Pernicious Anaemia Society
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Really scared as tremor getting worse

Hi all

I posted a month ago re worsening symptoms, thanks for those that replied. Sorry I didn't acknowledge this at the time but I am very poorly.

The main thing is I have developed a tremor and it is getting worse. I am now very aware of it. I "feel" it in my arms and a bit in my head. The pins and needles are better and tinnitus not so bad.

As suggested, I alternated my hydroxocobalamin with methylcobalamin injections, also making sure I have sublingual B12 (PAS suggested this). Taking folic acid and iron.

I don't know whether it's down to general ill health (have probable adrenal insufficiency) and feeling so utterly dreadful that it's effecting my B12 symptoms.

I just very scared now and hope this is not my life now.

Thanks in advance.

7 Replies

I think you need to see your GP and get a proper diagnosis.It may not be anything to do with the B12.

What ever you decide to do I wish you all the best.

Please let me know how you get on.



BG, if you're really worried as you sound get to the dr. as chocolate 41 suggests. Sorry to hear it. X

1 like

Hi thanks I have informed my GP (I saw her last week). I changed my GP in October as my last GP ignored my pleas to treat me until an on-the-ball haematologist said that peripheral neuropathy can be caused by B12d and I should be treated. Fortunately, I was self treating at that point. But this doc said weekly injections (of course, I am doing it more than that).

All sorts of things are going through my head. I have also seen a neurologist (in Sept) who said I was "normal" (despite loads of neuro symptoms at the time).

I am an experienced nurse and have been utterly disgusted at the way every single doctor at every single turn has been totally useless in diagnosing/helping me get better. I have now been off work for 4 months and not likely to be back for ages and I may loose my job. To say my mental health is suffering is the understatement of the century. I cannot believe I am getting treated this way and their lack of empathy is astounding.

I waiting for a second opinion from another Dr.

I hope you are all doing well and thanks for your support. BG x

1 like

I have tremors also. I have cervical dystonia and my head shakes but also have tremors in my body not related so wondered if it was connected to B12

I hope you get the help you need.

1 like

Hi, I also have a tremor together with B12 deficiency. My tremor has been diagnosed as Essential Tremor by a Neurologist and is not connected to my B12. I would see your GP as Chocolate41 suggests. I hope you get some answers soon. X


After 5 years of neck pain and 4 years head tremors .I finally got diagnosed with cervical dystonia


Hello Babygodmother,

I have just read your post from two years ago as I was searching for info on tremors. I hope you don’t mind me asking how you are? I developed a tremour about 3 weeks ago and it is constant. It feels like I’m vibrating inside and doesn’t stop. I’d been having injections before it started. It’s incredibly scary and debilitating as I can’t function or sleep. I’m seeing a neurologist tomorrow.

I hope you are doing well!


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