Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for January 2016

Will I continue to improve once I've finished loading dose injections?

Sorry to ask another question. I've had 3 injections so far, so 3 more to go, then the next one in 3 months time. I'm definitely feeling a bit better....

Sorry to ask another question. I've had 3 injections so far, so 3 more to go, ...

petal02

•9 years ago

9 Replies

Doctor recommendations

Hello All I know the PAS and its members have done great work in educating doctors around the country. I'd be grateful if you could recommend a good doctor...

Hello All I know the PAS and its members have done great work in educating doct...

vlc2

•9 years ago

16 Replies

Heart concerns

If there is anyone who might know about the effects anaemia has on the heart I would be very grateful for advice. Ivehad acute anaemia for two years and am on...

If there is anyone who might know about the effects anaemia has on the heart I ...

Jus-tine

•9 years ago

9 Replies

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Non alcoholic fatty liver disease

Hi everyone I have had pernicious anemia for over 4 years now. I have been on regular b12 injections every 6 to 7 weeks. I have had my levels checked last...

Hi everyone I have had pernicious anemia for over 4 years now. I have been on re...

salsadancer

•9 years ago

24 Replies

Gen advice

Hi I posted on here a while back. Eventually I saw the haematologist last week and he has prescribed me 4 loading does and then 3 monthly injections. Prior to...

Hi I posted on here a while back. Eventually I saw the haematologist last week ...

trew

•9 years ago

4 Replies

Anxious

Hi, it's been a while since I've posted (which is a good thing!), as my son has been doing well, he's 22 and receives monthly injections from GP, Initially in...

Hi, it's been a while since I've posted (which is a good thing!), as my son has ...

KMC21

•9 years ago

9 Replies

Cramps and tremors

About 8 weeks ago I started to experience muscle tremors when exercising and muscle spasms, my hamstrings completely seized for a while and I was in a lot of...

About 8 weeks ago I started to experience muscle tremors when exercising and mus...

MALP

•9 years ago

5 Replies

B12 & Multivitamins

Hi. Wondered if anyone takes a daily B12 complex multivitamin and if so what one would you recommend. Are they pretty much all the same? Many thanks.

Hi. Wondered if anyone takes a daily B12 complex multivitamin and if so what one...

JanetteWebster

•9 years ago

11 Replies

Interpreting 23andme results

I am interested to explore my 23andme results but have not been able to find where I can access information regarding the genes.... we had our tests some years...

I am interested to explore my 23andme results but have not been able to find whe...

BethattheBeach

•9 years ago

15 Replies

Really scared as tremor getting worse

Hi all I posted a month ago re worsening symptoms, thanks for those that replied. Sorry I didn't acknowledge this at the time but I am very poorly. The main...

Hi all I posted a month ago re worsening symptoms, thanks for those that replie...

Babygodmother

•9 years ago

7 Replies

Folate

I have read loads of posts on here but I am just getting more confused about folate. I have recently had B12 injections, first was 5 every other day, then 5...

I have read loads of posts on here but I am just getting more confused about fol...

Ktululady

•9 years ago

4 Replies

problems tolerating methyl 12

Hello, I have tried over and over to take methyl B12 (all different brands) sublingually, but because all of the B12 I have tried ALWAYS have "natural...

Hello, I have tried over and over to take methyl B12 (all different brands) ...

phopmann

•9 years ago

17 Replies

Consultant insists my B12 deficiency is down to diet

I am new to this forum and to the Pernicious Anaemia Society. I joined following a recent diagnosis of B12 deficiency. I have just completed a two week...

I am new to this forum and to the Pernicious Anaemia Society. I joined followin...

Nattilydressed

•9 years ago

31 Replies

Test results

Got my test results today could someone tell me what they mean? Are the b12 numbers low enough that 5mcg of cyanocobalamin wouldn't make a difference? Serum...

Got my test results today could someone tell me what they mean? Are the b12 numb...

Xxvickieexx

•9 years ago

11 Replies

Just had 2nd B12 injection, nurse said it might take 2/3 weeks before I feel better 😞

Ok, so I shouldn't complain. I've got a GP who offered injections, even though the supplements she prescribed (50mcg cyanocobalamin twice daily) have boosted...

Ok, so I shouldn't complain. I've got a GP who offered injections, even though t...

petal02

•9 years ago

5 Replies

23andme Results

Hi - I'm still "battling" with Dr's and I have put all my symptoms and concerns in writing to my GP including reference to the BJH guidelines. My letter has...

Hi - I'm still "battling" with Dr's and I have put all my symptoms and concerns ...

Ajay999

•9 years ago

27 Replies

2003 paper

"Patients may have advanced neuropsychiatric manifestations of cobalamin deficiency and yet not be anemic, have a normal blood smear, and even have serum...

