Injections : Hi everyone new here, my... - Pernicious Anaemi...

Pernicious Anaemia Society

32,672 members24,065 posts

Injections

Glitterbug83 profile image
5 Replies

Hi everyone new here, my new doctor has just picked up 6 months ago my b12 was 138.... retested this week as problems with my nerves especially shaking in hands.. pins and needles electric shock feeling. Problem with my legs and falling over. The list could go on... its now 93 and starting 3 x shots a week for 2 weeks to start with. Just curious as I read some of u got worse before better am wondering if ill need time off work ? If I feel worse I'm already exhausted! Anyone help? I know everyone is different just looking at wat to expect thanks

Written by
Glitterbug83 profile image
Glitterbug83
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Gambit62 profile image
Gambit62Administrator

with a level of 93 I'm amazed that you could actually work at all - that's really low and you must have been feeling really exhausted for a very long time.

As you have neurological symptoms you should actually be on a more aggressive treatment - 3x weekly until symptoms stop improving (with a review at 3 weeks) followed by maintenance doses every 2 months (though even that can be far from enough for some of us).

You may notice more aches and pains and if your immune system is kicking back in you may notice all those symptoms that you associate with a cold - runny nose, slightly raised temperature - as your body starts fighting infections properly. To be honest people's reactions to B12 vary so much that you may be lucky and it may just be onwards and upwards - here's hoping that that is the case.

Glitterbug83 profile image
Glitterbug83 in reply toGambit62

Thank you yes I struggle to work and have been exhausted for a long time

Av42 profile image
Av42

Hi I joined the site after I completed my loading shots. I felt awful very foggy in the head and just dreadful in general. After ten days I felt great and have just had a family holiday to Disney in America for two weeks going on all the rides with my family without any symptoms at all. Have been home a few days and apart from being a bit strange in the head probably down to jet lag feel pretty much good to go. I don't know if it will be the same for you as my gp picked mine up when level was at 137 . But I hope you'll be lucky like me . I also got loads of spots on face and chest which have gone now but to be honest feeling great for me was more important. I hope this helps as I was so disheartened to start with and with the help from people on here realised that sometimes things do seem worse to start but can improve with time .

clivealive profile image
clivealiveForum Support

Hi Glitterbug83 please ask to have your Folate level checked as this and the B12 you are having injected helps your iron to function properly and make red blood cells.

There is a complex interaction between folic acid, vitamin B12 and iron. A deficiency of one may be "masked" by excess of another so the three must always be in balance.

I hope you don't have to stop work and wish you well.

NovicePA profile image
NovicePA

I would get a copy of the BCSH guidelines to your doc. (See website) Your levels are very low and you should be on alternate day jabs until no sign of improvement - if I remember corrrextly. Have to say I just kept feeling better and better with jabs. I now have them four-weekly and seems to work for me. Do look into supplementing with folic and iron though as someone said earlier.

Not what you're looking for?

You may also like...

Hydroxycobalamin injections

Hi everyone I’m so new to all this. Had undiagnosed low b12 since my symptoms started a year ago ....
Kiz20 profile image

B12 injections not working

Hey everyone. This is my first time posting and am really hoping for some advice, as I'm new to all...
Trudie1 profile image

B12 injections

Hi all, Sorry I never got back on here following the tests I had done a while back, Ive had other...
Pascha1 profile image

B12 Injections Stopped Working?

Hi everyone, Apologies as my story is a little long. I have hashimoto's thyroiditis. I gave up...
shelmer18 profile image

B12 Injections :(

I'm new. I was "doagnosed" with pernicious anaemia two years ago and have been having B12...
Weecee45 profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.