Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for March 2018

The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) launch a new report

The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) launched a new report today, highlighting the needs of people living with non-genetic rare diseases...

The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) launched a new report to...

Volunteer•6 years ago

Vaculitis...

Hi, I am 25 years old and was diagnosed with rheumatoid arthritis 5 years ago. It was never a very big thing for me until last year when I had vaculitis in my...

Hi, I am 25 years old and was diagnosed with rheumatoid arthritis 5 years ago. ...

•6 years ago

Prednisone

Can prednisone cause low blood pressure ! And because I have an underlying illness I have no way of raising it myself, because if I do I get infections or...

Can prednisone cause low blood pressure ! And because I have an underlying illn...

•6 years ago

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Maybe it really is anxiety?

My rhumatologist suggested to me today that I should see a shrink. Not the answer I was wanting. She saws no more tests because I have already had too many....

My rhumatologist suggested to me today that I should see a shrink. Not the answ...

•6 years ago

Any suggestions please,

I was diagnosed with Wegeners Ganulomatosis last year and ended up in intensive care for several weeks, my lungs and kidneys were the main areas affected. The...

I was diagnosed with Wegeners Ganulomatosis last year and ended up in intensive ...

•6 years ago

Tapering from Prednisone

I have a question....if the doctor tapers from Prednisone too quickly and one has a small flare up, how is that usually adjusted in your experience? Thanks for...

I have a question....if the doctor tapers from Prednisone too quickly and one ha...

•6 years ago

Ongoing fatigue post chest infection

Just need some advice please. I was admitted to hospital after 3 weeks of having a chest infection, hacking cough and feeling poorly. I had 6 days of IV...

Just need some advice please. I was admitted to hospital after 3 weeks of having...

•6 years ago

Merseyside Cheshire & N Wales VSG

Our next Meeting is on March 27th at 1pm in the Linda McCartney Education Centre at the Royal Liverpool Hospital Prescot St Liverpool L7 8XP. Details of the...

Our next Meeting is on March 27th at 1pm in the Linda McCartney Education Centre...

•6 years ago

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Continuing 'Toilet Troubles', maybe a poll?

I wrote a 'Post', a while ago now, regarding 'Toilet Problems'- Primarily Constipation. I received a number of replies, to my question, on this subject. From...

I wrote a 'Post', a while ago now, regarding 'Toilet Problems'- Primarily Consti...

•6 years ago

MMF Withdrawals or not

Diagnosed with MPA wegners with CKD 3 years ago and having been on prednisolone with mycophenolate over the last two years, then tapered off the pred, and now...

Diagnosed with MPA wegners with CKD 3 years ago and having been on prednisolone...

•6 years ago

Oppressive consultant

I was diagnosed with cerebral vasculitis 2007 after two years getting progressively more poorly. Although my consultant at the time said there was a 5 percent...

I was diagnosed with cerebral vasculitis 2007 after two years getting progressiv...

•6 years ago

GPA and lower back muscle spasms

I was diagnosed with Granulomatosis with Polyangiitis (GPA) Last August and had 3 high doses of steroids and 3 lots of Cyclophosmahide at 3 week intervals, the...

I was diagnosed with Granulomatosis with Polyangiitis (GPA) Last August and had ...

•6 years ago

Adult HSP iga nephropathy

Hello So i have been given a diagnosis of adult HSP vasculitis with associated kidney damage. Current treatment is to protect the kidneys from further damage...

Hello So i have been given a diagnosis of adult HSP vasculitis with associated k...

•6 years ago

Interesting abstract!

Came across this abstract into CT/PET and diagnosis of large vessel Vasculitis, it also looks at how useful it is to predict relapse. Unfortunately can’t seem...

Came across this abstract into CT/PET and diagnosis of large vessel Vasculitis, ...

•6 years ago

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