Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for November 2017

Numb chin and bottom lip

Evening all. I'm waiting for a hospital appointment to have 4 teeth removed. One tooth bottom right is quite severe and whilst obviously painful, I'm more...

Evening all. I'm waiting for a hospital appointment to have 4 teeth removed. One...

•7 years ago

Change of diagnosis

I noticed on my latest consultant's report that my diagnosis has changed from GCA to systemic vasculitis. Can someone explain what systemic actually means...

I noticed on my latest consultant's report that my diagnosis has changed from GC...

•7 years ago

Any night owls out there?

I would like to know if anyone else who has Cutaneous Vasculitis lays awake at night or has to get up becuase of discomfort with itching/rash or pain? Was in...

I would like to know if anyone else who has Cutaneous Vasculitis lays awake at n...

•7 years ago

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CNS Vasculitis

Following I had an unruptured brain aneurysm clipped 5 years ago. Things went well till 2 years ago. I have brain inflammation at the gauzed wrapped site where...

Following I had an unruptured brain aneurysm clipped 5 years ago. Things went we...

•7 years ago

immunoglobulin replacement therapy

I have an immunology appointment on Monday with a view to me starting immunoglobulin replacement treatment as I keep getting chest and sinus infections. My...

I have an immunology appointment on Monday with a view to me starting immunoglob...

•7 years ago

In Early Stages of Testing for Wegeners

So, I recently had a sinus infection which is only the second one I had in my life. Im 59. Sinus infection cleared completely. I seem to have some pressure...

So, I recently had a sinus infection which is only the second one I had in my l...

•7 years ago

Postgraduate Study and Chronic Pain Study

For those of you who are postgraduate students, you might be interested in a survey regarding how chronic pain affects the postgraduate study experience. I...

For those of you who are postgraduate students, you might be interested in a sur...

•7 years ago

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Probably NOT quite relevant here but.......

This ISN'T really related here but.... I received a phone call, about twenty minutes ago, which I missed (in the loo, as always!). When I called 1471 it had...

This ISN'T really related here but.... I received a phone call, about twenty min...

•7 years ago

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Dry eyes and mouth

As many of you know I am part of the VUK Helpline team and we definitely have trends around the type of calls we receive. I have noticed an increase in the...

As many of you know I am part of the VUK Helpline team and we definitely have tr...

•7 years ago

Prednisone & Belly fat & Bloat

Hi I’m new here...I have Atypical anti-GBM disease I have been on 80mg of Prednisone for the last 4 months . I too have the extremely big & hard belly it is so...

Hi I’m new here...I have Atypical anti-GBM disease I have been on 80mg of Predni...

•7 years ago

20 years since cerebral vasculitis diagnosis

Just blogged this. I've been ill for 23 years, but always remember 5th November as "my" anniversary, because that was the day I had the huge battery of tests....

Just blogged this. I've been ill for 23 years, but always remember 5th November ...

Volunteer•7 years ago

Flu vaccine and disease progression

Yesterday I had my first flu vaccine in nearly a decade. Woot! Much better than keeping getting flu, and now I'm finally allowed again by the rheumatologists,...

Yesterday I had my first flu vaccine in nearly a decade. Woot! Much better than ...

Volunteer•7 years ago

Giant Cell Arteritis - Tocilizumab - NICE

If you have had any experience of being treated with Tocilizumab for GCA/TA - favourable or unfavourable then please can you contact, me, John Mills ASAP...

If you have had any experience of being treated with Tocilizumab for GCA/TA - fa...

Volunteer•7 years ago

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