Fog Blues

Anyone found a way of helping with those 'fog' days or do you just have to sit them out?

Is there anything you can do/take to help?

thanks

(newbie) Keith

[clivealive Forum Support]

Do you have P.A. Hidden ? Do you feel more foggy in the run up to your next injection? What other symptoms do you have? What is the frequency of your injections?

Do you know what your Folate level is?

[Hidden in reply to clivealive]

Yep had it for about 8 years now clive, the fog is worse on the run up to my next injection, but I also get it from time to time after the injection and it tends to last a few days each time. I have a jab every 12 weeks, tried to get it at shorter periods but my Dr just doesn't have a clue about P.A. and says the guidelines says every 12 weeks and thats that. Not sure about my folate levels, although i've just today ordered some Methyl Folate (60 capsules ) , as I'm trying anything that will help.

Thanks for the reply.

[clivealive Forum Support in reply to Hidden]

If you have P.A. with neurological symptoms both the BNF and NICE guidelines are for injections every eight weeks and not twelve. Doctors tend to read down to the first paragraph and then stop. Here are the BNF guidelines

Treatment of cobalamin deficiency

"Current clinical practice within the U.K is to treat cobalamin deficiency with hydroxocobalamin in the intramuscular form outlined in the British National Formulary, BNF,

Standard initial therapy for patients without neurological involvement is 1000 μg intramuscularly (i.m.) three times a week for two weeks, then every three months.

The BNF advises that for Pernicious anaemia and other macrocytic anaemias patients presenting with neurological symptoms should receive 1000 μg i.m. on alternative days until there is no further improvement, then 1 mg every 2 months".

[Hidden in reply to clivealive]

I have told him of this, but he says once every 12 weeks is all I need. The surgery nurse, says all patients there are on the 12 week injection. (what can you do, other than change doctors or self inject?). To be fair, most of the time it works okay, it's just these fog episodes that happen now and then that I can't seem to fix. The pins and needles, tiredness etc is managable.

thanks for replying

[clivealive Forum Support in reply to Hidden]

Ask the doctor (and nurses) why they aren't following the N.I.C.E guidelines on the treatment for those with neurological symptoms as follows extracted from the N.I.C.E webpage:

Treatment for B12 deficiency

How should I treat a person with vitamin B12 deficiency anaemia?

For people with neurological involvement:

Seek urgent specialist advice from a haematologist.

Ideally, management should be guided by a specialist, but if specialist advice is not immediately available, consider the following:

Initially administer hydroxocobalamin 1 mg intramuscularly on alternate days until there is no further improvement, then administer hydroxocobalamin 1 mg intramuscularly every 2 months.

google.co.uk/url?sa=t&rct=j...

Click on the above and then click on "Scenario : Management" then scroll down to about half way.

It might also pay to ask about your iron and Folate levels as these work together with the B12