Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,441 members • 23,719 posts

All posts for March 2017

Reference for Methylcobalamin?

I am seeing the neurologist next week and hoping to persuade him to let me try methylcobalamin rather than cyanocobalamin for a while. I am in the US, and it...

I am seeing the neurologist next week and hoping to persuade him to let me try m...

Holnee

•7 years ago

5 Replies

I want further blood tests, but will my self injecting affect results ?

Hi, Hoping one or two of our more informed can advise. I would like blood tests on following :- Serum Folate / Potassium / Ferritin / Homocysteine / MMA, as...

Hi, Hoping one or two of our more informed can advise. I would like blood tests...

Barry1955

•7 years ago

1 Reply

Does red bull affect b12 blood tests?

My brother has just had his b12 blood test done but he had been drinking red bull all week will this effect the results? 237 pg/ml was his result. Many......

My brother has just had his b12 blood test done but he had been drinking red bul...

specialk16

•7 years ago

5 Replies

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PA and low Folate

I have PA diagnosed. Levels currently in 800s just befor injection due. I have these every 8 weeks. Following tests for fatigue my Folate was found ti be 2.8...

I have PA diagnosed. Levels currently in 800s just befor injection due. I have t...

lesley12

•7 years ago

12 Replies

Non PA b12 deficiency causes

Is anyone on here trying to find out the cause of their b12 deficiency after testing negative for antibodies. I had a lot of antibiotics back in 2008 after...

Is anyone on here trying to find out the cause of their b12 deficiency after tes...

Steap

•7 years ago

23 Replies

Do I have Pernicious Anaemia?

Hi. In 2013 I was told I had a positive antibody test for anti gastric parietal cell ABs and also had a B12 of 317pg/mL. I have many symptoms, initially...

Hi. In 2013 I was told I had a positive antibody test for anti gastric parietal ...

Nunezhall

•7 years ago

12 Replies

3 Months on

After my last B12 injection i have just noticed pins and needles returned at night for 2 weeks now to both arms and numbness in hands 9 weeks into the 3 month...

After my last B12 injection i have just noticed pins and needles returned at nig...

Advice1

•7 years ago

6 Replies

Can you have b12 deficiency with low normal mcv,mch and mchc?

I have slightly elevated tsh and severe vit d deficiency. I asked the Dr to test for b12 as well and he said it was unlikely because of the above. I'm very...

I have slightly elevated tsh and severe vit d deficiency. I asked the Dr to tes...

banshishi

•7 years ago

10 Replies

Will taking B12 supplements influence Pernicious Anaemia blood tests?

Hi there, I recently had a blood test done which came back with the following result: VITAMIN B12: 186 pmol/L 140.00 - 724.00 Which a number of...

Hi there, I recently had a blood test done which came back with the following re...

BartelbySamsa

•7 years ago

2 Replies

Waiting for Results - MMA & Homocysteine - how long from taking blood to getting results (approx), pls?

I had bloods taken last Friday, 17 Mar 2017, to include MMA and Homocysteine levels. The FBC has been reported already but I was wondering how long the MMA...

I had bloods taken last Friday, 17 Mar 2017, to include MMA and Homocysteine lev...

JMN2017

•7 years ago

5 Replies

Folate upper limit

Is there an acceptable upper limit for folate? My most recent result just says >24 ng/ml on the letter but a previous test result has the range at 3.3/99999.0...

Is there an acceptable upper limit for folate? My most recent result just says >...

Steap

•7 years ago

2 Replies

Increased depression after B12 jab

I get 1 injection a week as loading dose for 10 weeks (Dutch guidelines) and yesterday was my fifth injection. I notice that the day of my injection and the...

I get 1 injection a week as loading dose for 10 weeks (Dutch guidelines) and yes...

Laura221

•7 years ago

6 Replies

What about NeuriVibran?

Can anyone tell me if they have used this during the grey time before the injections? I am new to this site but not to PA and am fed up feeling like nothing...

Can anyone tell me if they have used this during the grey time before the inject...

rosiered66

•7 years ago

6 Replies

Traveling with b12

I am traveling to the UK from the US in a couple of weeks (for the first time). I need to take my b12. I have a multi-dose vial. Is it okay to load the b12...

I am traveling to the UK from the US in a couple of weeks (for the first time)....

pslmt

•7 years ago

3 Replies

Coloured circles around smilie next to user name???

Simple question, I hope. Would someone explain the significance of the coloured circles around the smilie next to user names, please? ;) I just can't work...

Simple question, I hope. Would someone explain the significance of the coloured...

JMN2017

•7 years ago

20 Replies

New BSH guidelines vs NICE guidelines

I went back to my GP today with the new guidelines from the PA Society. She said she'd never heard of them and anyway they follow the NICE guidelines. She did...

I went back to my GP today with the new guidelines from the PA Society. She said...

AmyG6500

•7 years ago

16 Replies

Low to high b12 and slightly but consistently low WBC?

I feel like a bit of a fraud as this question doesn't perfectly match, but this is the closest match. I've had extremely low ferritin and fairly low blood...

