Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,443 members • 23,723 posts

All posts for March 2017

How Autoimmunity Changed My Practice of Medicine - Cynthia Li, M.D. (Dec 2016) - YouTube

A really helpful presentation, especially for those of us who also have Hashi's, by a doctor who really had to change her mindset from her traditional training...

A really helpful presentation, especially for those of us who also have Hashi's,...

Polaris

•7 years ago

1 Reply

Help with results

Could anyone advise me on my recent results. I eventually persuaded my gp to test my full vitamin levels after finishing a intensive Vit D course. I have...

Could anyone advise me on my recent results. I eventually persuaded my gp to te...

Nattii

•7 years ago

6 Replies

Injections replaced with tablets

Hi All, Just saw this on PAS website. https://pernicious-anaemia-society.org/pernicious-anaemia-society/here-we-go-again/ Link to article on Martyn Hooper's...

Hi All, Just saw this on PAS website. https://pernicious-anaemia-society.org/pe...

Sleepybunny

•7 years ago

3 Replies

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advice please (SI)

1st time I have done si and I bought micro-fine 1m 0,33mm ( 29G ) x 12,7mm needles is this ok and is it better for IM or SC thanks

1st time I have done si and I bought micro-fine 1m 0,33mm ( 29G ) x 12,7mm needl...

Lucieb01

•7 years ago

2 Replies

Low Folate and B12 injections

Hi everyone, ok need to check with others more knowledgeable than me... if flagged as low in folate, you need to get the folate up before injecting B12 as it...

Hi everyone, ok need to check with others more knowledgeable than me... if flagg...

Galadriel1

•7 years ago

8 Replies

B12 levels

Hi folks. To cut a long story short I finally managed to get my doctor to check my B12 level after experiencing quite a few symptoms e.g. dizziness, extreme...

Hi folks. To cut a long story short I finally managed to get my doctor to check...

Misaya

•7 years ago

13 Replies

Help with results please

I had an Iron panel done , I don't have all the results yet, but these are the first ones to come in and they are Chemistry Iron : Ferritin: 16.6 (15 -...

I had an Iron panel done , I don't have all the results yet, but these are the f...

HypoF3XXY

•7 years ago

5 Replies

Blood test results

Hello I was directed here by Thyroid UK I have an underactive thyroid and am on levothyroxine.......I got blood tests done by medichecks can someone tell me...

Hello I was directed here by Thyroid UK I have an underactive thyroid and am on ...

Pats

•7 years ago

2 Replies

It might sound silly but ...

Hi lovely people, I have a question please. If your intrinsic factor is not working and you have PA would it not still show up on tests even if you are having...

Hi lovely people, I have a question please. If your intrinsic factor is not work...

specialk16

•7 years ago

6 Replies

Injections over sublingual

Has anyone got any experience of starting injections even though they've gotten their serum and active b12 levels up using sublinguals? Is there a big...

Has anyone got any experience of starting injections even though they've gotten ...

Steap

•7 years ago

3 Replies

Folate or Folic Acid ?

Hi, Can anyone advise if it is best to supplement with Folate or folic Acid when receiving B12 injections monthly, my son was initially given a course of...

Hi, Can anyone advise if it is best to supplement with Folate or folic Acid when...

KMC21

•7 years ago

6 Replies

Self medicating b12 deficiency

I've recently spoke about private bloods showing I have a b12 deficiency along with a report from the doctor saying he advises intramuscular injections to...

I've recently spoke about private bloods showing I have a b12 deficiency along w...

Soph46

•7 years ago

2 Replies

Advice re next steps

Hi folks, I'm debating different courses of action following recent blood tests, and would very much appreciate your experienced input, if you can spare the...

Hi folks, I'm debating different courses of action following recent blood tests...

suzie_s

•7 years ago

4 Replies

Insomnia

Has anyone experienced insomnia after you corrected your b 12 deficiency. My number went from 168 to 454. Also vit d went from 15 to 45. The insomnia is the...

Has anyone experienced insomnia after you corrected your b 12 deficiency. My nu...

Sweetmama27

•7 years ago

2 Replies

B Vitamins may protect against air pollution

B vitamins may offer some protection against the impacts of air pollution, a small scale human trial suggests:...

B vitamins may offer some protection against the impacts of air pollution, a sm...

Polaris

•7 years ago

4 Replies

shortness of breath out of no where with other symptoms

i was cooking dinner one night and got shortness of breath out of no where and it was horrible for weeks and i still have it. i asked my dr to test me for b12...

i was cooking dinner one night and got shortness of breath out of no where and i...

kimmyy

•7 years ago

9 Replies

What should I tell GP

I have an under active thyroid and B12 deficiency (PA probable). I have just had a colonoscopy and gastro-endoscopy (what a social life I lead) colonoscopy all...

I have an under active thyroid and B12 deficiency (PA probable). I have just had...

Geordi

•7 years ago

9 Replies

Hallelujah

5 months to get to see a consultant and finally I speak to someone who knows about being b12 deficient. He confirmed I have b12 deficiency through...

5 months to get to see a consultant and finally I speak to someone who knows abo...

Steap

•7 years ago

24 Replies

5,000 mcg sublingual - is it safe to take such a high dose every day?

Hi, I have posted before, recently this year. I have neurological symptoms including burning mouth and peripheral neuropathy, brain fog, not sleeping etc. I...

Hi, I have posted before, recently this year. I have neurological symptoms inclu...

LynneG

•7 years ago

14 Replies

Which blood tests?

Can you please tell me which blood tests I should get to check for B12 deficiency, B12 absorption, and pernicious anemia? I'd like to take the list to my doc....

Can you please tell me which blood tests I should get to check for B12 deficienc...

missheid

•7 years ago

9 Replies

Flat as a biscuit and hair like Bon Jovi's Mum

Had a very tiring weekend, trying to be alright on the outside - and in the end, just trying to get home asap. All a bit disappointing, and meant I was tired,...

Had a very tiring weekend, trying to be alright on the outside - and in the end,...

Cherylclaire

Forum Support•7 years ago

2 Replies

Sososo angry with GP

Had appt with 18yr old son today (2nd option appt) gave him Haematology flow chart, pointed my sons symptoms Gastritis and low B12 serum of 174ng/l - asked for...

Had appt with 18yr old son today (2nd option appt) gave him Haematology flow cha...

SarahFerguson

•7 years ago

21 Replies

B12 dangerous???

Took my Autistic daughter with Pernicious Anemia to a NEW doctor yesterday. We live in the USA. The doctor is a specialist in Gastroenterology and immunology....

Took my Autistic daughter with Pernicious Anemia to a NEW doctor yesterday. We l...

Lorstor

•7 years ago

5 Replies

Newbie looking for advice

Hi I recently joined as I think many of my symptoms indicate PA - brain fog, headaches, pains in feet, tingling in hands and face etc. I have previously...

Hi I recently joined as I think many of my symptoms indicate PA - brain fog, hea...

nicolef

•7 years ago

11 Replies

Red itchy patches

Why have I suddenly developed red itchy patches on eye and face. I was diagnosed with PA several years ago and have been on B12 injections every six weeks for...

Why have I suddenly developed red itchy patches on eye and face. I was diagnosed...

Maadkins

•7 years ago

2 Replies

Help with bloods and symptoms

My husband has been feeling unwell for several years. Severe fatigue has been the main symptom, along with bad headaches. 18 months ago he started to suffer...

My husband has been feeling unwell for several years. Severe fatigue has been th...

Kruzgal

•7 years ago

1 Reply

Active B12 High result follow up test

Hi everyone! A quick follow up question to a post I'd written about active b12 testing: I got mine tested about 2 weeks ago and the result was high, 234 (range...

Hi everyone! A quick follow up question to a post I'd written about active b12 t...

Flowergirl29

•7 years ago

2 Replies

B12 treated but anemia no better

4 months ago I began B12 injections (methyl) for my B12 deficiency with macrocytic anemia. I've been feeling somewhat better, but not 100%. I got results back...

4 months ago I began B12 injections (methyl) for my B12 deficiency with macrocyt...

etreas

•7 years ago

14 Replies

New blog post on B12 deficiency Info website

Thought some of you might be interested. http://www.b12deficiency.info/blog/

Sleepybunny

•7 years ago

6 Replies

Thyroid UK Referred you To Me

Hi i was advised to post you the following results of a few of my bllod tests... Vitamin B12 Level ( XE2pf )....Results:..636 ng/L [ 190.0 - 660.0 ]....Normal...

Hi i was advised to post you the following results of a few of my bllod tests......

maypole66

•7 years ago

5 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2017

How Autoimmunity Changed My Practice of Medicine - Cynthia Li, M.D. (Dec 2016) - YouTube

Help with results

Injections replaced with tablets

advice please (SI)

Low Folate and B12 injections

B12 levels

Help with results please

Blood test results

It might sound silly but ...

Injections over sublingual

Folate or Folic Acid ?

Self medicating b12 deficiency

Advice re next steps

Insomnia

B Vitamins may protect against air pollution

shortness of breath out of no where with other symptoms

What should I tell GP

Hallelujah

5,000 mcg sublingual - is it safe to take such a high dose every day?

Which blood tests?

Flat as a biscuit and hair like Bon Jovi's Mum

Sososo angry with GP

B12 dangerous???

Newbie looking for advice

Red itchy patches

Help with bloods and symptoms

Active B12 High result follow up test

B12 treated but anemia no better

New blog post on B12 deficiency Info website

Thyroid UK Referred you To Me

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