Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,793 members • 6,801 posts

All posts for May 2014

All about steroids

On the V-UK Facebook site there has been lots of discussion about Prednisolone and steroid reduction. Just a reminder that there is an excellent PDF containing...

On the V-UK Facebook site there has been lots of discussion about Prednisolone a...

PatriciaAnn

•10 years ago

3 Replies

Going into hospital for surgery consultant said he would keep it as short as possible but still worried with Vasculitis and GCA

Plus auto immune doubt Whether surgeon is used to operating with these conditions.... anyone been through this and come out other end in one piece? Any advice...

Plus auto immune doubt Whether surgeon is used to operating with these condition...

shella

•10 years ago

8 Replies

hi all just want a bit of advice to see if its wg

on left side of my face my head hurts like a headache sore eye mouth ulcer and face feels tender to touch.just wondered if its the disease or a virus thanks

on left side of my face my head hurts like a headache sore eye mouth ulcer and f...

tracey65

•10 years ago

3 Replies

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Managing Chronic Pain (The Scottish Intercollegiate Guidelines Network (SIGN) ) December 2013

The Scottish Intercollegiate Guidelines Network (SIGN) writes guidelines which give advice for healthcare professionals, patients and carers about the best...

The Scottish Intercollegiate Guidelines Network (SIGN) writes guidelines which g...

John_Mills

Volunteer•10 years ago

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Best place to live

Before I was diagnosed with WG in 2012 my husband and I was looking to move to France or Italy. That was put on hold while I was so poorly however I'm now...

Before I was diagnosed with WG in 2012 my husband and I was looking to move to F...

Doghouse

•10 years ago

7 Replies

New here

Hi I'm Monique from the Netherlands and diagnosed with vasculitis takayasu a few months ago. I want to know and learn how other people deal with this strange...

Hi I'm Monique from the Netherlands and diagnosed with vasculitis takayasu a few...

Mootje1967

•10 years ago

12 Replies

Up to date Vasculitis UK Support Group Meetings and Events page 2014 from the Vasculitis UK website.

http://www.vasculitis.org.uk/events

Suzym2u

Moderator•10 years ago

1 Reply

As it is Vasculitis Awareness month I thought I might share the Media Page on the Vasculitis UK website.

http://www.vasculitis.org.uk/living-with-vasculitis/vasculitis-in-the-media

Suzym2u

Moderator•10 years ago

3 Replies

Friday 16th May/Sunday 18th May the UK Ghostbusters will be at "Collectormania" in Milton Keynes, fundraising for Vasculitis UK

http://www.vasculitis.org.uk/events/ghostbusters-milton-keynes

Suzym2u

Moderator•10 years ago

2 Replies

Was anyone misdiagnosed with carpal tunnel syndrome and migraines?

I have urticaria, numb fingers when driving,writing, hands by sides, at night and headaches every day. Urticaria lasts approx 48 hours and leaves a mark. I am...

I have urticaria, numb fingers when driving,writing, hands by sides, at night an...

vickylou01

•10 years ago

15 Replies

Benefits and Work 30th April 2014 newsletter

SURVIVING LIFE ON BENEFITS We’ve had well over 500 replies to our question about what advice you would give to people new to claiming benefits....

SURVIVING LIFE ON BENEFITS We’ve had well over 500 replies to our question about...

Suzym2u

Moderator•10 years ago

4 Replies

Rituximab

Got to have 2 infusions of ritux 2 weeks apart ,ive had 6 inf of cyclophosphamide ,had flere with eyesight.On 30mg pred daily and 25mg injection of...

Got to have 2 infusions of ritux 2 weeks apart ,ive had 6 inf of cyclophosphamid...

mickt

•10 years ago

1 Reply

I am reducing my prednisolone which have been on for 3years,how do I know my adrenal glands will work,am also on methotrexate too?

Hidden

•10 years ago

6 Replies

Runner up CAT t shirt for vasculitis awareness month.

This t shirt is only available for the month of May 2014. Cats face designed by Kelly , words written by Lindsay and Janette, this t shirt is the same price...

This t shirt is only available for the month of May 2014. Cats face designed by ...

Suzym2u

Moderator•10 years ago

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Vasculitis Awareness month CAT t shirt is now available

This t shirt is only available for the month of May 2014. Cats face designed by Kelly , words written by Derek :-) this t shirt is the same price as the...

This t shirt is only available for the month of May 2014. Cats face designed by ...

Suzym2u

Moderator•10 years ago

4 Replies

a nice thought (pic)

sweet

hamble99b

Volunteer•10 years ago

4 Replies

Sad story but interesting for us maybe?

http://www.dailymail.co.uk/health/article-2621457/We-thought-daughter-cold-dead-weeks-later-blood-poisoning-Family-lost-gorgeous-five-year-old-girl-warn-parents

http://www.dailymail.co.uk/health/article-2621457/We-thought-daughter-cold-dead-...

luggsey

•10 years ago

3 Replies

House on sky today. at 7pm

House is on at 7 on sky atlantic. it's the one with the person with WG/GPA. it's on +1 at 8. Or tuesday at 2pm.

House is on at 7 on sky atlantic. it's the one with the person with WG/GPA. it'...

hamble99b

Volunteer•10 years ago

5 Replies

2 weeks ago I stopped taking Methotrexate 25mg by s/c injection ( it was wearing off after 5 days ) and have switched to mycophenolate.