I feel like a bit of a fraud as this question doesn't perfectly match, but this ...

as2472

•7 years ago

2 Replies

VERY scared of imminent decrease in B12 injections: what to do now?

Aside from my 2 injections a week, nothing seemed to be happening: reasons why I've got functional deficiency, what can be done etc. so I sent my GP a list of...

Aside from my 2 injections a week, nothing seemed to be happening: reasons why I...

Cherylclaire

Forum Support•7 years ago

3 Replies

Blood test results.

Hi. I have been advised to come over here from the thyroid forum to show my results from Medichecks. Along with my thyroid results they checked my B12,...

Hi. I have been advised to come over here from the thyroid forum to show my res...

v6mikey1

•7 years ago

9 Replies

MMA & B12 Results

I requested a MMA test & B12 test from the private sector. Results are --- Vitamin B12 490ng/L (197 - 771) Folate 11,8 ngmL >3.0 Methylmalonic...

I requested a MMA test & B12 test from the private sector. Results are --- Vit...

GromitSJ

•7 years ago

5 Replies

New here and needing help understanding results please

I am 42 and have been Hypothyroid for over 20 years, diagnosed with hashimotos last year and have primary hyperparathyroidism awaiting tumour op. Just found...

I am 42 and have been Hypothyroid for over 20 years, diagnosed with hashimotos l...

H0n3yR0s13

•7 years ago

6 Replies

Autoimmune protocol diet

I am a pernicious anaemia sufferer (since the age of 21...I'm now 39) and have been on the autoimmune protocol diet for just over a week now. This diet is a...

I am a pernicious anaemia sufferer (since the age of 21...I'm now 39) and have b...

Lunaflute

•7 years ago

10 Replies

Help with understanding serum folate test result please?

Hi i have pernicious anemia and Hashimoto's and am being treated for both on the NHS. I also take extra b12 injections with the guidance of a private GP...

Hi i have pernicious anemia and Hashimoto's and am being treated for both on the...

Agapanthus1

•7 years ago

7 Replies

Time between taking Levothyroxine and B12 sublinguals

I take my levothyroxine at least an hour before breakfast, sometimes in the early hours of the morning if I wake up. Whats's the best time to take B12...

I take my levothyroxine at least an hour before breakfast, sometimes in the earl...

carer999

•7 years ago

2 Replies

Do you need more B12 when you exercise?

I have had my best two months in the last 15 months and have started to do some exercise. The last few days I have been feeling more generally tired after...

I have had my best two months in the last 15 months and have started to do some...

carer999

•7 years ago

4 Replies

Deficiency and dreams

Years ago, before I developed symptoms of P.A. I was aware of dreaming and often remembered them clearly when I awoke. Over time, I gradually remembered less...

Years ago, before I developed symptoms of P.A. I was aware of dreaming and often...

topazrat

•7 years ago

7 Replies

Advice needed

Hi all, I am new to PA society but was directed here from thyroid UK due to the results of a recent private blood test. I've been having symptoms for the past...

Hi all, I am new to PA society but was directed here from thyroid UK due to the...

mc_neary87

•7 years ago

6 Replies

MTHFR and maths. Adding a dose of realism.

Many people post saying they have a mutation in the MTHFR enzyme and suggest that this is to blame for their problems. So I did a bit of thinking. First off -...

Many people post saying they have a mutation in the MTHFR enzyme and suggest tha...

fbirder

•7 years ago

2 Replies

getting tested for PA with NHS

Hi, I have posted one post before but had not got any recent replies so thought I would post again as I am getting very stressed and confused. I have been...

Hi, I have posted one post before but had not got any recent replies so thought ...

Cn13

•7 years ago

15 Replies

Letter from the hospital & Low ESR

Well my letter came from the hospital and its advising a trial of b12 injections over 6 months at one every three months with no mention of loading doses. I...

Well my letter came from the hospital and its advising a trial of b12 injections...

Steap

•7 years ago

6 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2017

Reference for Methylcobalamin?

I want further blood tests, but will my self injecting affect results ?

Does red bull affect b12 blood tests?

PA and low Folate

Non PA b12 deficiency causes

Do I have Pernicious Anaemia?

3 Months on

Can you have b12 deficiency with low normal mcv,mch and mchc?

Will taking B12 supplements influence Pernicious Anaemia blood tests?

Waiting for Results - MMA & Homocysteine - how long from taking blood to getting results (approx), pls?

Folate upper limit

Increased depression after B12 jab

What about NeuriVibran?

Traveling with b12

Coloured circles around smilie next to user name???

New BSH guidelines vs NICE guidelines

Low to high b12 and slightly but consistently low WBC?

VERY scared of imminent decrease in B12 injections: what to do now?

Blood test results.

MMA & B12 Results

New here and needing help understanding results please

Autoimmune protocol diet

Help with understanding serum folate test result please?

Time between taking Levothyroxine and B12 sublinguals

Do you need more B12 when you exercise?

Deficiency and dreams

Advice needed

MTHFR and maths. Adding a dose of realism.

getting tested for PA with NHS

Letter from the hospital & Low ESR

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