Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,211 members • 23,379 posts

All posts for June 2017

Painful hips, back, legs, everything.

In a time of tragedy I feel guilty at my own self-pity, but the pains in my legs and hips, part of the legacy of undiagnosed b12 deficiency, is becoming more...

In a time of tragedy I feel guilty at my own self-pity, but the pains in my legs...

stumpnme1

•7 years ago

12 Replies

Help with Intrinsic B12 test results

Hi all, I finally got my doctor to agree to do an intrinsic/active B12 test as my serum B12 was 192 ng/L and my mum has PA. Rang up for my results and the...

Hi all, I finally got my doctor to agree to do an intrinsic/active B12 test as m...

acdoore

•7 years ago

6 Replies

Worried

Hi posting here and thyroid forum iv been having b12 injections weekly the last one being in April I'm due next in July as per 3 month regime as per gp ....

Hi posting here and thyroid forum iv been having b12 injections weekly the last ...

Andypandy30

•7 years ago

5 Replies

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Returned with a question

Hi folks. I live in Australia and I used to be on the old forum which I found most helpful as was the entire web site. My B12 deficiency has been kept in check...

Hi folks. I live in Australia and I used to be on the old forum which I found mo...

Inee

•7 years ago

6 Replies

lithium for B12 transport

Has anyone done any reading on using lithium supplement for B12 transport into the cell, thereby lowering B12 blood serum?

Has anyone done any reading on using lithium supplement for B12 transport into t...

namastay

•7 years ago

2 Replies

Encouraging Stories, Please!

Hi. I was diagnosed with Pernicious Anemia 3 months ago and had loading doses and am getting 2 shots a week of 1000mcg of Hydroxocobalamin. I'm really...

Hi. I was diagnosed with Pernicious Anemia 3 months ago and had loading doses a...

jpar

•7 years ago

21 Replies

coming back to life

I am 59 and I have pernicious anaemia I have known and been doing B12 shots for a few years now. When I realized that this is what I was suffering with my...

I am 59 and I have pernicious anaemia I have known and been doing B12 shots for...

brendaann

•7 years ago

5 Replies

High B 12 Levels, what can cause it?

What can cause high B 12 levels?

Pat-lee

•7 years ago

1 Reply

B12

I was diagnosed with B12 many years ago and my blood test showed up that I was border line and would need injections fairly soon, as I was not able to absorb...

I was diagnosed with B12 many years ago and my blood test showed up that I was b...

Annikauk1

•7 years ago

9 Replies

Blood test results

I recently got my b12 levels checked because I was experiencing symptoms of a decifiency. My B12 level is 390, which is considered to be normal but my folate...

I recently got my b12 levels checked because I was experiencing symptoms of a de...

RC19

•7 years ago

2 Replies

New to here

Hi, I've recently had blood test which showed my B12 was low and I've been put back on tablets again. I'm not sure how low it was. How long do you feel for...

Hi, I've recently had blood test which showed my B12 was low and I've been put b...

JoJo32

•7 years ago

8 Replies

B12 and Folic Acid

I have had six injections of B12 over 2 weeks. Still feeling very tired and week poor concentration and coordination and depression . Doc put me on Folic Acid...

I have had six injections of B12 over 2 weeks. Still feeling very tired and week...

Dabar1

•7 years ago

2 Replies

Folic acid

I'm si weekly what's the best folic acid and strength please.

Cath-britton

•7 years ago

6 Replies

May I have some advice please on B12.

Thank you all for your feed back with my last post. l have just started a course of 6 B12 injections and wondered if there are supplements I need to take......

Thank you all for your feed back with my last post. l have just started a course...

MKitty

•7 years ago

2 Replies

B12d website

Has anybody reading this been involved with getting vitamin B12 injections from the b12d website run by DrChany? I know that it is a charity and you need to...

Has anybody reading this been involved with getting vitamin B12 injections from...

toph

•7 years ago

5 Replies

Please help I'm seeing the doctor on Thursday

Bloods were taking about 3-4 weeks apart because of concerns about b12 Ferritin and folate levels .in the meantime between the 2 tests I stopped taking my...

Bloods were taking about 3-4 weeks apart because of concerns about b12 Ferritin ...

pet-lamb

•7 years ago

10 Replies

Is it my PA or something else

I had my three initial injections earlier this year, and tomorrow i will have my three month blood test. After the initial 3, my levels went up slightly so my...

I had my three initial injections earlier this year, and tomorrow i will have my...

Moosey

•7 years ago

4 Replies

B12 Absorption problem ?

