Pregabalin or gabapentin with ILD? - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,798 members5,388 posts

Pregabalin or gabapentin with ILD?

momo17 profile image
11 Replies

Does anyone have experience of taking pregabalin or gabapentin for fibromyalgia if they have SSc with interstitial lung disease? My doctor has just mentioned these as fibromyalgia meds but there are warnings about lung depression if you already have a condition. Just trying to weigh up the risks as have been unable to take duloxetine or nortriptyline as they gave me terrible ringing in left ear that I have been left with even after discontinuation. So now I still have pain and tinnitus to deal with! 🙈 Any advice appreciated

Written by
momo17 profile image
momo17
To view profiles and participate in discussions please or .
Read more about...
11 Replies
CarolMcl profile image
CarolMcl

Hi, I also have ILD, namely pneumonitis and fibrosis which was confirmed after a lung biopsy. I was prescribed gabapentin for nerve pain following the procedure

momo17 profile image
momo17 in reply to CarolMcl

Thank you carol. That’s good to know. If they use it after a lung procedure surely the risks are very minimal

CarolMcl profile image
CarolMcl in reply to momo17

I did ask and my respiratory consultant was more than happy that I take it

momo17 profile image
momo17 in reply to CarolMcl

That’s reassuring. Were you on it for any length of time?

CarolMcl profile image
CarolMcl

Probably just over three months. After the op it didn't go too well and ended up in hospital for just under 3 weeks. Started on oramorph for 4 weeks but I didnt want to continue with it being an opioid. Given tramadol but didn't agree with me, then onto gabapentin

momo17 profile image
momo17 in reply to CarolMcl

That’s really helpful, thank you. Sorry to hear you’d problems post op. I was offered tramadol too but sure I’d palpitations with it before n it never actually helped. Appreciate you replying. It’s difficult to know what’s best in these situations.

CarolMcl profile image
CarolMcl in reply to momo17

Your very welcome. It is very difficult especially when criteria and information for drugs change and unless professionals keep up to date then they're unaware of them. I questioned the use of methotrexate when I have ILD as apparently that can contribute to it. Turns out that's what was originally thought but new studies have changed that idea. My consultant knew about it but nurses at the rheumatology helpline didn't

momo17 profile image
momo17 in reply to CarolMcl

No same today. The doctor didn’t know about the lung depression thing. I’d got that info by googling!!

CarolMcl profile image
CarolMcl

Google not always a good thing as not always up to date. Try to stay on NHS sites but again sometimes these differ also

momo17 profile image
momo17 in reply to CarolMcl

Yeah sorry should’ve said nhs site via Google, thanks

CarolMcl profile image
CarolMcl

😁👍🏻

You may also like...

Vaccine, ILD & immune suppressants

SSc ILD & PAH

Dear all, I was wondering who of you have been suffering from ILD and/or PAH and if so for how long

Has anyone been prescribed Mycophenolate for stiff and painful hands rather than for ILD?

I have limited scleroderma and have been taking Hydroxychloroquine for 10 years. 2 years ago I...

Muscle cramps/spasms and Gabapentin

above please! I have LSS SICA Raynaud's Fibromyalgia and Osteoarthritis. They have been getting...

How many of you have a family member with some sort of auto-immune disease?

I have a sister who suffers from fibromyalgia and has at times been confined to a wheelchair, she...