Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for September 2016

Advice Please!

I wonder if anybody can advise me.... I would be very grateful. My symptoms started some 5 years ago following open heart surgery to replace my aortic valve....

I wonder if anybody can advise me.... I would be very grateful. My symptoms star...

kmarrable

•8 years ago

8 Replies

Doctor says no more injections necessary!

Am worried as my husband's GP has said his B12 is now OK and he does not need any more jabs. I have written on here before about his situation and she seems...

Am worried as my husband's GP has said his B12 is now OK and he does not need an...

christina1952

•8 years ago

7 Replies

PA and self-injection on BBCSouth

BBC South on the TV news just had a segment about somebody with PA self-injecting with B12 from Germany. I only came in partway through so I'm waiting for a...

BBC South on the TV news just had a segment about somebody with PA self-injectin...

fbirder

•8 years ago

15 Replies

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B12 injections and weight gain

We'll have came to the conclusion there is defo a link between the injections and weight gain with me! On my final loading dose today and am up 4lb since the...

We'll have came to the conclusion there is defo a link between the injections an...

Fiona1039

•8 years ago

8 Replies

Heart palpitations...still? Bad day

Hey guys. As I think I've state before I've always struggled with potassium. Level of 3.5 is the low end and mine has always been 3.4 to 3.6. Last checked when...

Hey guys. As I think I've state before I've always struggled with potassium. Lev...

Ladyawkward

•8 years ago

1 Reply

Recent bloodwork...very high B12 levels....should I be concerned?

I have PA...just had my B12 levels taken and they are >2000 pg/ml Any concerns?? The best i've felt in a long time....motivated, inspired, energetic, hopeful,...

I have PA...just had my B12 levels taken and they are >2000 pg/ml Any concerns?...

ljmulledy

•8 years ago

11 Replies

Hips!!

Saw thyroid specialist today as in my doctors words my thyroid was "dodgy" after lots questions and discussion about my b12 and thyroid she told me that my...

Saw thyroid specialist today as in my doctors words my thyroid was "dodgy" after...

Carolyn1964

•8 years ago

4 Replies

Where has all my B12 gone?

Brief history - I was diagnosed with ME/CFS 6 years ago (may or may not be, B12 104 at that time) but in June this year my B12 test showed quote from lab "had...

Brief history - I was diagnosed with ME/CFS 6 years ago (may or may not be, B12 ...

Bev11

•8 years ago

17 Replies

Kinda confused

I was tested for Intrinsic Factor in August, by GP previously gave me B12 and folic acid tablets. Due to my thyroid problems etc, all my blood results are...

I was tested for Intrinsic Factor in August, by GP previously gave me B12 and fo...

Geordi

•8 years ago

4 Replies

How long before diagnosis...?

Earlier on this year I was diagnosed [again] with a vitamin B12 deficiency. This time I felt really bad and even after injections I felt like I was dying....

Earlier on this year I was diagnosed [again] with a vitamin B12 deficiency. Thi...

Hidden

•8 years ago

8 Replies

Research papers

A plea of help to all of you tech wizards..... Does anyone know of any research papers good enough to show to physicians. Not anecdotal evidence, has to be...

A plea of help to all of you tech wizards..... Does anyone know of any research ...

Pixielula

•8 years ago

5 Replies

Help with B12

Hi - advised to post her from the thyroid community. Been feeling pretty dreadful for months now. General fatigue, serious aches and pains and almost...

Hi - advised to post her from the thyroid community. Been feeling pretty dreadf...

polgara36

•8 years ago

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How much time it takes for the b12 to show their effect?

I was diagnosed with b12 deficiency in June 2016. I started taking injections in July..so it's roughly 2 months...I had many issues earlier.. Predominantly...

I was diagnosed with b12 deficiency in June 2016. I started taking injections in...

Ashishk

•8 years ago

16 Replies

uMMA Test

Hi All As I have not been diagnosed by any doctors as being b12 deficient, and as my doctors will not entertain the fact that I maybe, even with all the...

Hi All As I have not been diagnosed by any doctors as being b12 deficient, and a...

AngelaJG

•8 years ago

5 Replies

NY Times Personal Health Piece

Vitamin B12 as Protection for the Aging Brain By JANE E. BRODY Published: Sept. 6, 2016 Depression, dementia and mental impairment are often associated with...

Vitamin B12 as Protection for the Aging Brain By JANE E. BRODY Published: Sept....

alamagpa

•8 years ago

4 Replies

Heartbreak hotel...

It's happened - I am at an age where I can now put a syringe under my bra-lass bosom and leave it there to warm up whilst I wash my face. Once upon a time I...

It's happened - I am at an age where I can now put a syringe under my bra-lass b...

Schenks

•8 years ago

50 Replies

Victory

Thanks for all your advice everyone. Today I got my first B12 injection after telling gp I'd read current local b12 protocol and asked his reasoning for not...

