Hey everyone I have been diagnosed w... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Hey everyone I have been diagnosed with scleroderma and lupus 3 years ago is it normal to still have pain and fatigue even though am being

Nickylino profile image
5 Replies

Medicated ?

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Nickylino profile image
Nickylino
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graygirl1 profile image
graygirl1

Hello Nicylino.

Sorry to know of your discomfort. I don't have Lupus as far as I know but do have other symptoms of Autoimmune Disease and suffer greatly from joint and muscle pain and am always lack energy. I would say the answer to your question is "Yes" to pain and fatigue in spite of the medication.

Keep visiting the forum for more help and advice. You will get a lot of support here. I wish you better days to come.

All the best to you.

Graygirl1

Nickylino profile image
Nickylino in reply to graygirl1

Thaks graygirl1 sorry to know u also have this horrible disease, I'll keep on visiting the forum cause I fell really supported even though I've been sick for 3 yrs I can't deal with this illness very well.

All the best 2 u 2 ;)

graygirl1 profile image
graygirl1 in reply to Nickylino

Hi Nickylino

It is not easy finding ways to cope but just knowing you are not alone will help. I stumbled across this forum whilst feeling hopeless and helpless and seeking more information on where I could go to get some support. I have a great GP and wonderful friends but only fellow sufferers really understand this illness and what it like to live with.

I am lucky, there are many who are suffering more than myself and I wish everyone the best.

Just be kind to yourself. Rest as much as possible, eat well, try to enjoy life as much as you can, take some gentle strolls if you can and don't be too proud to ask for and accept help when possible. Hope things will get easier for you. Don't despair and don't give up.

keep in touch and let us know how you're doing.

Graygirl1

Nickylino profile image
Nickylino in reply to graygirl1

Thank u graygirl1 I appreciate your comments they make me feel really supported

zenabb profile image
zenabb

Just imagine how much more fatigued you would be without. I use diversion not think of my pains etc. I try to live an active and interesting life.