Aside from my 2 injections a week, nothing seemed to be happening: reasons why I've got functional deficiency, what can be done etc. so I sent my GP a list of questions, symptoms frequency charts from August onward, and a symptoms list noting where any improvements have been made.....
Saw her this morning: she suggested that this was bordering on the obsessive- which I might have agreed with and told her this was most likely another symptom (!), but I didn't: I called it "desperation" . Anti-depressants got mentioned again (not by me, depression being just one of my many mood-swings and not the most frequent). She does not think that she can justify 2 injections a week with little improvement, and so is bringing them down to 1 a month after my rotator cuff operation (March 29th). Said in a court of law, she could not make a case for this frequency.
I was trying to make the case, using my latest symptoms chart, for more not less: now VERY SCARED.
I told her that I was frightened of getting worse again and that it might be permanent this time. She said that since I have been having 2 a week since October last year, with little improvement.... I asked her if this is all the improvement I can hope for: she said she thought that I was pinning all my problems on B12 deficiency and thinks I have other health issues. I asked her what they were, and she said she did not know, which is why she is sending me to St Thomas' haematologist. She does not, for instance, see my hip pain or diarrhoea, as symptoms. These have been constant since I first went 2 years ago.
What to do now? Part of me says stop this and start SI, another part of me (the obsessive part?) wants to go on to once-a-month so that the haematologist (and Guy's neurologist in May) see me at my worst ! That's weird: yes or no?