I am taking 500 mg of MMF twice daily and will increase it in 2 weeks time, I am also on pred 8mg. Have gradually become more symptomatic again, headaches,...

I am taking 500 mg of MMF twice daily and will increase it in 2 weeks time, I am...

Hidden

•10 years ago

16 Replies

What symptoms have people experienced on coming off Prednisone after a long period of time.

archie2

•10 years ago

8 Replies

Me n my boyfriend have this rash / spots any ideas what it is

Around tummy and top of legs

Hender79

•10 years ago

5 Replies

Relaxation and meditation music

Jacqui Moran (one the of the V-UK Trustees) has opened a Facebook page which contains music to relax to, to meditate with or just to chill. You will find the...

Jacqui Moran (one the of the V-UK Trustees) has opened a Facebook page which con...

PatriciaAnn

•10 years ago

1 Reply

Swollen and painful hands

I suffered an occlusion in a blood vessel (eye) last year and was prescribed fragmin, steroids and calcium. After treatment and tests etc I reduced the drugs...

I suffered an occlusion in a blood vessel (eye) last year and was prescribed fra...

zin123

•10 years ago

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I had my first apt with consultant in October after a year of being ill,first they said symptoms to wegners ,then symptoms to churg Strauss

Then put me on azathioprine now when I ask about diagnosis they just say p-ANCA positive small vessels vasculitis or systemic vasculitis. Should I get them to...

Then put me on azathioprine now when I ask about diagnosis they just say p-ANCA ...

shakeel1

•10 years ago

5 Replies

second question,why do different doctors tell you different things?can you have the test to see if your adrenal glands are working or not.

one doctor says he can prescribe me slimming tablets,another says they would be bad for my liver..confused is not quite the word

one doctor says he can prescribe me slimming tablets,another says they would be ...

gsmith

•10 years ago

5 Replies

two questions why do doctors try to treat you for something you don't have? one tried sleep apnoea when I was exhausted getting ready to

move house. and several insist I need blood pressure tablets .my blood pressure is fine exept when after a long wait I get seconds with my rheumatologist and...

move house. and several insist I need blood pressure tablets .my blood pressure ...

gsmith

•10 years ago

1 Reply

May Is Vasculitis Awareness Month

In the FB support group a lovely lady called Kelly has been sharing graphics with everyone to raise awareness for Vasculitis. They are all really very good, so...

In the FB support group a lovely lady called Kelly has been sharing graphics wit...

Suzym2u

Moderator•10 years ago

5 Replies

Hi, Ive had urticarial vasculitus for 3 years.. My sister was diagnosed with the same condition last week.. I thought this was not genetic..

Is there other siblings with it.. ???

anngie

•10 years ago

5 Replies

British Society of Rheumatologists Annual Conference 30th Anniversary Liverpool 2014.

Some of the Trustees of Vasculitis UK attended the conference for the first time this year. There is a brief summary available on the BSR website, further...

Some of the Trustees of Vasculitis UK attended the conference for the first time...

Suzym2u

Moderator•10 years ago

Be the first to reply

Vasculitis Awareness Month

Do you want some ideas about how you can help to raise awareness of vasculitis during May (Vasculitis Awareness Month). Then look no further than:...

Do you want some ideas about how you can help to raise awareness of vasculitis ...

PatriciaAnn

•10 years ago

Be the first to reply

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for May 2014

All about steroids

Going into hospital for surgery consultant said he would keep it as short as possible but still worried with Vasculitis and GCA

hi all just want a bit of advice to see if its wg

Managing Chronic Pain (The Scottish Intercollegiate Guidelines Network (SIGN) ) December 2013

Best place to live

New here

Up to date Vasculitis UK Support Group Meetings and Events page 2014 from the Vasculitis UK website.

As it is Vasculitis Awareness month I thought I might share the Media Page on the Vasculitis UK website.

Friday 16th May/Sunday 18th May the UK Ghostbusters will be at "Collectormania" in Milton Keynes, fundraising for Vasculitis UK

Was anyone misdiagnosed with carpal tunnel syndrome and migraines?

Benefits and Work 30th April 2014 newsletter

Rituximab

I am reducing my prednisolone which have been on for 3years,how do I know my adrenal glands will work,am also on methotrexate too?

Runner up CAT t shirt for vasculitis awareness month.

Vasculitis Awareness month CAT t shirt is now available

a nice thought (pic)

Sad story but interesting for us maybe?

House on sky today. at 7pm

2 weeks ago I stopped taking Methotrexate 25mg by s/c injection ( it was wearing off after 5 days ) and have switched to mycophenolate.

What symptoms have people experienced on coming off Prednisone after a long period of time.

Me n my boyfriend have this rash / spots any ideas what it is

Relaxation and meditation music

Swollen and painful hands

I had my first apt with consultant in October after a year of being ill,first they said symptoms to wegners ,then symptoms to churg Strauss

second question,why do different doctors tell you different things?can you have the test to see if your adrenal glands are working or not.

two questions why do doctors try to treat you for something you don't have? one tried sleep apnoea when I was exhausted getting ready to

May Is Vasculitis Awareness Month

Hi, Ive had urticarial vasculitus for 3 years.. My sister was diagnosed with the same condition last week.. I thought this was not genetic..

British Society of Rheumatologists Annual Conference 30th Anniversary Liverpool 2014.

Vasculitis Awareness Month

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