I first joined the PAS (and the old forum back in 2011) when I was diagnosed with a B12 level of 132. I was given 5 B12 injections over a 10 week period, then my bloods retaken and as my levels had risen to the 400's my injections were stopped.
I do have details of all my blood tests results from back then but they are at home and not with me, I needed to get this post written ASAP, so will update when I can.
What I DO know is since my first pregnancy in 2005, my MCV was always above the reference ranges (I think this indicates macrocytic aneamia?). I have always had low folate and ferratin levels too.
I fought for much of 2012 to try and get more answers as to why I was feeling rubbish, but believed the Dr that being a mum of 4 and holding down two jobs with awful shifts was the reason for my tiredness.
In 2014 we moved to the North East, I was able to get just one full time job, with regular office hours and we now live with my mum so I have help with the children.
My exhaustion is relentless. I struggle to stay awake at work and often have to do a circuit of the office to wake myself up. On holiday I would just drop off to sleep in the afternoons. I don't feel like I've had a decent sleep unless it's been for 10-12 hours.
On top of that, my memory is shocking and it's beginning to seriously affect my work. People just look at me like I'm mad when I tell them I have a bad memory and forget things very quickly.
I had a health check through work, which included a blood test. Again my MCV was high so I booked an appointment with my GP to arrange a blood test.
I absolutely broken down in this meeting with how I am feeling and how it is affecting my life.
As I have a family history of PA (great grandmother and grandmother), she agreed to test my B12 and also my thyroid and FBC.
Had the test Fri morning and a call from the surgery Fri eve to arrange a phone consultation with the Dr tomorrow.
I picked up a copy of my results yesterday and I really need help ahead of the phone call as to where I go next.
You've guessed it, B12 is within "normal ranges" (there are others things that aren't, I will list these in a moment).
Now I know that B12 serum isn't a true reflection of the amount of B12 available for your body to use, how do I convince my Dr to look into this further? What can I request?
Blood test results 2/9/2016
Total white blood count - 8.4 10*9/L (4.0-11.0)
Haemoglobin concentration - 123g/l (115.0 - 165.0)
Platelet Count - 256 10*9L (150.00-400.0)
Red blood cell count - 3.73 10*12/L (3.8-5.8)
Haematocrit - 0.385 1/1 (0.37-0.47)
Mean Cell Volume - 103.2 fL (80.00 - 100.0)
Mean cell haemogblobin level - 33.0 pg (27.0 - 32.0)
Mean Cell haemogblobin concentration - 319 g/L (320.0 - 360.0)
Red blood cell distribution width - 14.6% (11.0-14.8)
Serum TSH level - 1.10 mu/L (0.35 - 5.5)
Serum B12 - 535 ng/l (190.0 - 910.0)
Serum folate level - 2.4 ng/ml (3.3 - 99999.0)
At the top of the print out it says "Follow up action: No further action" on a few pages and on one it says "need to speak to Dr" - which is why I am getting the call tomorrow morning.
I have just ordered Martyn's book, but I need help now. I simply cannot carry on feeling like this, I need to continue fighting this time.
Appreciate any help or advice please.