Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for November 2016

need help please

Hi All well the GP wouldn't accept the private blood results CRP 7.4 (normal 5) VIT D 12 ( deficient below 25) VIT B12 134 (deficient below 140) So He did...

Hi All well the GP wouldn't accept the private blood results CRP 7.4 (normal 5) ...

mully

•8 years ago

11 Replies

Feeling like s--t!! Bad heartburn, no energy etc.

Good Evening everyone, haven't been on here for a while. 😐 my health has gone downhill but on a positive my granddaughter was born on my birthday , little...

Good Evening everyone, haven't been on here for a while. 😐 my health has gone d...

Bentleyboo

•8 years ago

3 Replies

Autoimmune Disease

Not much time to watch this very relevant episode 4 in the ' Betrayal' series:...

Not much time to watch this very relevant episode 4 in the ' Betrayal' series:....

Polaris

•8 years ago

Be the first to reply

Want to take advantage of all our features? Just log in!

Pa snps

Anyone know the specific snps that cause pa? In particular the rs numbers.

Jeast

•8 years ago

10 Replies

Great visit with GP at new surgery! Thankyou all for the great advice, I feel like I've hit the jackpot.

Thank you all for your help and advice. You taught me enough to get b12 jabs not only for the 6 loading jabs over 2 weeks but 1 jab daily until no further...

Thank you all for your help and advice. You taught me enough to get b12 jabs not...

miglet54

•8 years ago

5 Replies

Advice on blood tests please

Hi As a result of private blood tests showing I was b12 deficient L119(<140), low serum folate L8.91(10.4-42.4) and high ferritin 269.3(30-150)., my doctor...

Hi As a result of private blood tests showing I was b12 deficient L119(<140), lo...

Ali8655

•8 years ago

7 Replies

Are you suffering from FDD?

With the rise of the Interwebs FDD is becoming more and more common. Fad Diagnosis Disorder involves the extraction of cash from the wallets of people who are...

With the rise of the Interwebs FDD is becoming more and more common. Fad Diagnos...

fbirder

•8 years ago

28 Replies

Dental Work, Anaesthetic & low B12 & Folate

Hi, I'm posting on the back of something pvanderaa said in an earlier post re. my B12d possibly being caused by Stress, Anaesthetic, Dental work etc. It...

Hi, I'm posting on the back of something pvanderaa said in an earlier post re. m...

iStevie

•8 years ago

6 Replies

You must watch this!

https://www.youtube.com/watch?v=7urLipUwtDY Tom o Bryan touches on the subject of how b vit folate and b12 are linked to gluten sensitivy..you dont need to...

https://www.youtube.com/watch?v=7urLipUwtDY Tom o Bryan touches on the subject o...

blondie2505

•8 years ago

5 Replies

B12 def with tinitus and deafness ???

Hi I'm new to this wonderful community. So glad I have found it, just starting out on the road to make my GP listen and educate myself more on my problems....

Hi I'm new to this wonderful community. So glad I have found it, just starting o...

Jaylou82

•8 years ago

9 Replies

Best Supplements for B12 & Folic Acid?

Hi, Recently diagnosed with B12 & Folate deficiency and so far just told to take multi-vits containing B12 and Folic Acid. Asked in pharmacy for best ones to...

Hi, Recently diagnosed with B12 & Folate deficiency and so far just told to take...

iStevie

•8 years ago

22 Replies

Feeling shocked and isolated.. Help!!

So only around 8 weeks ago I finally had the courage to go to the doctors, threaten to tie myself to the chair unless they took a blood test and insist on them...

So only around 8 weeks ago I finally had the courage to go to the doctors, threa...

Suze1392

•8 years ago

16 Replies

B12 Injections and acne

Ive been reading some comments on this forum about B12 (pernicious aneamia) and the flare ups of acne. I had my loading dose in March and skin was ok, but...

Ive been reading some comments on this forum about B12 (pernicious aneamia) and ...

cube70

•8 years ago

4 Replies

Methyl b12 patch and neck pain

Tried my first methyl b12 patch and put it just under my earlobe as instructed. Woke up this morning with agonizing lower neck/collarbone/shoulder blade pain....

Tried my first methyl b12 patch and put it just under my earlobe as instructed. ...

mislauren

•8 years ago

16 Replies

Coffee

I have noticed that if I drink coffee it brings on the tingling sensation in my body ......should I Stop drinking it ...'..does anyone else appear to have this...

I have noticed that if I drink coffee it brings on the tingling sensation in my ...

blondie2505

•8 years ago

5 Replies

PA and abnormal CBC, white blood cells, no symptom improvement

Hello, I was diagnosed with PA 2 months ago and completed the initial loading B12 injections. My results show an instrinsic factor autoimmune issue and 2 gene...

Hello, I was diagnosed with PA 2 months ago and completed the initial loading B...

Hidden

•8 years ago

7 Replies

B12 Problem - Oral Contraceptive Pill - Does this sound correct

Back in Oct 15 I suddenly started feeling really tired, could barely stay awake in the afternoon, always cold, ulcers in mouth and pins/needles in hands and...

