Hello, i'm sort of sure i don't have Raynaud's since my hands just have weird spots and all my vessels so notorious but they are like that.
Lot of doctors looked at them and said they are normal but in internet there're a lot of "more normal than mine" hands asociated with Raynaud's which makes me wonder if they are trully normal or aren't...
Would I know if it's Raynaud's? Does it hurts or something? It happens for some minutes or how does it works?
Why do you suspect you may have Raynaud’s I wonder? Do you have sensory changes in your hands at all with cold? Do they feel cold? Do you get chilblains at all? Or do you have other systemic symptoms you are concerned about and waiting for signs that might complete the jigsaw - or antibody pointing to an autoimmune picture?
Sorry for all the questions but you ask if you might have Raynaud’s - which is quite a common condition - but you don’t say why or describe what symptoms you are having.
From this photo I can’t see any sign of Raynaud’s or “weird spots” or abnormal vessels at all - you hand looks normal. But subtle stuff on pics can get a bit lost here because uploading means the image isn’t sharp enough. But definitely I can see no Raynaud’s at all in this photo.
But if you have symptoms relating to hot and cold or pain or tingling then there are other invisible things you may have wrong. I’m not doubting you’ve asked for a good reason. It would help if you explained why you’re asking and what the weird spots look like? Could this be dyshidrotic eczema for example if they are raised and itchy/ sore? Systemic Sclerosis can develop over many years rather than suddenly and usually Raynaud’s would be one of the first symptoms and you would see and feel it as numbness and white or blue fingers when you get cold. And yes it can really hurt when the blood returns.
I looked at your previous post and understand that you have shiny hands. Are they tight and painful too or is this just a new skin change you’ve noticed that comes and goes?
Thank you for your response. The dermatologist said my shiny hands are like that for the sanitizer abuse. I asked her about Scleroderma but she said it was a too terrible disease I shouldn't think about.
My hands have all the veins and blood vessels really visible. In the blood vessels areas the fingers tend to get palid for some seconds. In the first picture the middle finger is, in fact, palid in a blood vessel area.
I don't have pain or numbness as you discribe but I don't think my circulation it's fine...
I dont see other people with shiny hands and however the dermatologist said it's fine I don't see other people with visible vessels and veins like mine.
My hands are weird since three or four years and I been telling that over and over again and I don't have and answer of what's going on.
The veins -as the skin arround the vessels turns out palid for some seconds- also became too blue and dilatated to the point the whole hand is full of hyper blue veins a couple of seconds and it's creepy!
The cold is a problem for me but it's not new or something I'm scared about since I suffer from natural hypotermia and my body temprature is 34.8/34.6 a lot of times, even 34.0 and I'm still alive but, of course, my hands are sometimes really cold for a really long time.
Always stick to your guns if you know something is wrong. However I will say that, to be honest your hands look like healthier versions of mine - and my current diagnosis is “complex overlap connective tissue disease syndrome” - a mix of Sjogrens and scleroderma. The visible little veins you show I’ve always had too due to very fair and translucent skin and often shiny too. But I assume this is just me, ongoing neuropathy and Erythromelalgia with Raynaud’s.
If I have Scleroderma then it’s mostly in my gut from head to tail - very severe paralysis. It’s called Sine I’m told but no one will quite state this because it’s so rare. I have telengecstasia but I don’t have Sclerodactyl or cacinosis. I do have a stand-alone rare scleroderma antibody but they hedge a bit on which disease is dominant. I do have allergies and eczema too so I think this probably accounts for some of my stuff. My adult son has very translucent skin too and is hypermobile like me but doesn’t so far have autoimmune. Some of us just are quite translucent compared to others and I’m very reactive to temperature, illness and stress.
So stick to your guns if you feel something is going on but I’d advise not trying too hard to look for symptoms as generally - especially with Raynaud’s and Erythromelalgia - these tend to find us and make themselves very visible and apparent when they arrive!
I forgot to tell I also develop a year ago tons of "vasculitis" as they said in my boobs, tons of visible blood vessels, some in my hands also and the "big red spots" are in my arms and belly and that happened with keratosis pilaris.
The keratosis pilaris it's not just in my arms like most people have and rarely are bumps: it's all over my body like spots and skin color change that includes almost black, purple, red, pink and also some white spots in my back.
I asked *four* dermatologist they all said it's benign but I don't understand how that change in a matter of days... their only responde is that my skin is just too thin and white (but it's not even that white, i'm latina).
So, yes, I have a weird skin problem history with no explaination that include blood vessels as telagectasias.
In the scleroderma territory I have esophagitis since at least 15 years and recent pulmonar fybrosis that doctors said it's a "scar" from pneumonia.
Ah yes I’ve had similar with the keratosis Pilaris too - and I’m too old for it I feel - age 60. It has gone away now for a few years Mycophenolate. I thin it was an excess of collagen for me perhaps.
But I really don’t think you have Raynaud’s yet although something is clearly going on and I can relate to the nagging worry that doctors are ignoring what you feel is an underlying process connecting all these events.
Some of us present uniquely with these diseases and there are overlap syndromes such as MCTD, UCTD etc too. Perhaps it’s time to get blood work done for Scleroderma, MCTD and other autoimmune diseases if you can.
Most people with systemic autoimmune diseases will have supporting blood work such as ANA or ANCA or rheumatoid factor and raised inflammatory markers. Then there are the more specific antibodies for all these diseases. If all these are normal/ negative then you may still have a systemic autoimmune disease but it is much less likely. Have you got access to a testing facility ?
Sorry not to be able to help more but you asked about Raynaud’s and I’m sure you aren’t showing us Raynaud’s with this hand - and the little veins and capilliaries are entirely normal for some of us. I think I’m my case these are hereditary and possibly Ehlers Danlos Syndrome.
in Raynauds your hands go blue, so I really don’t think so. They are very very cold due to lack of circulation and can hurt on rewarming.
They do NOT look like Raynauds to me.
They look perfectly normal, which l hope is reassuring. (-;
Raynaurd's will cause your fingers to go very white like, well like someone has applied a tourniquet to your fingers and there is no longer any blood circulating.
They look perfectly normal to be honest. In Raynauds your hands, toes or even nose/ears go blue, then deathly white with associated numbness, mine even go very stiff and I can’t grip during an attack. Attacks can last form a longtime and be very painful.You mention the veins being visible. That’s normal. I’m a podiatrist by profession so work with many people with circulation disorders. Your skin doesn’t look in poor condition and normal in colour. Try not to worry to much.
Hi there. This is raynauds (pre taking nifedipine MR which has been life changing for me!). I think your hands look ok to be honest. Raynauds is very painful, well is for me. The blood vessels constrict when cold, then when warm up the blood comes back, and frankly it feels as if someone is smashing them with a hammer... Goes through the white, blue (cyanosis), red stages. Hope that helps, D
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