Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for January 2017

Blood Test Results & Advice for Further Testing

Hi My first post so hello everyone. I have over the years had a number of blood tests carried out (for Thyroid function/Celiacs Disease etc) some privately and...

Hi My first post so hello everyone. I have over the years had a number of blood ...

Wellr

•8 years ago

6 Replies

Active B12 test - again

Went for my GP app last night. To be fair she was very nice, listened to me and spent over half hr with me. She is writing a referral note for Active B12...

Went for my GP app last night. To be fair she was very nice, listened to me and...

LynneG

•8 years ago

7 Replies

Getting the needle!

I have a blog and wrote this poem for it and thought that you might all like it (I hope) It's official! I've got something new, Yet another disease, I'm...

I have a blog and wrote this poem for it and thought that you might all like it ...

topazrat

•8 years ago

9 Replies

Want to take advantage of all our features? Just log in!

Has anybody used Pulse Health Screening for private blood test? Huge price difference from blue horizon.

Hi, I've been looking at private intrinsic factor antibodies tests as I'm due to start B12 injections on 27th jan and can't get tested through my GP until...

Hi, I've been looking at private intrinsic factor antibodies tests as I'm due to...

Salphy

•8 years ago

7 Replies

Why does this happen ?

aaaaargh!. every so often I get a half moon bubble at the bottom of the syringe that just will not shift. Now, I know from previous posts that a small amount...

aaaaargh!. every so often I get a half moon bubble at the bottom of the syringe ...

Justified

•8 years ago

6 Replies

Good news!

just thought I'd share my good news with you - my GP has agreed to increase my injections to every 8 weeks instead of every 12 weeks- yeah!!!!

just thought I'd share my good news with you - my GP has agreed to increase my i...

Callo56

•8 years ago

6 Replies

Cause for Concern?

I have been self injecting for quite a while now without any problems. However this morning,in my brain fog, I forgot to remove the air from the syringe. I...

I have been self injecting for quite a while now without any problems. However t...

bjhealing51

•8 years ago

2 Replies

Just Got My First Shot

Hello. I've been experiencing mental problems for years before I found out I may have this disease. Through a stroke of luck, I found out that I had a b12...

Hello. I've been experiencing mental problems for years before I found out I may...

Lakme_

•8 years ago

4 Replies

Blood test results-advice please

Hi im still feeling exhausted, seeing occasional 'spots' in eyes only for a few seconds and not floaters as had eyes checked and feel nausious sometimes and...

Hi im still feeling exhausted, seeing occasional 'spots' in eyes only for a few ...

Springbabyboo

•8 years ago

9 Replies

neurologist pah!

I am spitting feathers with rage - I need you all to sooth me down. Saw the neurologist again today 'you have severe peripheral neuropathy - you must find...

I am spitting feathers with rage - I need you all to sooth me down. Saw the neu...

jillc39

•8 years ago

27 Replies

Appoinment with gastroenteritis

Hi I've not written on this site for a while because I've been managing well with weekly self administered B12 injections . I feel I've been improving slowly...

Hi I've not written on this site for a while because I've been managing well wit...

Kapat1

•8 years ago

6 Replies

Avtive Vitamin B12 test

Can anyone tell me how long before the test must you stop vitamin B supplement? I am suffering nerve damage. Burning mouth, lips, tongue, fingers on fire....

Can anyone tell me how long before the test must you stop vitamin B supplement? ...

LynneG

•8 years ago

4 Replies

Eyes burning on sublingual methyl b12?

Over the last few days I've definitely felt a bit worse. I've had a few of my earlier symptoms return where I've been more fatigued, anxious and noise bothers...

Over the last few days I've definitely felt a bit worse. I've had a few of my ea...

Steap

•8 years ago

8 Replies

advice please?.

I'm doing alternate day injections and starting to get pins and needles in my feet..could this be low potassium as I read the files and it wasn't listed as a...

I'm doing alternate day injections and starting to get pins and needles in my fe...

blondie2505

•8 years ago

4 Replies

Introducing and asking for advice

Hi all, I have been reading posts for a few weeks now after finding the society and thought I should introduce myself (It’s going to be a long one so thank you...

Hi all, I have been reading posts for a few weeks now after finding the society ...

Bowtruckle

•8 years ago

4 Replies

Help and Guidance with blood tests results

Hi everyone, Need some help and advice before I see my GP on 12 January. These are the results: Serum tissue transglutaminase level (Xalbn) : 0.6 ku/L (0.0 -...

Hi everyone, Need some help and advice before I see my GP on 12 January. These a...

JGBH

•8 years ago

10 Replies

Blood Results

Was wondering if someone has similar issues. My iron is at 9 which is high now use to be 2-4 mvc is 68 which is higher than normal at 52 being normal my...

Was wondering if someone has similar issues. My iron is at 9 which is high now u...

