Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for October 2011

Am about to have my first Rituximab infusion,what can i expect? How long do infusions last? What do you have with them?

Is there anything i should do to prepare my body? Having breathing difficulties,and a PVC will i have a problem breathing during infusion? Anyone had...

Is there anything i should do to prepare my body? Having breathing difficulties,...

•13 years ago

Has anyone with any type of vasculitis suffered a Carcinoma of the bladder due to the side effects of the Cyclophosphamide?

Volunteer•13 years ago

Please take time to read Rebecca's story .Rebecca is running in memory of her mother who died earlier this year of Vasculitis.

Rebecca's mum died earlier this year of Vasculitis but it was not diagnosed until after her mum's death. We are told by Vasculitis Experts people should not be...

Rebecca's mum died earlier this year of Vasculitis but it was not diagnosed unti...

Volunteer•13 years ago

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I have been taking antibiotics for a reaccuring tooth infection but have noticed that there has been an increase in pains in my joints.

I am currently taking prednisolone and mycrofenolate and simvastain, I have been diagnosed with WG for approxamatly two and a half years, I am due for another...

I am currently taking prednisolone and mycrofenolate and simvastain, I have been...

•13 years ago

The ANCA Vasculitis Story The first 40 minutes is introductions. Starts about 40 minutes into it.

The ANCA Vasculitis Story http://www.youtube.com/watch?v=0J1uinFouTk

The ANCA Vasculitis Story http://www.youtube.com/watch?v=0J1uinFouTk

•13 years ago

Discovery Channel Videos: Physician Ed: Vasculitis

http://dsc.discovery.com/videos/physician-ed-vasculitis.html

http://dsc.discovery.com/videos/physician-ed-vasculitis.html

•13 years ago

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Vasculitis Support Group West Midlands (VSGWM) Meeting will be held on Sunday 23rd October at the Hilton Birmingham Bromsgrove Hotel.

The speakers/topics: Dr David Carruthers - topic... Diagnostic Tests for Vasculitis and Dr Andrew McClean - topic....Research into Fatigue and vasculitis...

The speakers/topics: Dr David Carruthers - topic... Diagnostic Tests for Vasculi...

Volunteer•13 years ago

Is anyone else taking Colchicine?

After seeing a Behcet's specialist last week I've been prescribed a drug called Colchicine and just wondered if anyone else is on/ has taken this drug and, if...

After seeing a Behcet's specialist last week I've been prescribed a drug called ...

Kelly_Jefferies

•13 years ago

How to cope with a cold?

This may seem trivial but I was wondering what advice anyone has on dealing with being ill on top of the vasculitis. I have my first cold since being diagnosed...

This may seem trivial but I was wondering what advice anyone has on dealing with...

•13 years ago

Renal PatientView Plus a Cheerfull note

I see a specialist at the Royal Preston renal dept., I have Microscopic polyangiitis affecting my kidneys, I have found very helpfull the fact that on a...

I see a specialist at the Royal Preston renal dept., I have Microscopic polyangi...

Tony-LakeDistrict

•13 years ago

Yorkshire Support Group Meeting Today

I'd just like to say a huge thank you to Pat, Holly, Carl, Wayne et al for organising today's meet in Doncaster and to Dr Stevens (Consultant Rheumatologist...

I'd just like to say a huge thank you to Pat, Holly, Carl, Wayne et al for orga...

•13 years ago

I have a swelling under my left eye today, is this vasculitis related ?

I have woken up with swelling under my left eye today. I have saddle nose deformity and I am unsure if it's related to that. Has anyone else experienced this...

I have woken up with swelling under my left eye today. I have saddle nose deform...

•13 years ago

What is P-ANCA Vasculitis ?

Is this linked with a syndrome ? If so what one's? Or is this just a condition by it's self. What does one suffer from this condition? Can it become negative?...

Is this linked with a syndrome ? If so what one's? Or is this just a condition b...

•13 years ago

Webinar 2..Lauren Currie Twilight Foundation Trust Next Webinar November 16th 2011

Guest speakers are:- Dr Brian Neilly (Glasgow Infirmary) will discuss the effects on the lungs wuth WG. John Mills...

Guest speakers are:- Dr Brian Neilly (Glasgow Infirma...

Volunteer•13 years ago

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P-ANCA positive can it happen by fluke?

Hello. I was diagnosed as CNSV because of symptoms, a SPECT scan showing reduced blood flow in areas of the brain and a positive P-ANCA. I had chemo and taking...

Hello. I was diagnosed as CNSV because of symptoms, a SPECT scan showing reduced...

•13 years ago

I have been on 12.5mg methotrexate for 9/10yrs for smouldering Wegener's. Has anyone else been on this for a long time.

I have SOB but x ray on chest is clear and my hair is very thin now. Any comments would be very welcome. Thank you.

I have SOB but x ray on chest is clear and my hair is very thin now. Any comme...

•13 years ago

Why do we crash when we do things

I have been feeling so much better recently, after rituxan treatment. My head ears loints, lungs working so much better. Then spent a few days away, and a...

I have been feeling so much better recently, after rituxan treatment. My head e...

•13 years ago

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