Back in Oct 15 I suddenly started feeling really tired, could barely stay awake ...

marie83693

•8 years ago

6 Replies

pernicious aneamia

ok, this is my question, my mother has pernicious aneamia which as alot will know is a B12 dificiency. My son has just been told to get checked for B12 and I...

ok, this is my question, my mother has pernicious aneamia which as alot will kno...

Fenton1969

•8 years ago

5 Replies

BRAIN DOC,!!

After a further 4 loading doses over last fortnight ,second lot( think I scared doc cos b12 back down to 338 after 3 months )he referred me to neurologist ,as...

After a further 4 loading doses over last fortnight ,second lot( think I scared ...

may61

•8 years ago

5 Replies

Sharps

How do i dispose of the bin?

blondie2505

•8 years ago

2 Replies

Tired of being Sick and Tired.....:(

Hi, I am 61 years old. I was in Hospital with hyponatremia last of Sept. 2016. They can't find what is causing it. I am on fluid management and was told to...

Hi, I am 61 years old. I was in Hospital with hyponatremia last of Sept. 2016. T...

Lshorty

•8 years ago

5 Replies

What do you put in the sharps bin?

So this may be an odd question, but if you have a sharps bin w a needle remover are you meant to put the whole thing (needle + plunger etc) in the box or do...

So this may be an odd question, but if you have a sharps bin w a needle remover ...

puncturedbicycle

•8 years ago

6 Replies

Loading injections finished but symptoms still here and getting worse

finished my loading injections 2 weeks ago and thought I'd at least see an improvement in my symptoms but they seem to be getting worse. The symptoms I had...

finished my loading injections 2 weeks ago and thought I'd at least see an impro...

Emma1996

•8 years ago

12 Replies

Sorry to re post. Can someone comment on below please?

Having come off PPI. Early sept (Lansaprazole 60 daily) and gone gf with lot of relief. I wanted new GP to test for B12/Coeliacs. He blanked me. Sympathetic...

Having come off PPI. Early sept (Lansaprazole 60 daily) and gone gf with lot of ...

Footygirl

•8 years ago

11 Replies

T3 being refused in Cumbria-feeling awful after reduced dose for 1month & now 3 days only on T4. Help? Advice?

Hi everyone, new to site but love the helpful posts. Cumbria have withdrawn funding for T3 for all patients and I've now been on an increased T4/reduced T3 for...

Hi everyone, new to site but love the helpful posts. Cumbria have withdrawn fund...

MGirl

•8 years ago

5 Replies

Anyone tried the B12 nasal spray?

Has anyone tried the B12 nasal spray? I was told it's the only other thing besides the injection that goes right into your bloodstream and bypasses the...

Has anyone tried the B12 nasal spray? I was told it's the only other thing besid...

Jackiekay

•8 years ago

12 Replies

Would really appreciate some help

Good morning to you all, I would be really grateful for some advice, I'm struggling to walk, stand and function every day. I've suffered with extreme...

Good morning to you all, I would be really grateful for some advice, I'm strugg...

csavery

•8 years ago

35 Replies

Finally had blood test

Can anyone help tell my daughter what to do next? She has been coping with a busy job and family with terrible symptoms of fatigue and weakness. A couple of...

Can anyone help tell my daughter what to do next? She has been coping with a bus...

Firinne

•8 years ago

13 Replies

Help and advice please

Good morning to you all, I would be really grateful for some advice, I'm struggling to walk, stand and function every day. I've suffered with extreme...

Good morning to you all, I would be really grateful for some advice, I'm strugg...

csavery

•8 years ago

3 Replies

Society for Science-Based Medicine

I've been reading the blogs on this fascinating web site for some time. Membership is free. It's a great place to read about the latest woo-woo....

I've been reading the blogs on this fascinating web site for some time. Membersh...

fbirder

•8 years ago

1 Reply

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2016

need help please

Feeling like s--t!! Bad heartburn, no energy etc.

Autoimmune Disease

Pa snps

Great visit with GP at new surgery! Thankyou all for the great advice, I feel like I've hit the jackpot.

Advice on blood tests please

Are you suffering from FDD?

Dental Work, Anaesthetic & low B12 & Folate

You must watch this!

B12 def with tinitus and deafness ???

Best Supplements for B12 & Folic Acid?

Feeling shocked and isolated.. Help!!

B12 Injections and acne

Methyl b12 patch and neck pain

Coffee

PA and abnormal CBC, white blood cells, no symptom improvement

B12 Problem - Oral Contraceptive Pill - Does this sound correct

pernicious aneamia

BRAIN DOC,!!

Sharps

Tired of being Sick and Tired.....:(

What do you put in the sharps bin?

Loading injections finished but symptoms still here and getting worse

Sorry to re post. Can someone comment on below please?

T3 being refused in Cumbria-feeling awful after reduced dose for 1month & now 3 days only on T4. Help? Advice?

Anyone tried the B12 nasal spray?

Would really appreciate some help

Finally had blood test

Help and advice please

Society for Science-Based Medicine

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive