Hi, thought I would introduce myself - I was diagnosed with Raynaud's in 1973 when I was 17. By the age of 20 I had cervical sympathectomy both left and right hands which sent heat through my fingers - nice and warm for a while .... I don't know what happened but follow up ceased after a while - maybe my fault - Raynaud's just got worse and had frostbite on the tips of my fingers in my late 20's. Scleroderma was diagnosed in 1992, I went to dermatology for something different and scleroderma was diagnosed with Lichen Sclerosus. Too cut a long story short I retired from work on ill health grounds in 2006. I have Raynaud's, Limited Scleroderma, Lichen Sclerosus/planus, underactive Thyroid, Chronic Fatique, Migraines, Sjorgen's Syndrome. Problems with swallowing and bowel problems and I am on various medication, Iloprost every 6 months and because of a non healing ulcer on my fingers 7 months so far and unbelievable pain, I am taking Viagra for 6 weeks and having botox. The pain is now gone and ulcer is clearing slowly but most of all I am pain free from the ulcer at present.
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