Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for November 2016

B12 & B Complex confusion

Hello I am a member of both the PA group & Thyroid UK (I have Hashimotos) 3 months ago my B12 was 295 (211-911). Following advice from members from both...

Hello I am a member of both the PA group & Thyroid UK (I have Hashimotos) 3 mont...

janey1234

•8 years ago

16 Replies

Extreme back pain

Hi everyone. My Mother had an acute stroke last Wednesday and I have been visiting her in hospital (4 hour drive away ) ever since it happened. Can stress and...

Hi everyone. My Mother had an acute stroke last Wednesday and I have been visiti...

catherinejordan

•8 years ago

14 Replies

Intrinsic Factor Ab result

Hello I wonder if anyone can tell me what my Intrinsic Factor bloodtest result means please? Intrinsic Factor Ab (CUH) U/mL 2 (0-24) Thank you

Hello I wonder if anyone can tell me what my Intrinsic Factor bloodtest result ...

janey1234

•8 years ago

2 Replies

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Help with results low folate high crp.

Hello. I have many symptoms with overlap with thyroid and b12. This past year I have visited the dr dozens of times they think I'm a hypochondriac so I did...

Hello. I have many symptoms with overlap with thyroid and b12. This past year I ...

In-limbo

•8 years ago

9 Replies

Which countries provide viamin B 12 over the counter please?

I have a friend who travels widely. Soon she is going to Ilaly. In which countries can she by the injection vials and syringes and, more importantly, can she...

I have a friend who travels widely. Soon she is going to Ilaly. In which countri...

Footygirl

•8 years ago

11 Replies

B12 supplement and floravital

so im 37 weeks pregnant I've been taking better you b12 all pregnancy no issue due too iron dropping too 116 I've now started floravital which contains vit c...

so im 37 weeks pregnant I've been taking better you b12 all pregnancy no issue d...

nettiboo1982

•8 years ago

1 Reply

Other Vitamins

Hi all, just want to check I am ok with the vits I am taking:- Vitamin B Complex Troo Strength: B1-100mg, B2-100mg, B3-50mg, B5-100mg, B6-100mg, Folic...

Hi all, just want to check I am ok with the vits I am taking:- Vitamin B Compl...

Galadriel1

•8 years ago

3 Replies

Thats it last straw.

Hi. I have been agonising over re poisoning myself with gluten for a too soon test for a biopsy and feeling so ill. I can no longer lie in my chair and just...

Hi. I have been agonising over re poisoning myself with gluten for a too soon te...

Footygirl

•8 years ago

5 Replies

Pernicous Anaemia - B12 lowering

Had PA for about 15 years. 8 weekly injections. Levels when retested have always been 2000>. June 2015 lowered to 946. Then Dec2015 646. I asked for loading...

Had PA for about 15 years. 8 weekly injections. Levels when retested have always...

cherub61

•8 years ago

8 Replies

Positive IF

After years of going back and forth to the doctor with symptoms, and being told I was 'just stressed/depressed' and did not have a problem because my serum B12...

After years of going back and forth to the doctor with symptoms, and being told ...

topazrat

•8 years ago

15 Replies

Reversing Autoimmune Disease - Last Episode in the 'Betrayal' Series

The link is only available to until tonight, so last last chance to watch: https://betrayalseries.com/episode-7-8o9qzeea ..... Episode 6 and 7 - repeated -...

The link is only available to until tonight, so last last chance to watch: htt...

Polaris

•8 years ago

3 Replies

Disaster at PAS office

Someone told me that the PAS office was flooded yesterday. http://pernicious-anaemia-society.org/news/pernicious-anaemia-society/office-flooded/ Martyn Hooper...

Someone told me that the PAS office was flooded yesterday. http://pernicious-ana...

Sleepybunny

•8 years ago

7 Replies

New daily B12 tablet

When I went for my last injection my doctor asked me if I'd like to try a new, daily, high dose vitamin B 12 tablet instead of my injection. I declined because...

When I went for my last injection my doctor asked me if I'd like to try a new, d...

SusieR

•8 years ago

11 Replies

B12 newbie: Injection frequency?

First, as a newly (self-diagnosed) B-12 deficient, I'm so grateful to have discovered this site! For some background, a year and a half ago my blood tests...

First, as a newly (self-diagnosed) B-12 deficient, I'm so grateful to have disco...

etreas

•8 years ago

14 Replies

NAD intravenous infusions

Hi All In the Times 2 yesterday (Tuesday) there was an article on NAD intravenous infusions which seems to be sending ultraviolet light into ones veins with a...

Hi All In the Times 2 yesterday (Tuesday) there was an article on NAD intravenou...

Alfabeta

•8 years ago

1 Reply

Hypothyroidism finally!!

Hi everybody, The cat is finally out of the bag! I have been diagnosed as being hypothyroid today with my TSH currently at 13. No wonder even after excessive...

Hi everybody, The cat is finally out of the bag! I have been diagnosed as being ...

