Painting & decorating?

[Geordie_Kate]

This is a crackers off the wall question but here goes. Before starting cyclophosphamide, I decided to blitz through painting all of my doors and frames. I thought I would get it out of the way before my lungs deteriorated any more (I have lung fibrosis as a result of scleroderma). To my astonishment, my breathing got easier with gloss paint fumes. Has anyone else found this or have I succeeded in melting my lungs?

[uknlv]

Hi Kate

I certainly hope not lol! I have not done any decorating for some time, good on you for being able to do all this with your scleroderma! So no idea if it helps or not, I know it isnt the best to breath it even with normal lungs, but I would imagine your breathing would be much worse if it was making the condition worse! Best of luck and hope the painting turns out nice!

[BevMyers]

Probably due to all the exercise you did when you were painting and decorating!! Exercise improves your life - do as much as you can (can I suggest you open the windows though next time! )

[Jane18]

How are you coping with the medication? I think I could be prescribed something similar at my next appoinment at the Lung Clinic.

[Geordie_Kate in reply to Jane18]

Hi. I've had three lots of cyclophosphamide treatments and it seems to have stabilised my lungs. You feel a bit quesy the following day but otherwise fine.

[AshtonRains in reply to Geordie_Kate]

Hi Kate,

I'm 21 and starting Cyclophosphamide on the 6th December, and haven't been told anything about it. What side effects have you experienced? Ashton x