Hello, I was diagnosed with PA around August 2014 after suffering with symptoms for years. They gave me 6 injections every 2/3 days for 2 weeks, and said I will be on them for the rest of my life. I began feeling unwell again after about 4/5 weeks and went back to the doctor who sent me for a blood test to see again how much B12 I had in my system, it came back as over 500 ng/L to which the doctor said I had enough. My daughter alerted me to posts on a PA facebook group, and have learned since although my body may appear to have enough B12 it is not absorbing it (I also take Metformin). Therefore I decided to self inject.
What is really worrying is the fact that no one from the surgery has got in touch with me for the follow up injections for every 3 months. If my daughter had not alerted me to the correct treatment guidelines I should be taking and do take now, what kind of state would I be in at present ?! Luckily I was made aware and had access to the information but what about the people who are not informed ?
Awareness should be raised amongst the medical community and they should adhere to treatment guidelines about Pernicious Anemia.
I think this should be compulsory.