Dlonelyguy

•8 years ago

9 Replies

Update & question 🙈

Hi just a update, I managed to get the nurse to give me another B12 injection today much against her wishes. So after having a result of B12 180 in October I...

Hi just a update, I managed to get the nurse to give me another B12 injection to...

Jaylou82

•8 years ago

6 Replies

Just curious ?

Has there ever been a study into how many people self inject due to poor cooperation and frustration from their doctors percentage wise?. Being new to this...

Has there ever been a study into how many people self inject due to poor coopera...

blondie2505

•8 years ago

3 Replies

Storage?

Are you meant to store your hydroxocobalam b12 in the fridge?

blondie2505

•8 years ago

5 Replies

B12 levels

Random question... I've seen numbers such as 500 / 550 / 1000 (ng/L??) bandied about as levels you ideally need to be above while having treatment for PA. Does...

Random question... I've seen numbers such as 500 / 550 / 1000 (ng/L??) bandied a...

taka

Administrator•8 years ago

11 Replies

Episode 6 of the Autoimmune Disease 'Betrayal' Series

Again - you have to watch quickly before it locks down. This episode features Dr Kharrazian speaking about the brain, and others with information re, the...

Again - you have to watch quickly before it locks down. This episode features Dr...

Polaris

•8 years ago

1 Reply

Definition of PA

My nuero has sent me a letter stating that I do not have PA as I was never anemic and that the intrinsic factor test my GP took was not proof of PA ( though...

My nuero has sent me a letter stating that I do not have PA as I was never anem...

silvergirl

•8 years ago

5 Replies

What exactly is Functional B12 Deficiency?

I was told I had B12 deficiency(196) and had 6 loading injections then 1 every 3 months. By the 2nd of these 3-monthly injections, I did not feel any benefit...

I was told I had B12 deficiency(196) and had 6 loading injections then 1 every ...

Cherylclaire

Forum Support•8 years ago

40 Replies

Question about anemia

Hey guys I'm sorry if my questions are silly but I don't know much about anemia outside of pregnancy 😊 basically been having some issues with thyroid and...

Hey guys I'm sorry if my questions are silly but I don't know much about anemia ...

leannemcc19

•8 years ago

8 Replies

B12 makes me anxious and jittery

Hey there. On Nov. 02 I got my first B12 shot. Then sublingual 1000mu every day. Didn't felt much the first days. Then become tired, which I liked. Yes it was...

Hey there. On Nov. 02 I got my first B12 shot. Then sublingual 1000mu every day....

Hidden

•8 years ago

28 Replies

Does a GA affect b12?

Hi I havnt commented here before but love reading all the info and find it has been so valuable. Diagnoseb12d Sep 15 after 1 1/2 years being so increasingly...

Hi I havnt commented here before but love reading all the info and find it has b...

Confusedb12

•8 years ago

6 Replies

Veins under skin

Since i had hit a vein in my thigh I am very nervous about doing Si. I know it was okay because it was a small vein and left a bruise about an inch long. I am...

Since i had hit a vein in my thigh I am very nervous about doing Si. I know it w...

Justified

•8 years ago

12 Replies

B12 injections & supplements now experiencing burning on face & neck

Hi sorry for all the post from me 🙈 Just a little basic info for anyone who hasn't previously read a post from me. I have low B12 which I have suffered with...

Hi sorry for all the post from me 🙈 Just a little basic info for anyone who has...

Jaylou82

•8 years ago

6 Replies

HEAD DOC

So basically outcome of consultation with neurologist, is Head and neck MRI.Said sub acute combined degeneration of spine not in so many words.Doesnt think...

So basically outcome of consultation with neurologist, is Head and neck MRI.Said...

may61

•8 years ago

7 Replies

Pa from 2008

Hi my daughter put me onto this group I got pa in 2008 and all I have been given is b12 injections but feel so bad sleeping hurting and not going out I hate...

Hi my daughter put me onto this group I got pa in 2008 and all I have been given...

mjm1929

•8 years ago

23 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2016

B12 & B Complex confusion

Extreme back pain

Intrinsic Factor Ab result

Help with results low folate high crp.

Which countries provide viamin B 12 over the counter please?

B12 supplement and floravital

Other Vitamins

Thats it last straw.

Pernicous Anaemia - B12 lowering

Positive IF

Reversing Autoimmune Disease - Last Episode in the 'Betrayal' Series

Disaster at PAS office

New daily B12 tablet

B12 newbie: Injection frequency?

NAD intravenous infusions

Hypothyroidism finally!!

Update & question 🙈

Just curious ?

Storage?

B12 levels

Episode 6 of the Autoimmune Disease 'Betrayal' Series

Definition of PA

What exactly is Functional B12 Deficiency?

Question about anemia

B12 makes me anxious and jittery

Does a GA affect b12?

Veins under skin

B12 injections & supplements now experiencing burning on face & neck

HEAD DOC

Pa from 2008

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