What should I tell GP: I have an under... - Pernicious Anaemi...

Pernicious Anaemia Society

33,427 members24,604 posts

What should I tell GP

Geordi profile image
9 Replies

I have an under active thyroid and B12 deficiency (PA probable). I have just had a colonoscopy and gastro-endoscopy (what a social life I lead) colonoscopy all clear still waiting for biopsy results on endoscopy. I have monthly B12 injections and take a selection of other pills.

Just lately I have notice little red/crimson spots on my skin in large patches but lots of little spots, should I mention these?

Also my knees are killing me along with pains in my finger and thumb joints, do I add this to the list?

And, my pelvis (the blade bits that stick out) hurt is this something else to mention?

I am so sick of feeling sick, not sure if I am just paranoid about everything now, oh and I almost forgot I have got big lumps come up on my ankles (where the knobbly bits are) they feel soft and squashy but are now painful when I wear boots.

All advice and comments appreciated, thanks guys

Written by
Geordi profile image
Geordi
To view profiles and participate in discussions please or .
Read more about...
9 Replies

Hi! Geordi, the small red dots could be petechiae, little tiny haemorrhages. They have various causes, I have them extensively over my body.

"Certain nutrients will increase platelet count and help decrease inflammation, including vitamin C, vitamin K, vitamin D, folate, and vitamin B9. A multi-vitamin high in these vitamins plus vitamin B12 can also help prevent vitamin deficiencies associated with petechiae. Vitamin C and quercetin can also help with root causes of petechiae such as rheumatoid arthritis or an allergic reaction."

doctorshealthpress.com/skin...

catherinejordan profile image
catherinejordan

Have you been told you have a vitD deficiency? That causes joints to hurt I have pains especially I knees shins thumbs and fingers.

I'm b12 deficient. Also low iron I tale ferrous sulphate. I take vitD once daily.

All on prescription.

I self inject B12 and have one every 12 weeks at the surgery. Ironically my foliate is high which even the doctor can't understand so I don't take foliate.

Geordi profile image
Geordi in reply tocatherinejordan

I have Vit D along with my B12, take it daily so should not be deficient, someone mentioned possibly rheumatoid arthritis as I have other auto immune conditions, oh the joy of it all

catherinejordan profile image
catherinejordan in reply toGeordi

I don't know if you know but take vitD in the morning as it keeps you awake.

Hope you feel better soon .

Geordi profile image
Geordi in reply tocatherinejordan

Thank you, I do take it in the morning I joke that all my pills are my breakfast 😏

judburke profile image
judburke

Why have they done an endoscopy? Do they suspect that you might have Coeliac or a problem with absorbing vitamins and nutrients?

If you are low in Iron/ferritin this will give you symptoms of muscle aches and tiredness and low D3 will give you symptoms of joint aches

Geordi profile image
Geordi in reply tojudburke

Think they are just testing for everything I have lost over 7kg in 3 months and I have an under active thyroid so weight loss is not common

judburke profile image
judburke in reply toGeordi

Lets hope that they work out what is going on soon :)

Sadly its common for us with underactive thyroids to have more than one auto-immune condition. My bonus is coeliac - for some people this can cause weight loss

Good luck getting your answers :)

Ryaan profile image
Ryaan

B12 helps a lot together with Folic acid. The pain can be very bad with low vit D.

These 3 things you definitely need to take which do make a HUGE difference.

I suppose you also take something for your hypothyroidism, and some of the tablets have nasty side effects.(Read the leaflet if you haven't).

Could make a difference if you change tablets depending on how long you been on them.

Keep taking the B12, folate and vit D as that should make a significant difference.

You can talk to whoever deals with your Thyroid about the side effects or changing them to see if that helps.

Wish you well.

Not what you're looking for?

You may also like...

Does endoscopy replace colonoscopy?

Hello beautiful PA fam, I wanted to know if any of you guys with PA also have gastritis from it...
25092 profile image

Autoimmune gastritis due to PA

Hey all, I was diagnosed with PA over a year ago due to a general check-up and got a full blood...
GraceDelaney profile image

Unsure what to do next

I've been diagnosed with folate deficiency and iron deficiency anemia since 2019 despite oral...
EllieMck profile image

Gastrology appointment

Had endoscopy and colonoscopy today, results were diverticular disease and hiatus hernia. Does...
HeidiO profile image

What should I do please?

I had a gastric bypass 7 years ago. A routine blood test showed my B12 level was 195. The GP said,...
Moutie profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.