Thanks for all your advice everyone. Today I got my first B12 injection after te...

wongy215

•8 years ago

10 Replies

Thank you - hopefully on the road to recovery

TSH 9.9 (0.4 -4.5) Vit d 49.2 (50-250) Folate 9.1 (3-197) Ferritin 77 (11-307 Visited my GP today to discuss the above latest blood results. He advised...

TSH 9.9 (0.4 -4.5) Vit d 49.2 (50-250) Folate 9.1 (3-197) Ferritin 77 (11-307...

MzChapperz

•8 years ago

11 Replies

Night vision for driving......Does low b12 affect it?

For years I have had terrible night vision for driving. Have discussed with opticians but never been offered a solution. The vision would be made worse in...

For years I have had terrible night vision for driving. Have discussed with opt...

Lulu_65

•8 years ago

10 Replies

Referred to Neurologist

Two months ago I was diagnosed as PA. The doctor did not ask me about any symptoms but when I started to read about PA I found that the tiredness, pins&...

Two months ago I was diagnosed as PA. The doctor did not ask me about any sympto...

sue_higgins54

•8 years ago

4 Replies

Confused

Hi, I recently went to my GP as i was constantly extremely tired, suffering with cramps in my leg, falling over my own feet and feeling weakness in my legs and...

Hi, I recently went to my GP as i was constantly extremely tired, suffering with...

Carmen-Rider1991

•8 years ago

9 Replies

Feeling Worried and Frustrated

Hi, I posted a few day ago about having lots of signs of B12 deficiency/hypothyroid and went for some blood tests. I have had tests including b12, folate and...

Hi, I posted a few day ago about having lots of signs of B12 deficiency/hypothy...

Rachf1986

•8 years ago

12 Replies

Need help :(

I first joined the PAS (and the old forum back in 2011) when I was diagnosed with a B12 level of 132. I was given 5 B12 injections over a 10 week period, then...

I first joined the PAS (and the old forum back in 2011) when I was diagnosed wit...

mrsikon

•8 years ago

14 Replies

methyl B12

Would anyone taking Methyl. B12 sublingual lozenges, be kind enough to tell me which brand (and dose) they are taking? So much available I don't know which to...

Would anyone taking Methyl. B12 sublingual lozenges, be kind enough to tell me w...

foxglove

•8 years ago

8 Replies

Methyl and headaches

Took my first dose of methyl yesterday. About 2 hours later, awful headache started. Still have it now, it woke me up actually. I had headaches on loading dose...

Took my first dose of methyl yesterday. About 2 hours later, awful headache star...

Ladystardust

•8 years ago

10 Replies

Puzzled

My b12 has gone from 126 down to 86 and back to 142 in a month .dr still not treating me as he says over 100 is normal depending on which scale you use.He is...

My b12 has gone from 126 down to 86 and back to 142 in a month .dr still not tre...

wongy215

•8 years ago

7 Replies

Progress and changes following loading injections... Have others experienced this

I started self injecting methylcobalamin almost 2 weeks ago .... Have had a total of 7 injections of 1mg. I intend to do at least another week of every other...

I started self injecting methylcobalamin almost 2 weeks ago .... Have had a tota...

Lulu_65

•8 years ago

3 Replies

B12 vits

Hi I'm new here and would like some pointers to help my problem of numb and tingling lower limb I had thyroid removed and am on levothyroixine . My blood test...

Hi I'm new here and would like some pointers to help my problem of numb and ting...

Gcart

•8 years ago

4 Replies

Update after private haematologist

I have posted this already in reply to my original post about the haematologist referral, but wasn't sure if it would show up in the main forum so am posting...

I have posted this already in reply to my original post about the haematologist ...

Galadriel1

•8 years ago

9 Replies

Afternoon all,latest update from myself,stilll working hard but off sick today due to throat and chest infection.

Afternoon all,hope you are well. I went back to the doctors today for my vitamin b12 injection.I also went to see her due to losing my voice over the weekend...

Afternoon all,hope you are well. I went back to the doctors today for my vitamin...

Nicky-Richards

•8 years ago

23 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2016

Advice Please!

Doctor says no more injections necessary!

PA and self-injection on BBCSouth

B12 injections and weight gain

Heart palpitations...still? Bad day

Recent bloodwork...very high B12 levels....should I be concerned?

Hips!!

Where has all my B12 gone?

Kinda confused

How long before diagnosis...?

Research papers

Help with B12

How much time it takes for the b12 to show their effect?

uMMA Test

NY Times Personal Health Piece

Heartbreak hotel...

Victory

Thank you - hopefully on the road to recovery

Night vision for driving......Does low b12 affect it?

Referred to Neurologist

Confused

Feeling Worried and Frustrated

Need help :(

methyl B12

Methyl and headaches

Puzzled

Progress and changes following loading injections... Have others experienced this

B12 vits

Update after private haematologist

Afternoon all,latest update from myself,stilll working hard but off sick today due to throat and chest infection.

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