Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,842 members • 5,412 posts

All posts for April 2011

clothes for fashion rather than warmth?

Any tips? I realise that when I get dressed I tend to think - warmth and comfort and what its going to feel like; whereas most other people think about colour,...

Any tips? I realise that when I get dressed I tend to think - warmth and comfort...

•13 years ago

Who pulled the plug?

Was just thinking 'is it just me or do others suffer their fatigue the same way?' It has been recently that I have noticed that my fatigue just seems to come...

Was just thinking 'is it just me or do others suffer their fatigue the same way?...

•13 years ago

Do I need to see a Rheumatologist?

My Raynaud's has been getting progressively worse over the last few years and after several recent trips to the doctors we've eventually reached the conclusion...

My Raynaud's has been getting progressively worse over the last few years and af...

•13 years ago

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Nifedipine here I come!

After having moved last year, my new doctor has finally received my notes from the old surgery. She hasn't had time yet to go through the huge pile of bumpf...

After having moved last year, my new doctor has finally received my notes from t...

•13 years ago

What is the life span of someone with diffuse cutaneous systemic sclerosis?

•13 years ago

hello people this is my first blog and will start by introducing myself i am a male who as diffuse cutauenus systemic sclorosis

Is there anybody in Preston with this same disease? If so get in touch as with help of others need to publicise this disease to help other sufferers in the...

Is there anybody in Preston with this same disease? If so get in touch as with h...

•13 years ago

Painting & decorating?

This is a crackers off the wall question but here goes. Before starting cyclophosphamide, I decided to blitz through painting all of my doors and frames. I...

This is a crackers off the wall question but here goes. Before starting cyclopho...

•13 years ago

Hello to you all and what a great idea this is !!!

Hi, thought I would introduce myself - I was diagnosed with Raynaud's in 1973 when I was 17. By the age of 20 I had cervical sympathectomy both left and right...

Hi, thought I would introduce myself - I was diagnosed with Raynaud's in 1973 wh...

•13 years ago

Dropsies! How I hate them.

My Raynaud's has gotten so bad these days that even though it is warmer outside and everyone else is sporting light coats, I am still confined to wearing...

My Raynaud's has gotten so bad these days that even though it is warmer outside ...

•13 years ago

Supermarket ordeal

I've been almost a total recluse over the winter months - lucky for me I work from home - so it was really nice to be able to venture out over the weekend...

I've been almost a total recluse over the winter months - lucky for me I work fr...

•13 years ago

Iloprost - does it help?

Hi, I have yearly Iloprost infusions at the begining of winter, spread over 5 days for 6 hours each day. I am never really sure it helps and have heard that...

Hi, I have yearly Iloprost infusions at the begining of winter, spread over 5 da...

•13 years ago

Evil Air Conditioning!!

I hope everybody is enjoying the warmer weather and perhaps finding that you can go gloveless (even if only for a brief period!). There were a lovely few days...

I hope everybody is enjoying the warmer weather and perhaps finding that you can...

•13 years ago

Happy Days

Driving home from work today, was the first time in a long time I felt, normal and happy, why you all ask, because the sun was shinning, i didn't have my...

Driving home from work today, was the first time in a long time I felt, normal a...

•13 years ago

A little history Raynaud's to RA

Hello All As this is my first blog I fell I ought to say something about myself. I've now had Raynaud's for 11 years coming on in my late 30s and have attended...

Hello All As this is my first blog I fell I ought to say something about myself....

•13 years ago

Another Appointment another set of Treatments

Hello again everyone, Well I had an appointment on Thursday with a new Dermatologist and was told the regime I have been using for the last 5 years was wrong...

Hello again everyone, Well I had an appointment on Thursday with a new Dermato...

•13 years ago

Is there anyone in the Liverpool area suffering with Raynaud's and scleroderma or just me ??

•13 years ago

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