Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for April 2017

Worsening symptoms on maintenance dose

I developed mild sensory neuropathy about 3 years ago. Mostly permanent pins & needles in feet, occasionally hands, with occasional sharp stabbing pains in...

I developed mild sensory neuropathy about 3 years ago. Mostly permanent pins & n...

KirstenJA

•7 years ago

4 Replies

Blood results

My G P tells me my blood results are 15 so I am fine with my r.b.c..count.Can anyone help me to understand this please.I am on 2mthly injections.

My G P tells me my blood results are 15 so I am fine with my r.b.c..count.Can an...

Mrsannabbott

•7 years ago

5 Replies

Burning Feet

Hi there, I'm hoping someone may have some thoughts on one of my symptoms. Before I was diagnosed with PA, one of my symptoms was severe burning soles of my...

Hi there, I'm hoping someone may have some thoughts on one of my symptoms. Befor...

AnnaKatrina

•7 years ago

4 Replies

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Are these blood results normal as my doctor states?please help shed some light.

Hello All. Thank you for adding me to this wonderful site. I am a newbie and not sure if I have PA, I would like help understanding my latest blood test please...

Hello All. Thank you for adding me to this wonderful site. I am a newbie and not...

Bellao01

•7 years ago

19 Replies

Need a fellow tired friend!

Hello all, I'm new here. After about 15 years of suffering with aneamia I've finally realised I need to reach out to others. It's such an isolating thing to...

Hello all, I'm new here. After about 15 years of suffering with aneamia I've fi...

Claire80

•7 years ago

43 Replies

A new recruit???

Hi, Not sure if I belong here or not! I have a number of medical conditions, symptoms of which seem to overlap with the symptoms of PA. My dad has recently...

Hi, Not sure if I belong here or not! I have a number of medical conditions, sym...

Nanifrani

•7 years ago

5 Replies

Is Tinnitus related to B12 def?

I've always had mild tinnitus but now my B12 is low, it is really loud and different - it sounds like one of those ventaxias in a window, rattling a bit. And...

I've always had mild tinnitus but now my B12 is low, it is really loud and diffe...

moonbeamX

•7 years ago

14 Replies

Help with B12 and folate

Hi been sent here by Thyroid U.K. For advice on B12 and folate. Been recently diagnosed with hypothyroidism and been given levothyroxine. Also folic acid 5mg...

Hi been sent here by Thyroid U.K. For advice on B12 and folate. Been recently di...

Gracefulgiraffe

•7 years ago

4 Replies

Dr's visit as expected yesterday- he "doesn't believe" evidence I printed off for him :(

Well yesterdays visit to my GP was a farce as predicted, and once again, despite taking my printed sheets ( from library here and links sent via forum) I came...

Well yesterdays visit to my GP was a farce as predicted, and once again, despite...

Jesswoozer1

•7 years ago

8 Replies

Fog Blues

Anyone found a way of helping with those 'fog' days or do you just have to sit them out? Is there anything you can do/take to help? thanks (newbie) Keith

Anyone found a way of helping with those 'fog' days or do you just have to sit t...

Hidden

•7 years ago

5 Replies

Fed Up

In January I was told I was deficient in Vit B and given loading doses, then informed I would be on 3 month injections. I was also give iron and folic acid...

In January I was told I was deficient in Vit B and given loading doses, then inf...

Ladybelle2015

•7 years ago

3 Replies

confused about B12 levels

I was diagnosed with PA 18 months ago, but my B12 levels went up after a few months of injections. They have stayed high but my GP says because I have been...

I was diagnosed with PA 18 months ago, but my B12 levels went up after a few mon...

coopk

•7 years ago

6 Replies

B12 to low

Just starting the B12 shots. My B12 reading was 206. My legs have been very painful for over 2 years. Had a back operation on L3-L4-L5 and it did nothing....

Just starting the B12 shots. My B12 reading was 206. My legs have been very pa...

pejka62

•7 years ago

1 Reply

having a colonoscopy and a scope run into my stomach and dilation of my throat and have questions.

I have posted several times here and have gotten some great advice. I was suppose to have a colonoscopy and scope run to check my stomach and dilate my throat....

I have posted several times here and have gotten some great advice. I was suppos...

kimandken

•7 years ago

3 Replies

Advice re my 22 year old daughter's response to treatment

Hello, we live in the Caribbean. Our GP is wonderful, but at her own admission knows "nothing much about Pernicious Anaemia " other than a vague recollection...

Hello, we live in the Caribbean. Our GP is wonderful, but at her own admission k...

LovesLuna

•7 years ago

16 Replies

Visual Symptoms

Would anyone be kind enough to describe the visual symptoms they are having or have experienced and what if anything resolved them.

Would anyone be kind enough to describe the visual symptoms they are having or h...

Steap

•7 years ago

6 Replies

MTHFR - From the Horse's Mouth

Back in January 23andMe, the genetic testing company, wrote a blog post about the MTHFR gene. Their scientists had reviewed the available data and reached this...

