Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for September 2016

Exercise and Pernicious Anaemia?

Hi, I've had a good trawl of the internet but cannot find anything on whether you can exercise with PA? I'm used to regular exercise and now haven't done...

Hi, I've had a good trawl of the internet but cannot find anything on whethe...

IanM44

•8 years ago

13 Replies

Feeling worse but GP says test results fine.

Had blood test done via Blue Horizon. Showed B12 198 "insufficient". Tried B12 patches,which help, but effect lasts 3 days only. Returned to GP who repeated...

Had blood test done via Blue Horizon. Showed B12 198 "insufficient". Tried B12 p...

Hidden

•8 years ago

7 Replies

DAD NOW IN HOSPITAL

We got our private bloods done (thanks to Blue Horizons the GP now listened to us)! Dad B12 was in 700s but we explained that this was due to use of...

We got our private bloods done (thanks to Blue Horizons the GP now listened to u...

sandramcgregor

•8 years ago

5 Replies

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Severe Vitamin B12 and D deficiency

Hi, last 1 month back I got severe neck stiffness for which i went to see a doctor. CBC checked, Lymphocytes sligthly high at 52 all other things fine. Further...

Hi, last 1 month back I got severe neck stiffness for which i went to see a doct...

ALPHAS

•8 years ago

5 Replies

Tinnitus Advice Please .. Can it Go?

Hi there everyone .. Has anyone had the experience of the Tinnitus Ringing in one ear suddenly stopping? I developed this horrid condition many years ago...

Hi there everyone .. Has anyone had the experience of the Tinnitus Ringing in o...

Catsgalour

•8 years ago

2 Replies

Getting diagnosed

I'm 99% convinced that I have PA, I have been feeling terrible for weeks but put it down to the reduction of my Levothyroxine as I am hypothyroid. Having done...

I'm 99% convinced that I have PA, I have been feeling terrible for weeks but put...

Jackiez

•8 years ago

18 Replies

Where can I get a b12 infusion and iron infusion please?

I live in South Wales so preferably somewhere from the Midlands down / London / Bristol? Unless somewhere in South Wales but that's probably a hope too far 😁...

I live in South Wales so preferably somewhere from the Midlands down / London / ...

Grifter

•8 years ago

2 Replies

Time to upset GP Practice

Have written letter to Gp asking why practice nurse stop b12 injections in 2015 . This happen on second appointment, told her to give it me which she did,...

Have written letter to Gp asking why practice nurse stop b12 injections in 2015 ...

Hidden

•8 years ago

16 Replies

Please share

https://you.38degrees.org.uk/petitions/pernicious-anaemia-treatment?source=facebook-share-button&time=1472982165

https://you.38degrees.org.uk/petitions/pernicious-anaemia-treatment?source=faceb...

Ladystardust

•8 years ago

5 Replies

Have you tried getting stuff out of an ampoule with an 8mm needle?

It's b*%+@y difficult. Getting very frustrated at wasting half the dose. So, a question. Is there a huge problem with getting the full measure from the ampoule...

It's b*%+@y difficult. Getting very frustrated at wasting half the dose. So, a q...

Schenks

•8 years ago

43 Replies

Post Loading Injection Changes

Hi all. Just curious if anyone who had stomach issues found they got better after b12 loading jabs? I've had a bloated stomach for a few months now (and bad...

Hi all. Just curious if anyone who had stomach issues found they got better afte...

Kyle3

•8 years ago

4 Replies

Blood levels

Ive recently had blood work done once in june and once in august both results showed my b12 levels were high my b6 was low and my folate was high. I dont take...

Ive recently had blood work done once in june and once in august both results sh...

Brooklynrae

•8 years ago

9 Replies

B12 injections

hi I'm new but have already done a post but must of done something wrong because my user name didn't come up, so here goes again don't have PA but had 11 foot...

hi I'm new but have already done a post but must of done something wrong because...

Hidden

•8 years ago

5 Replies

Quick question........

For those self injecting daily....just wondering what sort of dose you take?

Ladystardust

•8 years ago

17 Replies

latest active B12 results, any advise would be appreciated

My latest Blue Horizon test show: .256.0 - pmol/L - 25.1-165.0 Was: >256.0 - same range in April 2016 On injections every 2nd day since February 2016 -...

My latest Blue Horizon test show: .256.0 - pmol/L - 25.1-165.0 Was: >256.0 ...

busterboy

•8 years ago

6 Replies

News item on PAS website

In news section, list of scientific research from a conference about B12.......

Sleepybunny

•8 years ago

2 Replies

Struggling with doctors

Hi, I have been having the following symptoms for the last two weeks; extreme fatigue Numbness in toes and fingers- especially little fingers Joint and back...

Hi, I have been having the following symptoms for the last two weeks; extreme f...

