Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for September 2016

Self injecting

Hi I did post at beginning of Aug when just finished loading doses - I am on the standard regime ie now every 3 months. Have had symptoms for over 10 years....

Hi I did post at beginning of Aug when just finished loading doses - I am on the...

Lizzy86

•8 years ago

13 Replies

How do you know when you need a jab?

I have PA, but I also have a couple of other things going on that can cause fatigue & fog. So when I have a bad day, I'm not 100% sure it's due to my B12 being...

I have PA, but I also have a couple of other things going on that can cause fati...

cdragin

•8 years ago

3 Replies

solgar sub~linguals update

Hi everyone. Re recent concerns about sourcing & escalating cost of Solgar Meth 5000mcg sub~lingual tablets. Someone (sorry cant remember who) said they had...

Hi everyone. Re recent concerns about sourcing & escalating cost of Solgar Meth ...

1capricorn3

•8 years ago

4 Replies

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loading dose guidelines

Hi all, I know I should be able to find this information myself as I think i've seen it posted about a million times, but I've been having really really bad...

Hi all, I know I should be able to find this information myself as I think i've ...

jade_s

•8 years ago

8 Replies

B12

I visited my GP with stack of evidence to help provide B12 injections he didnt really go through much of it but he summed up my symptoms and agreed on the...

I visited my GP with stack of evidence to help provide B12 injections he didnt r...

Advice1

•8 years ago

21 Replies

Oh dear.

Saw the locum today for 3rd jab.instructions from my original doc I see him in 2 weeks. I queried having the proper loading dose of at least 6 and he agreed he...

Saw the locum today for 3rd jab.instructions from my original doc I see him in 2...

wongy215

•8 years ago

5 Replies

cyanocobalamin

i have been given cyanocobalamin 50 mcg for low b12 i take tablets for blood preasure thyroxin and omoprozal is it safe to mix all these things with...

i have been given cyanocobalamin 50 mcg for low b12 i take tablets for blood pre...

mummymac

•8 years ago

13 Replies

Self injecting

How do people's GPS react if told you are going to do it?....just wondered.

wongy215

•8 years ago

21 Replies

Smelly wee!!!

Since starting my b12 injections and all my vitamin supplements I've noticed a very distinctive smell in my wee - has anyone else ever had this?

Since starting my b12 injections and all my vitamin supplements I've noticed a v...

Carolyn1964

•8 years ago

6 Replies

New to all this .. Any advice great fully received

Hi I'm 38 and over the years my B12 and folic levels have dipped .. I've usually had tablets for a few months then been told I'm ok. My last blood test showed...

Hi I'm 38 and over the years my B12 and folic levels have dipped .. I've usually...

Kellybee

•8 years ago

19 Replies

Decided to self inject.

Was pleased to get an appointment with Endocrinologist. Hoped to get him/her to see I possibly have combination of hypothyroidism and B12 deficiency. Following...

Was pleased to get an appointment with Endocrinologist. Hoped to get him/her to ...

Hidden

•8 years ago

9 Replies

Supplier in Europe of 30ml Methylcobalamin?

Hey, just a quick question.....Does anyone know of a supplier of 30ml Methyl please? I made a horrendous financial error, purchasing some from the USA....and...

Hey, just a quick question.....Does anyone know of a supplier of 30ml Methyl ple...

ShirleyMurray

•8 years ago

2 Replies

Feeling a little inpatient

Good to always have you to call on. Hope the recent publicity will be to everyones advantage. After my loading dose and the first three monthly dose 10 days...

Good to always have you to call on. Hope the recent publicity will be to everyo...

Bevsusan

•8 years ago

4 Replies

Parietal cell test

Hi everyone, I'm new here and had a couple questions. A little history.. I had the parietal cell antibody test done (3 times) and each time my test has come...

Hi everyone, I'm new here and had a couple questions. A little history.. I had t...

yogamom1

•8 years ago

7 Replies

Bad throat

Good morning everyone, awful weather but never mind they've promised some nice weather middle of next week, we'll see. Anyhow, I decided to buy some b12...

Good morning everyone, awful weather but never mind they've promised some nice ...

Bentleyboo

•8 years ago

11 Replies

Dry mouth

For the last three mornings I have woke with a dry mouth tongue and gums .... really quite bad Is this a symptom of PA that I've simply not had before or...

For the last three mornings I have woke with a dry mouth tongue and gums .... r...

catherinejordan

•8 years ago

6 Replies

Is PA the same as MA?

Hi, new here! Woke up 4 months ago with severe leg cramps both legs and feet with numbness up to my knees and severe back pain. My Dr. said all blood work...

