Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for January 2015

Have Your Say About Your Treatment!

Despite opinion to the contrary, it is possible to have your say about the treatment you receive from your doctor on a public forum. I've put in a link to my...

Despite opinion to the contrary, it is possible to have your say about the treat...

•9 years ago

feeling depressed

im having my 3 monthly injections from the dr and im also administering my own. im having b12 regularly however I still feel so low in energy and in mood. is...

im having my 3 monthly injections from the dr and im also administering my own. ...

•9 years ago

body odour changed? check this list...

Just posting this quickly as am already pooped / headache, but I was looking to see why my sweat had changed to something intolerable ( cabbages) and was all...

Just posting this quickly as am already pooped / headache, but I was looking to ...

•9 years ago

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Letter to your M.P.

Have you all downloaded the letter to your M.P. inviting him to attend the Pernicious Anaemia Societys' presentation on February 3rd in the House of Commons?...

Have you all downloaded the letter to your M.P. inviting him to attend the Perni...

•9 years ago

Pregnancy & B12

Hello, sorry for following up my introduction with another post immediately (looking needy, anyone?), but I have some pretty specific questions. I'm hoping...

Hello, sorry for following up my introduction with another post immediately (loo...

•9 years ago

Introduction

Hi all, I'd like to introduce myself. Yesterday, I had another B12 shot at the GP's office. I knew it was overdue, because the pins and needles are in...

Hi all, I'd like to introduce myself. Yesterday, I had another B12 shot at the ...

•9 years ago

MMA urine test

Hi all, does anyone know how accurate the MMA urine test is?

Hi all, does anyone know how accurate the MMA urine test is?

•9 years ago

Whooping Cough Jab

Hi Has anyone with Hypothyroidism and PA had the Whooping Cough Jab whilst pregnant? Just wondered if any side effects etc. I know the jab is very new so it's...

Hi Has anyone with Hypothyroidism and PA had the Whooping Cough Jab whilst pregn...

•9 years ago

Help

Hi I wonder if someone can help I was diagnosed with PA 5 years ago as my mum also has the condition and have been advised this is hereditary but my doctor has...

Hi I wonder if someone can help I was diagnosed with PA 5 years ago as my mum al...

•9 years ago

Part of the package

It is an unfortunate reality that having a B12 deficiency comes with the added burden of having to educate what feels like everyone about the neurologic...

It is an unfortunate reality that having a B12 deficiency comes with the added b...

•9 years ago

Readings mean what?

Recently diag. as PA but told my readings were just off normal. Had booster followed by 1st 3-monthly B12 injection. Got a print out which shows " B12 level...

Recently diag. as PA but told my readings were just off normal. Had booster fol...

•9 years ago

B12d, FM, VitD or all three???

I am finding it impossible to figure out what is going on inside me. :-( I had blood test results in November 14 showing that my B12 level was at 1509 in ref...

I am finding it impossible to figure out what is going on inside me. :-( I had...

•9 years ago

Jaw pain

Hi to all, I have suffered from B12 deficiency for almost 10 years now and do daily injections. I cannot go for more than a few days without supplementation....

Hi to all, I have suffered from B12 deficiency for almost 10 years now and do da...

•9 years ago

Can b12 deficiency cause significant hair loss ?

Hi, I am a 34 years old man who was diagnosed with significant Vitamin B12 deficiency. I have many symptoms and have discussed them in my first question. But...

Hi, I am a 34 years old man who was diagnosed with significant Vitamin B12 defi...

•9 years ago

Some help please.i

I have been supplementing with sublingual b12. I have managed to raise my levels from 250 to 2000. Had bloods drawn a week ago and doc has phoned very...

I have been supplementing with sublingual b12. I have managed to raise my levels...

•9 years ago

Sub-cut or intramuscular?

I've just completed my loading dose of 6 injections over two weeks. I saw two different nurses over the two weeks and interestingly, one gave my injections IM...

I've just completed my loading dose of 6 injections over two weeks. I saw two di...

•9 years ago

Pins & Needles & tingling

I saw the neurologist who said my pins & needles and tingling were the wrong sort for it to be caused by B12 So what are the right sort?

I saw the neurologist who said my pins & needles and tingling were the wrong sor...

•9 years ago

Testing for B12

How long does it take to get blood test results ? After a long battle with my GP finally was told the two blood tests would be undertaken to test for B12...

How long does it take to get blood test results ? After a long battle with my ...

•9 years ago

Folic Acid

What strength do people use when taking folic acid, the pharmacist advised 5mg if you are on B12 injections, but I've been told that this strength is...

What strength do people use when taking folic acid, the pharmacist advised 5mg i...

•9 years ago

How much are your levels supposed to rise to after getting your loading injections?

Hi, I was diagnosed with PA with a b12 level around 140 (150-900). I had 6 loading injections over 2 weeks and 6 weeks after my last loading injection I had my...

Hi, I was diagnosed with PA with a b12 level around 140 (150-900). I had 6 loadi...

•9 years ago

Self Injecting......

I was diagnosed with PA approximately 4 years ago and have been self injecting for about 6 months now (due to crap GP) at a rate of 1 every 3 weeks. I feel...

I was diagnosed with PA approximately 4 years ago and have been self injecting f...

•9 years ago

Vitamin D3 - higher dosage recommended

Really interesting video on vitamin D3. Apparently, most of us are now deficient and we are not taking enough. Gives advice on safe higher doses....

Really interesting video on vitamin D3. Apparently, most of us are now deficie...

•9 years ago

Stepping Down

I've decided today to take a step back from the boards. I hope you all appreciate that this illness has, as it has for many of you, reduced not only my...

I've decided today to take a step back from the boards. I hope you all apprecia...

•9 years ago

Petition and video

Hi, i have spent today resting and catching up on some posts here, motivated by the fact that i have a cold and am well aware that the virus might deplete my...

Hi, i have spent today resting and catching up on some posts here, motivated by ...

•9 years ago

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Impact

I'm looking for people who are willing to describe in one sentence the impact ignorance has had on their lives. I'm not looking for 'your story,' or personal...

I'm looking for people who are willing to describe in one sentence the impact ig...

•9 years ago

Cyanocobalamin-- migraines? toxicity?

Anyone know if there more of a prevalence of chronic frequent (ex 2-3 times per week) migraines with cyanocobalamin injections versus other forms of cobalamin?...

Anyone know if there more of a prevalence of chronic frequent (ex 2-3 times per ...

•9 years ago

B12 ranges

Hi all I've been battling with my doctor about my B12 injections, I have PA, my levels were 112, I had my 6 loading injections and was told I would need them...

Hi all I've been battling with my doctor about my B12 injections, I have PA, my...

•9 years ago

Muscle Fasciculations or Spasms

I was reading the other night about someone with muscle fasciculations - the things we would normally refer to as spasms and which usually occur after...

I was reading the other night about someone with muscle fasciculations - the thi...

•9 years ago

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MCV in Blood count outside range? B defficeny? What now?

Hi everyone. I orgionally posted on here a while ago as Ive had a number of different symptoms and have thought it could be a B deficency. Anyway, I had an...

Hi everyone. I orgionally posted on here a while ago as Ive had a number of diff...

•9 years ago

Revenge?

"Never take kindness for weakness" Bear the above in mind before reading this post. During the last 5 years my path has crossed some of the nastiest people I...

"Never take kindness for weakness" Bear the above in mind before reading this p...

•9 years ago

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Pinned Posts

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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