If you have an absorbtion problem with B12 do sublinguals or sprays work. If so.....how ? Do they bypass your stomach/digestive system ?

If you have an absorbtion problem with B12 do sublinguals or sprays work. If so...

Ryaan

•7 years ago

28 Replies

Tingle, tingle... is this normal?

Ok, so had 2nd of my loading doses today and have spent this evening feeling as if I have been rolling in stinging nettles. Is this a normal side effect? Also,...

Ok, so had 2nd of my loading doses today and have spent this evening feeling as ...

Auntieglitterball

•7 years ago

6 Replies

Another useless gp appointment:(

Went to my gp surgery today to talk to the nurse who gave me my loading doses 3 months ago & sent me for th blood test this month as the gp was useless last...

Went to my gp surgery today to talk to the nurse who gave me my loading doses 3 ...

mand82

•7 years ago

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Iron

Hi all. I've been self injecting for a year now. I also take folate, vit d, k2 and magnesium. My last ferretin results came back at 32 so want to supplement...

Hi all. I've been self injecting for a year now. I also take folate, vit d, k2 a...

Katys1981zzz

•7 years ago

7 Replies

Symptoms of b12 deficiency

Hi! I was put on metformin because of my pre diabetes. Two months later I developed severe leg cramps and twitching, my hands and legs are tingling. My...

Hi! I was put on metformin because of my pre diabetes. Two months later I devel...

Kwizna

•7 years ago

17 Replies

Has anyone found the heat affects their symptoms?

We are currently spending time in southern Spain where temps are in the mid 30s. My symptoms seem to be worse and I am wondering if it is the heat. Has anyone...

We are currently spending time in southern Spain where temps are in the mid 30s....

BarefootHelen

•7 years ago

4 Replies

Should Have Joined Years Ago!

Became a member of PAS last week, and wish I'd done it years ago! The information available, and advice from members on the forum has blown me away. So, I'd...

Became a member of PAS last week, and wish I'd done it years ago! The informat...

Discombobulated247

•7 years ago

8 Replies

B12 Injections

I was diagnosed with Pernicious Anemia around 18 years ago and have had B12 injections every 3 months since. I have missed my last dose, I last had one end of...

I was diagnosed with Pernicious Anemia around 18 years ago and have had B12 inje...

charlie1978

•7 years ago

4 Replies

Loading injections finished - unhelpful GP

Hi all. I got my blood test results back on 1st June and started loading injections the following day. B12 at 94, everything else apparently ok Blood test was...

Hi all. I got my blood test results back on 1st June and started loading injecti...

Pagey70

•7 years ago

7 Replies

magnesium spray

I read here (but cant find it) the suggestion that this spray might help neuropathic pain in the feet. I bought it, and I have found it really helps to take...

I read here (but cant find it) the suggestion that this spray might help neuropa...

jillc39

•7 years ago

5 Replies

Night sweats

I apologise if this problem has already been discussed here, but I have been having horrendous night sweats for months. I am on b12 injections 3 monthly, but...

I apologise if this problem has already been discussed here, but I have been hav...

stumpnme1

•7 years ago

6 Replies

pernicious anaemia how long to feel results

Hi, New here! I'm 26 and was diagnosed with pernicious anaemia and hyperthyroidism back in January. Had my first lot of loading dosages 6 shots in 2 weeks and...

Hi, New here! I'm 26 and was diagnosed with pernicious anaemia and hyperthyroidi...

rah26

•7 years ago

11 Replies

How long after the shots before you see any pain relief?

How long after anyone out there with B 12 deficiency took shots did you get any relief from the pain and how long before it was completely gone? Also did it...

How long after anyone out there with B 12 deficiency took shots did you get any ...

pejka62

•7 years ago

2 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2017

Painful hips, back, legs, everything.

Help with Intrinsic B12 test results

Worried

Returned with a question

lithium for B12 transport

Encouraging Stories, Please!

coming back to life

High B 12 Levels, what can cause it?

B12

Blood test results

New to here

B12 and Folic Acid

Folic acid

May I have some advice please on B12.

B12d website

Please help I'm seeing the doctor on Thursday

Is it my PA or something else

B12 Absorption problem ?

Tingle, tingle... is this normal?

Another useless gp appointment:(

Iron

Symptoms of b12 deficiency

Has anyone found the heat affects their symptoms?

Should Have Joined Years Ago!

B12 Injections

Loading injections finished - unhelpful GP

magnesium spray

Night sweats

pernicious anaemia how long to feel results

How long after the shots before you see any pain relief?

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