My 16 year old daughter has been recently diagnosed with Systematic Sclerosis. She is struggling to cope with all the changes in her body and lifestyle.
Her right hand side of her body is affected mostly and it’s starting to spread around her shoulders and back too. My daughter is in constant pain and fatigued.
Also, she is loosing weight rapidly and this is a worry for me and family.
We don’t know what to do to support her more. Any advice would be appreciated xx
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