Rachf1986

•8 years ago

8 Replies

Private Hematologist's

Can anyone recommend a private Hematologist in Warrington and Manchester area, not happy with NHS Thanks

Can anyone recommend a private Hematologist in Warrington and Manchester area, n...

Hidden

•8 years ago

4 Replies

GP trip/Will I ever improve

Hi all So had a trip to the GP who was reluctant to discuss extra loading doses as I have neurological symptoms and pointed out the nice guidelines and BNF ......

Hi all So had a trip to the GP who was reluctant to discuss extra loading doses ...

Abijah

•8 years ago

10 Replies

High B12 whit high MMA whit no supplementation

Hello. I am male, 38 years old, from Brazil. I am not supplementing b12 when I did these blood tests. I tested for serum b12 and serum MMA and get this...

Hello. I am male, 38 years old, from Brazil. I am not supplementing b12 when I d...

Lucas22

•8 years ago

7 Replies

Newbie - PA? B12? symtoms, help please

Hi, very new to this, and would really appreciate some help. I'm a reasonably healthy 47 yo male. Recently had symptoms of aching leg muscles in the morning...

Hi, very new to this, and would really appreciate some help. I'm a reasonably he...

Filbert

•8 years ago

10 Replies

MMA test

Hi all daughter in law got results today from a private MMA blood test results were 0.10 And they have said they don't think it's B12 don't know what to do...

Hi all daughter in law got results today from a private MMA blood test results w...

networker

•8 years ago

2 Replies

B12 injections

hi I don't have Pa but had my terminal ileum removed 3years ago and can't absorb b12, started injections 3 months ago which are like a miracle, but becomes...

hi I don't have Pa but had my terminal ileum removed 3years ago and can't absorb...

Hidden

•8 years ago

7 Replies

Mothers B12 Pernicious Anemia and COQ10

I was wondering ,i am in the midst of finding out if its possible to take COQ10 with all my mothers medications, but something came to mind, if she has a...

I was wondering ,i am in the midst of finding out if its possible to take COQ10 ...

Advice1

•8 years ago

4 Replies

Doctors

Hi I am new on here, but have been reading the Forum on and off for a several weeks now after trawling the internet trying to find out what was wrong with me....

Hi I am new on here, but have been reading the Forum on and off for a several we...

AngelaJG

•8 years ago

25 Replies

Pleased to be here...

Hi all, I was diagnosed with PA approx. 5 years ago which came about after I moved G.P. My previous G.P. was treating my concurring headaches and lethargy...

Hi all, I was diagnosed with PA approx. 5 years ago which came about after I mov...

linw_123

•8 years ago

13 Replies

Please read this before using this forum

This forum is an initiative of the Pernicious Anaemia Society. It is intended to share knowledge, experiences and opinions related to a pernicious anaemia,...

This forum is an initiative of the Pernicious Anaemia Society. It is intended t...

PAS-admin

Partner•8 years ago

6 Replies

My medical history- any ideas?

I am new here. 63 year old female. Hashimotos Hypothyroid, currently taking 125 mcg. Tirosint and 2.5 mg cytomel. I have both antibodies for this autoimmune...

I am new here. 63 year old female. Hashimotos Hypothyroid, currently taking 125...

rosehill

•8 years ago

19 Replies

Loading doses?

Can anyone please help I was told my b12 was 113 on 27/4/2016 Initially I was told I would need 3 injections in a week followed by 1 injection ongoing every 3...

Can anyone please help I was told my b12 was 113 on 27/4/2016 Initially I was to...

MzChapperz

•8 years ago

11 Replies

My brothers last test results.... But not many things explored!

Thank you for all the advice for my poor brother. And also the advice on how to post this pic of his last results ( Lisahelen 😀) they didn't take bloods this...

Thank you for all the advice for my poor brother. And also the advice on how to ...

Marymary7

•8 years ago

4 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2016

Exercise and Pernicious Anaemia?

Feeling worse but GP says test results fine.

DAD NOW IN HOSPITAL

Severe Vitamin B12 and D deficiency

Tinnitus Advice Please .. Can it Go?

Getting diagnosed

Where can I get a b12 infusion and iron infusion please?

Time to upset GP Practice

Please share

Have you tried getting stuff out of an ampoule with an 8mm needle?

Post Loading Injection Changes

Blood levels

B12 injections

Quick question........

latest active B12 results, any advise would be appreciated

News item on PAS website

Struggling with doctors

Private Hematologist's

GP trip/Will I ever improve

High B12 whit high MMA whit no supplementation

Newbie - PA? B12? symtoms, help please

MMA test

B12 injections

Mothers B12 Pernicious Anemia and COQ10

Doctors

Pleased to be here...

Please read this before using this forum

My medical history- any ideas?

Loading doses?

My brothers last test results.... But not many things explored!

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