Hi, new here! Woke up 4 months ago with severe leg cramps both legs and feet wi...

mislauren

•8 years ago

22 Replies

Spleen and B12?

Hi I had my first loading dose injection yesterday, and today my massage therapist noticed that there seemed to be some swelling in my spleen area, and that I...

Hi I had my first loading dose injection yesterday, and today my massage therapi...

CharlieRN

•8 years ago

10 Replies

Grrrr doctors!

After my 4th blood test b12 was 160,this was just before first jab.I've had 2 now and Dr says he will give me 3. Luckily I'm seeing locum for 3rd so I'll raise...

After my 4th blood test b12 was 160,this was just before first jab.I've had 2 no...

wongy215

•8 years ago

11 Replies

blood tests

hi have pa about 6 years have never had a blood test since is this normal sue

pernic

•8 years ago

2 Replies

B12?

Hi I haven't been feeling myself for about 3 months, feeling very moody, emotional, out of breath, bloated stomach and have put a stone in weight on, electric...

Hi I haven't been feeling myself for about 3 months, feeling very moody, emotion...

gillyjohnny

•8 years ago

5 Replies

Newbie with some hope and a couple of questions!

Hi, I've not posted on here before, but was pointed in this direction from the thyroid board. I've been off work for 5 months with what was suggested (but not...

Hi, I've not posted on here before, but was pointed in this direction from the t...

CharlieRN

•8 years ago

22 Replies

I think it's working ...

Hi, folks! So, here I am, 2 weeks into loading doses every other day. I've gone from knowing I could never self-inject ... needles needles needles...

Hi, folks! So, here I am, 2 weeks into loading doses every other day. I've gone...

Schenks

•8 years ago

22 Replies

Intrinsic Factor and Omeprazole

Morning All. Newly prescribed vitamin B compound strong tablets. To be honest I didn't know very much about B12 deficiency. Having now looked on the net and...

Morning All. Newly prescribed vitamin B compound strong tablets. To be honest ...

marfannie1907

•8 years ago

3 Replies

BBC South article on BBC iPlayer

You can watch the article - about 6 minutes in to the programme - until about 18.45 today here...

You can watch the article - about 6 minutes in to the programme - until about 18...

Gambit62

Administrator•8 years ago

5 Replies

What do I do now?

Ok. I live in the South but didn't get to see Carole doing her own injections on BBC south. Have had eight weekly injections since last November with an...

Ok. I live in the South but didn't get to see Carole doing her own injections on...

Mavis15

•8 years ago

13 Replies

New name for Pernicious Anaemia ?

Do you think it would be a good idea to re-christen Pernicious Anaemia ? We all know how pernicious it is , but we also know that you don't have to have...

Do you think it would be a good idea to re-christen Pernicious Anaemia ? We all ...

wedgewood

•8 years ago

20 Replies

New to B12, do I need a GP appointment?

In June this year I went to the doctors because I hurt my knee running and without any info to why he decided to do some blood tests, thyroid, B12, liver...

In June this year I went to the doctors because I hurt my knee running and witho...

Hidden

•8 years ago

11 Replies

8.5 million people in the UK have now gone "gluten free"

http://www.bbc.co.uk/news/magazine-37292174 Interesting article - these sentences jumped out : "Our biochemical measures showed nothing at all - but that...

http://www.bbc.co.uk/news/magazine-37292174 Interesting article - these senten...

Polaris

•8 years ago

1 Reply

Fast Heartbeat and Low blood Pressure

I am a 61 year male who until 6 months ago considered myself fit and well, although for the previous 2 years I had been going slowly downhill which I just put...

I am a 61 year male who until 6 months ago considered myself fit and well, altho...

roddogsbody

•8 years ago

3 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2016

Self injecting

How do you know when you need a jab?

solgar sub~linguals update

loading dose guidelines

B12

Oh dear.

cyanocobalamin

Self injecting

Smelly wee!!!

New to all this .. Any advice great fully received

Decided to self inject.

Supplier in Europe of 30ml Methylcobalamin?

Feeling a little inpatient

Parietal cell test

Bad throat

Dry mouth

Is PA the same as MA?

Spleen and B12?

Grrrr doctors!

blood tests

B12?

Newbie with some hope and a couple of questions!

I think it's working ...

Intrinsic Factor and Omeprazole

BBC South article on BBC iPlayer

What do I do now?

New name for Pernicious Anaemia ?

New to B12, do I need a GP appointment?

8.5 million people in the UK have now gone "gluten free"

Fast Heartbeat and Low blood Pressure

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