Happy Chilly Saturday: When people come... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Happy Chilly Saturday

Sophiebun11 profile image
9 Replies

When people come to your door do they ask if you're on your way out because you're in mittens, a scarf, a hat and a jacket because you're so cold? LOL

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Sophiebun11 profile image
Sophiebun11
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9 Replies
bluedolphin2 profile image
bluedolphin2

This was one of my hands yesterday, the other was the same, took over 30 minutes, to start to feel anything.

Raynaud's- so cold
bluedolphin2 profile image
bluedolphin2 in reply to bluedolphin2

The other, sorry abit blur, as I was having difficulty holding the phone with no feelings. Just feel cold all the time during Winter ❄️🥶❄️🥶

Raynaud's phenomenon
LadyTrundle profile image
LadyTrundle in reply to bluedolphin2

Mine would be the same - autumn winter spring and cooler days in summer ... if I didn't constantly keep them in gloves, often of the heated variety. I do have a feeling that upping my meds this year (2x10mg nifedipine plus 1 x25mg Losartan potassium a day) does seem to be helping extend the length of time I can take the gloves off to do something necessary.

Sophiebun11 profile image
Sophiebun11 in reply to LadyTrundle

Every little bit helps, I glad you get a little time out of your gloves to tend to things.

Sophiebun11 profile image
Sophiebun11 in reply to bluedolphin2

I run my hands under very warm, not hot water. Since I can't feel it at first I watch carefully where the setting is so I don't burn myself.

It's so strange isn't it. I feel like a chameleon with all the colors appearing on my fingers and toes.

Stay warm and get some good gloves or mittens.

Glow-worm profile image
Glow-worm

I always used to have a reputation at work - people amused by how many layers I needed to wear outdoors in winter. Also used to have to wear hat, mittens, and two (or even three) pairs of thick wool socks in bed for much of the year.... But I am not a bad case compared with other people. Used to wonder if I quite made it into the category of having Raynauds. (As a child, parents referred to it as "poor circulation", which gave me a wrong understanding of it.) But now I accept the name of the condition, and just take it that there is a spectrum of severity. What with the damp British climate, I can get chilblains at any time of year between September and June. Used to endure them for 6 months every year as a child and adolescent. (The milder winters of the 2020's are at least easing that burden of discomfort, and I don't work outdoors these days. But too much sitting indoors - and on go the legwarmers, hat, scarf, gloves, etc.)

Sophiebun11 profile image
Sophiebun11 in reply to Glow-worm

Hi,I've noticed a silly thing. When I go to the Dr. they have the air conditioner blasting whether it's winter or summer. It's always freezing in the office or hospital. I dress like I'm going to the north pole for visits.

At least it's been 104 degrees the last 2 weeks where I live in the U.S.

Glow-worm profile image
Glow-worm in reply to Sophiebun11

Horrible air-con!

Glow-worm profile image
Glow-worm

Incidentally, I can't tolerate a heated house. In winter I keep the heating on only at a relatively cool temperature (by other people's standards) and have to adjust it according to my level of chilliness. Otherwise I overheat (and then chill), because I can't get a temperature equilibrium. It's easier to control temperature by clothing and physical movement. I don't know if that makes sense to other chilly people?

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