sildenafil

[Enjoyswalking]

hi

I have raynauds and been diagnosed with a mild connective tissue disorder. I’m currently on 50 mg sildenafil 3 times a day - morning, lunchtime and bedtime but it hasn’t helped at all. I’ve tried hydroxychloroquine and fluoxetine but no help either. It effects by hands and toes. The fingers on my right hand are very swollen especially my index finger. The colour is very often purple and so painful. What are the alternatives? I’m seeing my rheumatologist in a few weeks

[Midgebite21]

The medication is only part of the story I’m afraid. I’m 52 have had Raynauds since a teenager and diagnosed with limited systemic sclerosis (scleroderma) at 30. I’m on nifedipine. It does help with the severity and duration of an attack but doesn’t prevent them. I therefore mitigate my risks of attacks by still wearing multiple layers to keep core temperature up. Avoid winds and drafts as much as possible but living in Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 it’s not easy. Always have gloves(even in summer). My socks are merino wool and I have shearling lined boots in winter. Heat pads in gloves are great and fingerless wrist warmers when in doors can be beneficial. Coats are long and wind proof. It’s a constant battle. Hope you find something that helps you cope.

[Tiggywoos in reply to Midgebite21]

great advice I find heated waist coat godsend and the socks . You’re so right the trick is to try not to get the core cold in first place x