Official documentation to show doctor - Pernicious Anaemi...

Pernicious Anaemia Society

32,319 members23,535 posts

Official documentation to show doctor

Ktululady profile image
2 Replies

Hi, I am looking for official documents to show my doctor to convince her to give me injections. I thought I read somewhere that if a patient has been supplementing with B12, the test results should be ignored and the patient should be treated according to their symptoms, and they should be given injections. I can't find it anywhere, does anyone know where it is, or did I dream it?

Written by
Ktululady profile image
Ktululady
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Sleepybunny profile image
Sleepybunny

I've assumed you're in the UK.

My experience has been that supplementing myself has made it extremely difficult to get the NHS to consider I have B12 deficiency. I only self treated as an absolute last resort. The GPs point to the very high levels of b12 I have and say that I have more than enough B12. I wonder if I made the right decision to treat myself and sometimes consider coming off the B12 for several months.

In my experience there are a fair number of medics who are not aware of recent documents that emphasise treating symptoms rather than just blood results.

"that if a patient has been supplementing with B12, the test results should be ignored and the patient should be treated according to their symptoms"

Think there is something similar to this in the "BCSH Cobalamin and Folate Guidelines" but I think that it refers more to patients who have received NHS injections/supplements than those who have treated themselves.

Documents I found useful

1) BCSH Cobalamina nd Folate Guidelines

Lengthy document. PAS have a summary of this in library section on website.

2)bmj.com/content/349/bmj.g5226

3)ukneqas-haematinics.org.uk/...

pernicious-anaemia-society.... 01656 769467

b12d.org

b12deficiency.info/

Ktululady profile image
Ktululady in reply to Sleepybunny

Thank you, I have printed some of this to show her.

Not what you're looking for?

You may also like...

Wheres my delivery

Has anyone had trouble with Apohealth? My order status hadn't changed since I ordered it just says...

Vit D

Does anyone have any idea what's so ever why I can not tolerate vit D supplements. I'm low in vit...

Hi Again - b12 and Peripheral Neuropathy (PN) - its wasnt the Alcohol?

Hi again lovely folks, and a big thanks to those "constant" heroes in this forum; who stick around...

Gluten and B12 deficiency

Is there a link between B12 deficiency and gluten sensitivity? My neuropathy has massively improved...

AUGH!

I have been battling for about 10 years with numerous health issues and was finally diagnosed about...