I am finding it impossible to figure out what is going on inside me. I had blood test results in November 14 showing that my B12 level was at 1509 in ref range of 191 - 663. This was 2 weeks after a 3 x monthly B12 injection. At the same time my intrinsic factor was tested and found to be normal. Ok, so my GPs words were "you do not have PA as your intrinsic factor is normal and you have enough B12 for 3 people". I reminded him it was himself who had diagnosed by PA in 2007 and had told me then that my body wasn't absorbing B12 and I would need injections for life. I asked why then had I been put on injections and had no discussion around other forms of treatment eg diet and oral supplements. His reply was “Well I must have got it wrong”. Shocked, Angry and Confused are all understatements!!
I also had a private "Active" B12 test done at the Nutristatis Unit at St. Guys Hospital (Oct 14) and the result from that was 76 pmol/L (Ref range 25 - 108)
Ever since my PA diagnosis I have felt that the B12 injections were not providing any benefit and that I was getting worse instead of better. Eventually I was also diagnosed with Fybromyalgia in 2012. Following what has been, for me, a steady decline GP finally referred me to Endocrine clinic which at my hospital is the Chronic Fatigue Syndrome clinic (Got told it is same thing). I won't argue with that because I cannot remember the last time when I felt normal. Tiredness and exhaustion are part of my life. Anyway, Endo ordered Synacthen test (Adrenal), B12, Folate, TSH, Prolactin, Testosterone, SHBG, Magnesium and Bone Profile. My follow up appointment is 21st of this month and I will be asking for a copy of all results. The only results I have so far are the Synacthen (result normal) and Vit D. My Vit D measured at 21 and GP informs preferred level is about 70. So, I am now taking Adcal D3 Caplets (Calcium Carbonate 750mg and vitamin D3 200 i.u.) not sure what this means but am taking one in the morning and another at tea time as well as Naproxen 250 one tablet twice daily, Amytriptyline 50 mg 1 tablet once daily at night, Fluoxetine 20mg 2 tablets once daily, Aspirin 75mg 1tablet daily, Atorvastatin (high Cholosterol) 1 tablet every night and Omeprazole 20 mg 1 tablet daily. I try very hard to just get on with life but this is now interfering with work (office worker) as i am having to take time of "Sick" more frequently am generally not depressed but am I kidding myself?? GP said Fluoxetine is to help lift pain threshold of FM which is constant but I note this is also prescribed for depression. Have also been prescribed Co-Codamol as and when needed. To cap it all my husband is getting fed up with disturbed nights because of my "noises" which he seems to think is a mixture of groaning and snoring as well as the heat that comes off me (I know, I'm just a bit of hot stuff!! ). Joking aside I regularly have night sweats that render me soaking and occasionally am not sure if it is sweats or losing urine. (PJ bottoms wet but sheet ok)
I know others on this forum, Thyroid and FM forums can empathise with some parts of this but not sure if this is common with other sufferers. I would love to hear that I am not alone in this and I am not going mad???