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Scleroderma & Raynaud's UK (SRUK)

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Pentoxyfiline

Rubytunes profile image
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hi

I’ve been prescribed Trental 400 mg ( pentoxyfiline) for firearm pain and hand pain associated with Raynauds. The team who prescribed it have discharged me to local rheumatologist who doesn’t want to continue prescribing as it’s a black list drug.

Since taking it I’ve only had 2 digital ulcers instead if around 10-12 at a time - the arm pain is reduced too.

Gp says can’t prescribe so now I’m at a loss as to how to keep the prescription going - I’ve asked if there is an alternative but am getting no where and I know I’m being daft but I’m finding this ongoing battle exhausting and stressful. I live alone and have no family and few local friends who can help me

any advice would be welcome as the thought of having months of ulcers and difficulties using my hand isn’t great

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Rubytunes
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