I have been receiving b12 jabs for 5 and a half years, initially every 3 months. During the first 3 years or so of treatment the jabs seemed to restore my health apart from the last couple of weeks before it was due. Then I started to get neurological symptoms beginning with occasional numbness in hands. I persuaded my doctor to reduce the interval to 8 weeks but I soon found that the jab was making very little difference to how I felt. To cut a long story short my Neuro symptoms have snowballed. I now find it hard to walk, drive any distance, I have burning hands at night, difficulty grasping, clumsiness etc. My doctor had an e consultation with a haematologist who said that despite my MCV and MCH being above range I should only have jabs every 3 months.
2 weeks ago I started self injecting hydroxy subcutaneous every other day as I believe that is what they should have recommended.
However I am not feeling any benefit and the symptoms are getting worse. Today I had difficulty getting upstairs to the bathroom. Do I just have to be patient? Why did the symptoms change so drastically? Could there be something else as well going on?