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Pernicious Anaemia Society

32,089 members • 23,234 posts

All posts for March 2017

Been back to the GP but was shot down in flames again. At my wits end

I had private bloods done which came back low in: vit D: 21 vit B12: 202 serum folate:5.76 Went to see my GP with the results and was ridiculed for paying for...

I had private bloods done which came back low in: vit D: 21 vit B12: 202 serum f...

•7 years ago

Pernicious anemia b12 and vitamin d deficiency

Hi I was diagnosed with pernicious anemia aged 25 I'm now 28 I have b12 injections every 3 months and do not feel any different after haveing them! I'm always...

Hi I was diagnosed with pernicious anemia aged 25 I'm now 28 I have b12 injectio...

•7 years ago

B 12 deficiency

Just had routine bloodwork & my B12 was 63. Dr. told me to take sublingual supplements. Is 5000 mcg too much? Also, I have been on 40 mg of Nexium for...

Just had routine bloodwork & my B12 was 63. Dr. told me to take sublingual supp...

•7 years ago

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All. Please can we draw your attention to the following terms and conditions re...

Administrator•7 years ago

15 year old drop in b12

Evening all! I finally got my 15 year old to agree to do a blood test as i have Hashimotos and she's fatigued with low mood. Popped over from thyroid forum as...

Evening all! I finally got my 15 year old to agree to do a blood test as i have ...

•7 years ago

Buying B12 injections and needles - advice please

Hi folks, I would be really grateful if I could get some advice regarding the purchase of hydro or methyl ampules. I would also like some advice about the...

Hi folks, I would be really grateful if I could get some advice regarding the pu...

•7 years ago

Homocysteine result just in - opinions please

Hi, the Hommocysteine result has come in (has taken a week) but still waiting on MMA result which will likely take several weeks. Previous tests - Folate...

Hi, the Hommocysteine result has come in (has taken a week) but still waiting ...

•7 years ago

Return of symptoms

Hi All I've just had my third booster jab and I have noticed that soon after I tend to get my symptoms back. Is this usual and if so does anyone know why?...

Hi All I've just had my third booster jab and I have noticed that soon after I t...

•7 years ago

Preparing for GP appointment help please

Hi Everyone, I'm so glad I've joined this site as I've had great support so far. Following on from my last post I want to make sure I'm fully prepared for my...

Hi Everyone, I'm so glad I've joined this site as I've had great support so far....

•7 years ago

Results from private blood tests

Hi everyone, I went to St Thomas' hospital for an active B12,MMA, Folate and Homocysteine tests to try and get an definitive answer, these are the results....

Hi everyone, I went to St Thomas' hospital for an active B12,MMA, Folate and Hom...

•7 years ago

PA calf cramps

HI I have PA and wanted to know if anyone else suffers with calf cramps? Since diagnosed It has been much better but I occasionally get them and they are...

HI I have PA and wanted to know if anyone else suffers with calf cramps? Since d...

•7 years ago

Low Vit b12 and Ferritin. Possibly PA?

Good afternoon. Could anyone give me feedback around the following test results please? I am due to see my gp about them next week. Serum vit b12 was 148 ng/L...

Good afternoon. Could anyone give me feedback around the following test results ...

•7 years ago

Anaphylactic shock to B12 injection

Hi, I was diagnosed with PA about a year ago. I had the initial loading dose of 6 injections of B12 in 2 weeks and then continued with regular injections. I...

Hi, I was diagnosed with PA about a year ago. I had the initial loading dose o...

•7 years ago

Blog post about oral B12 treatment

Bit depressing but thought you might be interested in latest blog post on Martyn Hooper's blog....

Bit depressing but thought you might be interested in latest blog post on Martyn...

•7 years ago

Please can I have some advice - as I am struggling with the health professionals

Sorry a very long story, about a year ago I noticed that my left hand was shaking but I just ignored it, then I started getting memory loss and would not...

