Hi everyone new here, my new doctor has just picked up 6 months ago my b12 was 138.... retested this week as problems with my nerves especially shaking in hands.. pins and needles electric shock feeling. Problem with my legs and falling over. The list could go on... its now 93 and starting 3 x shots a week for 2 weeks to start with. Just curious as I read some of u got worse before better am wondering if ill need time off work ? If I feel worse I'm already exhausted! Anyone help? I know everyone is different just looking at wat to expect thanks

5 Replies

  • with a level of 93 I'm amazed that you could actually work at all - that's really low and you must have been feeling really exhausted for a very long time.

    As you have neurological symptoms you should actually be on a more aggressive treatment - 3x weekly until symptoms stop improving (with a review at 3 weeks) followed by maintenance doses every 2 months (though even that can be far from enough for some of us).

    You may notice more aches and pains and if your immune system is kicking back in you may notice all those symptoms that you associate with a cold - runny nose, slightly raised temperature - as your body starts fighting infections properly. To be honest people's reactions to B12 vary so much that you may be lucky and it may just be onwards and upwards - here's hoping that that is the case.

  • Thank you yes I struggle to work and have been exhausted for a long time

  • Hi I joined the site after I completed my loading shots. I felt awful very foggy in the head and just dreadful in general. After ten days I felt great and have just had a family holiday to Disney in America for two weeks going on all the rides with my family without any symptoms at all. Have been home a few days and apart from being a bit strange in the head probably down to jet lag feel pretty much good to go. I don't know if it will be the same for you as my gp picked mine up when level was at 137 . But I hope you'll be lucky like me . I also got loads of spots on face and chest which have gone now but to be honest feeling great for me was more important. I hope this helps as I was so disheartened to start with and with the help from people on here realised that sometimes things do seem worse to start but can improve with time .

  • Hi Rhi83 please ask to have your Folate level checked as this and the B12 you are having injected helps your iron to function properly and make red blood cells.

    There is a complex interaction between folic acid, vitamin B12 and iron. A deficiency of one may be "masked" by excess of another so the three must always be in balance.

    I hope you don't have to stop work and wish you well.

  • I would get a copy of the BCSH guidelines to your doc. (See website) Your levels are very low and you should be on alternate day jabs until no sign of improvement - if I remember corrrextly. Have to say I just kept feeling better and better with jabs. I now have them four-weekly and seems to work for me. Do look into supplementing with folic and iron though as someone said earlier.

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