Can anyone tell me how long before the test must you stop vitamin B supplement? I am suffering nerve damage. Burning mouth, lips, tongue, fingers on fire. night time really bad and pain wakes me up at about 3am spreads up legs and down arms. So I in panic started dosing with B vits. Had taken B vits before to raise my B12 level from 191 a few years ago and so with supplementation over the years have got my total B12 blood test level up to 550 6 months ago - stopped supplements and recent test shows 400. Then suddenly hit with this nerve damage indication over the last 10 days.
I am going to have to have a private active B12 test as GP says my levels are fine.
Even tho current NICE guidelines are treat if have symptoms irrespective of serum levels. I asked for a B12 injection just to see if symptoms then start to subside. According to the PAS society B12 is harmless and costs 56p. I hope the active test will highlight if symptoms are B12 deficiency. If it is not B12 I suppose it will ten be autoimmune attack on my myelin? I have high ferritin but bordering on anaemia with v low transferrin saturation at 18% and my TSH has risen to 3 so wondering if thyroid/iron symptoms - all connected?
But first I need an active B12 test and want it to be relevant, not be skewed by recent supplementation. Any advice would be really appreciated. I have managed to get a GP appointment this evening and wonder whether I should print out te guidelines and take with me? Any advice, I would really appreciate