Sorry a very long story, about a year ago I noticed that my left hand was shakin...

•7 years ago

update on tests.

Evening all, Just after a little advice really and give a bit of an update. My last post mentioned I was to have homocysteine and MMA tests as well as my...

Evening all, Just after a little advice really and give a bit of an update. My...

•7 years ago

Not enough B12

How do I get my GP practise to give me my jabs more often?

How do I get my GP practise to give me my jabs more often?

•7 years ago

Best test for determining B12 deficiency/PA?

Hi there everyone I'm finding it difficult to get B12 deficiency as investigated by my GP, here's my recent serum tests results: VITAMIN B12: 186 pmol/L...

Hi there everyone I'm finding it difficult to get B12 deficiency as investigated...

•7 years ago

Finally things are moving forward...

I have just been to see the Haematologist today re: iron-avidity/Haemochromatosis and PA. I am in a situation with my Haemo that the recommended treatment...

I have just been to see the Haematologist today re: iron-avidity/Haemochromatosi...

•7 years ago

Finger and toe nails (mostly finger)

I was diagnosed with PA this past summer. I get my shots when I need them (varies between 3-5 weeks), I pushed it last time and waited 7 weeks....What a...

I was diagnosed with PA this past summer. I get my shots when I need them (varie...

•7 years ago

Low iron

Hi all, I was diagnosed with PA about 8 months ago. I'm having injections but feel no better and now have very wiered feeling in my head and regular headaches....

Hi all, I was diagnosed with PA about 8 months ago. I'm having injections but fe...

•7 years ago

Am I low in vitamins?

Hi, Having had private blood tests back from Blue Horizon for my thyroid (I've been diagnosed as hyperthyroid for the last 16 years and have been suffering...

Hi, Having had private blood tests back from Blue Horizon for my thyroid (I've ...

•7 years ago

pain sleep

Well looks like another night of pain and no sleep even with pain killers .Feels like my hole body is inflamed no matter which way i lie it's so sore...

Well looks like another night of pain and no sleep even with pain killers .Feels...

•7 years ago

Confused.

I'm new here, just trying to understand things. A little history on me. I was diagnosed with thyroid cancer (hurthle cell) in 2008 at 22 years old. Recently I...

I'm new here, just trying to understand things. A little history on me. I was di...

•7 years ago

B12 injections for pernicious anemia, only every 3 months

Can I take my b12 injection under my tongue as drops if I feel I need it as I only get it once every 3 months which I don't think is enough

Can I take my b12 injection under my tongue as drops if I feel I need it as I on...

•7 years ago

High Ferritin level

What does High levels of ferritin mean? I have a high Ferritin level of 192.1 the range is 20-150 for women. Has anyone else got this and any idea of how they...

What does High levels of ferritin mean? I have a high Ferritin level of 192.1 t...

•7 years ago

Daughters blood test show very low B12 & Folate

Hi guys New here but sent over from the Thyroid UK group.Had private blood tests done for my 16 year old daughter to check thyroid function etc.Tests have...

Hi guys New here but sent over from the Thyroid UK group.Had private blood tests...

•7 years ago

Enlarged right ventricle HELP

I'm 16 and I was taken to A&E on Monday with shortness of breath and chest pain, i had an ECG done and it was normal just slightly fast so i had an...

I'm 16 and I was taken to A&E on Monday with shortness of breath and chest pain,...

•7 years ago

Folic Acid 3

Hi can you please tell me if I have a deficiency in folic acid does that mean I have Pernicious Anaemia? I have Hashimotos hypothyroidism. The Dr has given me...

Hi can you please tell me if I have a deficiency in folic acid does that mean I ...

•7 years ago

Please help! fighting a losing battle with my GP and sick of being sick

I had private bloods done and they came back, deficient in vit D insufficient vit B12 and low folate . I went to my GP who was fuming that I'd had private...

I had private bloods done and they came back, deficient in vit D insufficient vi...

•7 years ago

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