As It Says I am new here. So here is me opening up and asking for help from strangers on the internet. This is going to be interesting.
I am 41 years old, quite fit (well until recently that is) engineer working as the IT Manager. I am alone, as in no family but my cats and dog. I live in Istanbul, Turkey.
I have been diagnosed with scleroderma approximately 4 months ago following a very intensive and expensive series of various misdiagnosis .
(in order;Diabetic Nephropathy, You are fine, Rheumatoid Arthritis, Lupus, Lupus SPL, Leukemia).
I do not blame them since being a Type 1 Diabetic with insulin dependency and Blood Sugars running between 60 to 400 at the time made it nigh impossible for them.
It has been a roller-coaster as you can imagine.
I am generally happy with my lead rheumatologist and my endocrinologist, both are great ladies but they are unwilling to come clean with what is ahead of me. In some cases, they are being flat out "cagey".
Every week I develop a new symptom and they go like, yeah this could happen or, we were expecting that and shove another drug down my throat or veins.
In just 4 months, or 11 since the onset of early symptoms, I have started developing kidney failure, shortness of breath and dry coughs are; bad; fluid on the Heart muscle, Hyper-Tension. I can barely move due to sensitivity of my skin and the overall pain. Not to mention other gastro related unmentionable bodily functions going totally haywire.
Is there anyone here that has or is in contact with anyone who have combination of Type 1 Diabetes and scleroderma.I would like to find out what is ahead for the short term and if wanted, would like to explain what is ahead for them.
P.S. I hate Doctors more now!