"Patients may have advanced neuropsychiatric manifestations of cobalamin deficie...

Laura5

•9 years ago

5 Replies

Blood levels.

Hi everybody I'm new here in fact just joined right now. I've been diagnosed with Pernicious Anaemia for many years and receive regular injections. I was...

Hi everybody I'm new here in fact just joined right now. I've been diagnosed wit...

Leenda

•9 years ago

4 Replies

Frequency of B12 Treatment. Eyesight problems, including double vision, told by GP to see an Optician.

Hi I have just been to see my GP I asked him if I could have my injection every four weeks. He said I can have it every ten weeks which is a bit better than...

Hi I have just been to see my GP I asked him if I could have my injection every ...

Artist62

•9 years ago

5 Replies

Update...

Hi everyone here is an update I in the last 15 years my symptoms are getting more severe I started to get large numb patches on my back after migraines pins...

Hi everyone here is an update I in the last 15 years my symptoms are getting mo...

LolalalalalaLola

•9 years ago

7 Replies

Neuralgia

I have neuralgia in my head behind right ear. The pain is so bad i can not explain it. I'm currently on amoxocillian for chest infection, but do think a bit...

I have neuralgia in my head behind right ear. The pain is so bad i can not expl...

Catherine50

•9 years ago

8 Replies

Doctor dismissed my pernicious anemia claims.

Just back from my doctors appointment doctor gave me a lecture about my diet and said if I don't improve I can have nerve problems told her I follow a balanced...

Just back from my doctors appointment doctor gave me a lecture about my diet and...

Xxvickieexx

•9 years ago

33 Replies

GP offered me B12 injections - yay!!!!

I’m sooooo relieved. After my A&E visit on New Year’s Day, with neurological symptoms, I was keen to see my GP. She was brilliant, commented that even...

I’m sooooo relieved. After my A&E visit on New Year’s Day, with neurological s...

petal02

•9 years ago

3 Replies

leg pains and weird body thermostat

Does anyone else suffer from pains in the thigh muscles and inner thighs? I have burning sensations in my legs worse after exercise but persist at rest. My...

Does anyone else suffer from pains in the thigh muscles and inner thighs? I have...

gillsie

•9 years ago

20 Replies

Extreme foot pain day of injection.

Hi all and Happy New Year :) I don't know if this is associated or not. I had my injection yesterday morning and then totally out of the blue came down with...

Hi all and Happy New Year :) I don't know if this is associated or not. I had m...

JanetteWebster

•9 years ago

15 Replies

Average diagnosis time

Does anyone know figures for the average time from first presenting with symptoms and getting a definitive diagnosis? I first noticed symptoms November 2014...

Does anyone know figures for the average time from first presenting with symptom...

shuvs

•9 years ago

13 Replies

Dry and cracked tongue

I have b12 injections every I2 weeks.I know I need them every 8 weeks as my symptoms return.I have asked him whether I could have them 8wkly but he won't hear...

I have b12 injections every I2 weeks.I know I need them every 8 weeks as my symp...

Chocolate41

•9 years ago

9 Replies

Advise please

Hi Everyone I started to self inject recently but havn't been supplementing with folic acid, can anyone advise where I source this please. Thanks x

Hi Everyone I started to self inject recently but havn't been supplementing wit...

csavery

•9 years ago

7 Replies

Anti parietal cell positive

Hi.. I have been recently diagnosed with b12 defiency and anti parietal antibody is positive. What could be the sign of this?is it PA

Hi.. I have been recently diagnosed with b12 defiency and anti parietal antibody...

kowsalya2004

•9 years ago

3 Replies

Update - had to go to A&E yesterday

I stared to feel very faint, and got pins and needles all down the right side of my body. My husband was really concerned (and I was getting a bit scared...

I stared to feel very faint, and got pins and needles all down the right side ...

petal02

•9 years ago

23 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2016

Will I continue to improve once I've finished loading dose injections?

Doctor recommendations

Heart concerns

Non alcoholic fatty liver disease

Gen advice

Anxious

Cramps and tremors

B12 & Multivitamins

Interpreting 23andme results

Really scared as tremor getting worse

Folate

problems tolerating methyl 12

Consultant insists my B12 deficiency is down to diet

Test results

Just had 2nd B12 injection, nurse said it might take 2/3 weeks before I feel better 😞

23andme Results

2003 paper

Blood levels.

Frequency of B12 Treatment. Eyesight problems, including double vision, told by GP to see an Optician.

Update...

Neuralgia

Doctor dismissed my pernicious anemia claims.

GP offered me B12 injections - yay!!!!

leg pains and weird body thermostat

Extreme foot pain day of injection.

Average diagnosis time

Dry and cracked tongue

Advise please

Anti parietal cell positive

Update - had to go to A&E yesterday

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