I'm a previously fit and healthy man of 58 and have gone from a sore knee, then a swollen calf less than a year ago, through a spell in A & E with chronic kidney failure, and blood pressure of 260 over 190(!), to a diagnosis of localised scleroderma (anti RNA polymerase antibodies positive) and accompanying Raynaud's.
I'm currently unsure whether the main intrusive symptoms come from the scleroderma or side effects from all the drugs I'm on.
Mycophenalte Mofetil 1.5g
Bisoprolol Fumarate 2.5mg
I experience huge tiredness and a swimming feeling with my balance - not dizzy, but my balance seems off and I'm happiest lying down but know that won't do and I can't lie down when I'm out!
The main thrust of course is to keep my blood pressure down to give my kidneys a chance to improve, which they are a little - I've seen both my rheumatologist and a renal consultant (both of whom have experience with patients with scleroderma). Both tell me that 'fatigue' is very common with scleroderma. Though it's also listed as a side effect of many of the drugs I'm taking.
I'm wondering if anyone has experience of these and how they progress as treatment continues and your body gets accustomed to the medication? Or does the fatigue continue? If so what strategies can help?
Many thanks in advance