegetables in your diet. I hope you get some ease soon. Kind regards

Nonameavailable profile image
Nonameavailable in reply to potter5

Thank you

I'm on it πŸ‘πŸΌ

Harvena profile image
Harvena

Yes I suffer too. I have not had my Potassium checked for a while so I am wary of taking a supplement, but I do take Magnesium, even so I was still having problems so I asked GP about it recently and she advocated me taking an iron tablet (I often have problems with low Ferritin) just before I go to bed together with my Mag tablet, it has worked really well for me. Not suggesting that you should take iron unless you know level is low though. (I SI several times per week with Hydroxycobalamin, take all the co factors and sub lingual Methylcobalamin from time to time too.

Nonameavailable profile image
Nonameavailable in reply to Harvena

Thank you ,

I am on monthly injections, and always score a little low on the iron front, tho never low enough for them to suggest supplement.

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