Dry and cracked tongue: I have b1... - Pernicious Anaemi...

Pernicious Anaemia Society

32,672 members24,065 posts

Dry and cracked tongue

Chocolate41 profile image
9 Replies

I have b12 injections every I2 weeks.I know I need them every 8 weeks as my symptoms return.I have asked him whether I could have them 8wkly but he won't hear of it.

I now have a sore dry cracked tongue.I do supplement with the spray on and off for the last four.Does anyone out there have these symptoms.

Thank you in advance. Xx

Written by
Chocolate41 profile image
Chocolate41
To view profiles and participate in discussions please or .
Read more about...
9 Replies
shuvs profile image
shuvs

I suffered very badly from a sore cracked tongue end of 2014 before I was aware I was b12 deficient. I have not been diagnosed definitely with PA so not getting injections but my mouth problem did improve once taking oral supplements. Not much help to you I know sorry but I have definitely read it is a symptom of PA

Chocolate41 profile image
Chocolate41 in reply toshuvs

Thanks for the quick reply shuvs.maybe I need some folic acid as well

Chocolate41 profile image
Chocolate41 in reply toshuvs

What supplements did you take Shuvs.

shuvs profile image
shuvs in reply toChocolate41

Doc put me on 50 mcg b12 tablets which gave me a brief relief of symptoms. I have seen on here some people talking about taking lozenges in between their injections and wondered if these would perhaps help your mouth. I understand how uncomfortable it can be

pvanderaa profile image
pvanderaa

I was initially diagnosed from geographic tongue with big red spots.

I kept a logbook and assessed a severity score for each of my many symptoms and discussed this with my doctor. Initially he treated me like a hypochondriac and treated my "anxiety" with an antidepressant which actually made matters worse.

Unfortunately this is a pitfall that you have to avoid.

He finally was willing to try changing from 3 months to 2 months on the Hydroxocobalamin. And a couple of months later increased it to monthly injections.

I used the same technique when I moved to the states and changed to cyano. I went from monthly to fortnightly and then to weekly over s six month period. Now I self inject.

Good luck

plug profile image
plug

request appointment with heamatology consultant, let G.P. know you are serious about getting symptoms under proper control and feeling better without the dip between injections.

i was first put on 3 monthly, then consultant said 6 weekly, felt great. Then moved GP and put back to 12wk, argued down to 10wk, argued some more 8wk asked for hospital appointment, consultant put me back on 6wk to 8wk as required, said injections should never have been moved about regardless of the blood results.

good luck hope you get your 8wks.

Polaris profile image
Polaris

Sister found supplementing daily with Jarrows Methylcobalamin 5000 mcg SL between injections helped sore tongue.

Chocolate41 profile image
Chocolate41

Thank you for all your comments they have all been very helpful

Good luck to all out there.and a Happy an Healthy New Year.

Xx

Sleepybunny profile image
Sleepybunny

Hi,

A split tongue was one of my earliest symptoms.

b12deficiency.info/signs-an...

Not what you're looking for?

You may also like...

Dry tongue back pain

Just me again. 😩 I keep waking up with dry mouth in the middle of the night. My tongue is red...
JBCADR profile image

Covid Tongue

I've read that B12 can causes mouth sores ect and oral thrush. Many of you have suffered this. So...
Nackapan profile image

Sore, swollen and cracked tongue due to B12 deficiency?

My tongue is sometimes swollen. It has cracks down the middle and is sore most of the time and...
D_R_ profile image

Tingly tongue?

I was wondering if anyone has experienced a tingly, numb-feeling tongue as part of low B12...
annielou19 profile image

Splits in tongue

Hi, One of my first symptoms to show was the development of splits in my tongue(fissured tongue)....
Sleepybunny profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.