Itchy legs

[Helenlouise40]

Hi all,

I have been suffering a lot recently with very itchy legs , anyone else suffer with this? I’m assuming it’s another wonderful symptom of scleroderma, I have the limited kind . Any tips for creams etc? Xx

[CarolMcl]

Hi, I'm not much help to you but very interested in the replies as I also suffer from very itchy legs, to the extent that it can wake me up

[positivedaybyday]

Hi,

Sorry for the delay in replying as my sister has visited for a few days.

I have the Diffuse type of Systemic Sclerosis & the itchy legs & body was part of the Scleroderma road.

For me it started in Spain just after I learnt I had the awful disease.

My legs looked like they had been burnt, bright red & very painful.

I flew home using special bandages from the chemist to support my legs.

It was an awful time as the itching was so intense & very hard not to scratch them.

They also went very shiny.

After I was under my Consultant for Systemic Sclerosis I was referred to the Dermatology area to try & give me some relief.

At times I came home from the hospital looking like a mummy, all bandaged up. They tried everything, steroid creams & sometimes the bandages had a special ointment included. I generally had to wear the bandages for 4 days then wash my legs and re apply new special bandages.

It did help ease the itching. After the bandages I tried Hydromol ointment plus KreaMoint a 50:50 Paraffin ointment.

I found these very greasy & heavy on my skin.

Eventually I tried Cetreben Ointment which I found for me was the best one. There is a cream too but personally the ointment is best.

If you're under a Consultant ask to see a Dermatologist so they can look at solutions for you as everyone is different to varying degrees

I hope this information helps you get some comfort as it drives you crazy!!

[Helenlouise40 in reply to positivedaybyday]

Thank you so much. I am so sorry you have been through this. I hope things are better for you now. Mine are nothing compared to that, I get it every now and then. I just wondered if it was related to the disease and it obviously is. I will give the cream a try. Take care and stay strong xx

[positivedaybyday in reply to Helenlouise40]

Yes I do thanks. I should write a book on my experiences!!