I posted a month ago re worsening symptoms, thanks for those that replied. Sorry I didn't acknowledge this at the time but I am very poorly.
The main thing is I have developed a tremor and it is getting worse. I am now very aware of it. I "feel" it in my arms and a bit in my head. The pins and needles are better and tinnitus not so bad.
As suggested, I alternated my hydroxocobalamin with methylcobalamin injections, also making sure I have sublingual B12 (PAS suggested this). Taking folic acid and iron.
I don't know whether it's down to general ill health (have probable adrenal insufficiency) and feeling so utterly dreadful that it's effecting my B12 symptoms.
I just very scared now and hope this is not my life now.
Thanks in advance.
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Babygodmother
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Hi thanks I have informed my GP (I saw her last week). I changed my GP in October as my last GP ignored my pleas to treat me until an on-the-ball haematologist said that peripheral neuropathy can be caused by B12d and I should be treated. Fortunately, I was self treating at that point. But this doc said weekly injections (of course, I am doing it more than that).
All sorts of things are going through my head. I have also seen a neurologist (in Sept) who said I was "normal" (despite loads of neuro symptoms at the time).
I am an experienced nurse and have been utterly disgusted at the way every single doctor at every single turn has been totally useless in diagnosing/helping me get better. I have now been off work for 4 months and not likely to be back for ages and I may loose my job. To say my mental health is suffering is the understatement of the century. I cannot believe I am getting treated this way and their lack of empathy is astounding.
I waiting for a second opinion from another Dr.
I hope you are all doing well and thanks for your support. BG x
Hi, I also have a tremor together with B12 deficiency. My tremor has been diagnosed as Essential Tremor by a Neurologist and is not connected to my B12. I would see your GP as Chocolate41 suggests. I hope you get some answers soon. X
I have just read your post from two years ago as I was searching for info on tremors. I hope you don’t mind me asking how you are? I developed a tremour about 3 weeks ago and it is constant. It feels like I’m vibrating inside and doesn’t stop. I’d been having injections before it started. It’s incredibly scary and debilitating as I can’t function or sleep. I’m seeing a neurologist tomorrow.
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