Patricia333

•8 years ago

3 Replies

Start b12 and folic acid now or wait for PA test?

Hi, I've been to see my new gp today and taken my latest blue horizon results with me: TSH: 4.77 (0.27-4.2) H T4 Total: 77.2 (64.5-142) FT4 12.57 (12-22)...

Hi, I've been to see my new gp today and taken my latest blue horizon results wi...

Salphy

•8 years ago

6 Replies

What should I ask for?

I will try to keep this short! I was diagnosed with B12 deficiency in March 2016, had 6 loading doses (which worked fantastically for five weeks), begged my...

I will try to keep this short! I was diagnosed with B12 deficiency in March 2016...

Jennie16

•8 years ago

6 Replies

Relationship with a PA sufferer

Hi all, I'm in a new relationship with a PA sufferer, at rhetoric beginning it felt like she was pushing me away but now reading about her PA it seems...

Hi all, I'm in a new relationship with a PA sufferer, at rhetoric beginning it f...

Tonuptune_

•8 years ago

3 Replies

new blood results

could I have your thoughts on results please haemoglobin 128 (range 120-160) mcv 88 (range 81-98) b12 203(range140-250) b12 active 100.8(range25.1-165) folate...

could I have your thoughts on results please haemoglobin 128 (range 120-160) mcv...

Lucieb01

•8 years ago

1 Reply

Desperately needing advice on Blood test results

Hello. I really hope someone can help!.. 4 weeks ago I started B12 loading, but today I saw a different GP who told me the first doctor was wrong in diagnosing...

Hello. I really hope someone can help!.. 4 weeks ago I started B12 loading, but ...

Morayshasha

•8 years ago

11 Replies

No-one Understands

Had my occupational health appointment yesterday, plus a doctor's appointment, and had my second injection this morning. I find no-one seems to understand what...

Had my occupational health appointment yesterday, plus a doctor's appointment, a...

Moosey

•8 years ago

5 Replies

Help !!

Hi all !my lovely friend is feeling wretched here are her blood results Many thanks Clutter for your reply and suggestions !would be interested to hear what...

Hi all !my lovely friend is feeling wretched here are her blood results Many th...

03081963

•8 years ago

4 Replies

Vitamin D - is a supplement needed and how might I take it?

Hi everyone, I am making progress but have more qs as I go along. Having been shown how to inject I aim to follow the BMF/NICE guidelines ie every two days...

Hi everyone, I am making progress but have more qs as I go along. Having been s...

Mashie44

•8 years ago

6 Replies

My brother is no better 😔M.S and/or PA

I have been injecting my brother for months now with Methylcobalamin and he is no better in his mobility or health and very downhearted. We are Injecting at...

I have been injecting my brother for months now with Methylcobalamin and he is n...

Marymary7

•8 years ago

25 Replies

Wired and tired

Just a random musing, feel free to ignore. These contradictory feelings in the 24/48 hours or so after having a B12 jab feel so odd after decades of being in a...

Just a random musing, feel free to ignore. These contradictory feelings in the 2...

topazrat

•8 years ago

4 Replies

How do you treat B12 deficiency with cobalt allergy?

Hi everyone I was diagnosed with B12 deficiency (167) and after 2nd loading dose developed acne type rash which worsened after the third, so GP stopped...

Hi everyone I was diagnosed with B12 deficiency (167) and after 2nd loading dos...

Sharon75

•8 years ago

20 Replies

Plantar fascitis

Has anyone found B12 improved their PF? I can't find any studies relating the two, but mine seems to have improved since I started using patches... could be...

Has anyone found B12 improved their PF? I can't find any studies relating the tw...

Hidden

•8 years ago

7 Replies

Blood tests after supplementing B12?

I have been supplementing with Jarrow 5000 mcg Methylcobalamin plus Thorne Research's B complex for nearly a year now and noticed a marked improvement in my...

I have been supplementing with Jarrow 5000 mcg Methylcobalamin plus Thorne Resea...

seamail57

•8 years ago

10 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2017

Blood Test Results & Advice for Further Testing

Active B12 test - again

Getting the needle!

Has anybody used Pulse Health Screening for private blood test? Huge price difference from blue horizon.

Why does this happen ?

Good news!

Cause for Concern?

Just Got My First Shot

Blood test results-advice please

neurologist pah!

Appoinment with gastroenteritis

Avtive Vitamin B12 test

Eyes burning on sublingual methyl b12?

advice please?.

Introducing and asking for advice

Help and Guidance with blood tests results

Blood Results

Start b12 and folic acid now or wait for PA test?

What should I ask for?

Relationship with a PA sufferer

new blood results

Desperately needing advice on Blood test results

No-one Understands

Help !!

Vitamin D - is a supplement needed and how might I take it?

My brother is no better 😔M.S and/or PA

Wired and tired

How do you treat B12 deficiency with cobalt allergy?

Plantar fascitis

Blood tests after supplementing B12?

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