Back in Oct 15 I suddenly started feeling really tired, could barely stay awake in the afternoon, always cold, ulcers in mouth and pins/needles in hands and feet. I was told by my Doctor that I am B12 deficient but I have now been told by a Consultant Gastroenterologist it is Chronic Fatigue syndrome. I am 25 years old. I am sorry for the long winded details below but would really appreciate your views on whether this sounds correct. Thank you so much.
Feb 16: B12 level 71 so need urgent injections. Doctor said my B12 level had been around this since Oct 15 but I had not been advised. I had six injections with the last one on 6 Apr. I had a bad reaction to the injections (rash) and was prescribed steroid and anti-biotic tablets.
On 20 May my B12 level was 326. In mid-June my B12 level was 192 and I was started on supplement tablets. In mid-July by B12 level as 217.
End July 16: Appointment with haematologist. No problem with blood cells. Test for intrinsic factor / antibodies all fine so no evidence of Pernicious Anaemia. Suggests referral for gastro investigation. There was around 12 month waiting list for gastro so decided to seek private second opinion.
Nov 16: Visited Consultant Gastroenterologist. He had a copy of all my medical and test results and went over everything. He advised that he does not believe that I am B12 deficient. He believes that the oral contraceptive pill is leading to inaccurate results on the blood tests. He said that the B12 latches to the hormone and travels around the blood so it is metabolised differently and leads to false levels being detected in the blood tests. He said that my blood cells looked very good with haemoglobin around 150 and all related tests absolutely fine (no anaemia ever). He is certain this is the issue but said the only way to prove it beyond doubt would be to stop the contraceptive pill or allow him to put a camera down my throat to check for atrophy (which he is happy to do if I wish to pursue this). He suggested that my symptoms were more likely due to Chronic Fatigue Syndrome.