Back in January 23andMe, the genetic testing company, wrote a blog post about th...

fbirder

•7 years ago

9 Replies

Si into thigh - ouch!

I did my 4th si last night into right thigh, it hurt more than usual especially after injection ( my leg ached really bad for approx an hour) and I have a nice...

I did my 4th si last night into right thigh, it hurt more than usual especially ...

SarahFerguson

•7 years ago

3 Replies

Kilmarnock Thyroid & B12d Support Group: next meeting Thursday 6 April 2017

The next meeting of our small, friendly informal group is on the above date from 7pm to 9pm. Please message me for the venue.

The next meeting of our small, friendly informal group is on the above date from...

SailingBy

•7 years ago

1 Reply

Worried that i can no longer exercise

Hi. Just found this site. I got diagnosed almost 2 years ago. i take injections at home every 3-4 weeks. I have been feeling pretty good but lately as i...

Hi. Just found this site. I got diagnosed almost 2 years ago. i take injection...

naolynam

•7 years ago

32 Replies

24hr MMA Urine Test Restrictions

Hello there, I've got to do a 24hr urine test to check my MMA levels which I ordered from Medichecks. The leaflet included with the kit didn't mention any...

Hello there, I've got to do a 24hr urine test to check my MMA levels which I or...

BartelbySamsa

•7 years ago

2 Replies

Which B12

Hello all I have Hashi's, Candida and gut bacterial overgrowth problems. When I had my 23andme test last year it came back that I was MTHFR etc., and my then...

Hello all I have Hashi's, Candida and gut bacterial overgrowth problems. When I...

Jefner

•7 years ago

44 Replies

Feel desperately unwell today

I wonder if anyone would be able to look at my blood results in my previous post please ? I know it is Sunday but I would be so grateful. I have to phone the...

I wonder if anyone would be able to look at my blood results in my previous post...

Jesswoozer1

•7 years ago

4 Replies

what next to ask from GP? feeling v ill (fainted doing 21st SI)...

hi all, Need to go back to GP but what do I ask him to do? am feeling low and weak - want to be up and busy and feeling lethargic, shakey, tingly and...

hi all, Need to go back to GP but what do I ask him to do? am feeling low and w...

Mashie44

•7 years ago

2 Replies

Obtaining B12

Many thanks to Wedgwood,Eaoz,Singoutloud and Steap for your help.I will pursue the routes you suggest.Has anyone told their G.P. That they are self injecting...

Many thanks to Wedgwood,Eaoz,Singoutloud and Steap for your help.I will pursue t...

Mrsannabbott

•7 years ago

7 Replies

Allergic reactions to Vit B12 injections

Hi. I have been having doctor prescribed vit B12.

Syuri

•7 years ago

10 Replies

Pregnancy advice

I am currently 25weeks pregnant after a couple of years of trying. I was diagnosed with PA about 10 years ago via part 1 and 2 of the schilling test. No...

I am currently 25weeks pregnant after a couple of years of trying. I was diagnos...

Murfie276

•7 years ago

1 Reply

Obtaining ampoules of B12

Please can anyone advise on an easy site to obtain ampoules of hydroxycobalamin.I am easily lost on the German sites.Is there an English one.? Grateful for...

Please can anyone advise on an easy site to obtain ampoules of hydroxycobalamin....

Mrsannabbott

•7 years ago

12 Replies

Vitamin B12 slightly low so is Folic Acid

Hi all,recently had blood tests done at neurologist and results came back that my B12 was 177 and Folic Acid 3.6.Got my first injection on Wednesday and...

Hi all,recently had blood tests done at neurologist and results came back that m...

sandra6937

•7 years ago

8 Replies

Yesterdays blood results- first since asking for serum B12

Yesterday I got my first blood results since starting this journey to try and help find the source of my health issues. The GP had refused IF antibodies . To...

Yesterday I got my first blood results since starting this journey to try and he...

Jesswoozer1

•7 years ago

7 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2017

Worsening symptoms on maintenance dose

Blood results

Burning Feet

Are these blood results normal as my doctor states?please help shed some light.

Need a fellow tired friend!

A new recruit???

Is Tinnitus related to B12 def?

Help with B12 and folate

Dr's visit as expected yesterday- he "doesn't believe" evidence I printed off for him :(

Fog Blues

Fed Up

confused about B12 levels

B12 to low

having a colonoscopy and a scope run into my stomach and dilation of my throat and have questions.

Advice re my 22 year old daughter's response to treatment

Visual Symptoms

MTHFR - From the Horse's Mouth

Si into thigh - ouch!

Kilmarnock Thyroid & B12d Support Group: next meeting Thursday 6 April 2017

Worried that i can no longer exercise

24hr MMA Urine Test Restrictions

Which B12

Feel desperately unwell today

what next to ask from GP? feeling v ill (fainted doing 21st SI)...

Obtaining B12

Allergic reactions to Vit B12 injections

Pregnancy advice

Obtaining ampoules of B12

Vitamin B12 slightly low so is Folic Acid

Yesterdays blood results- first since asking for serum B12

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